Life after Loss

always grief. 

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Having a “rainbow baby” doesn’t take away the grief of losing a child, it preoccupies you with having a new life to care for, which puts your grief (and everything else in life) on the back burner. It also means that you are taken by “grief surprise” more often. Normal every day things seem to be super heavy when maybe they weren’t before, even while carrying your rainbow. 

Some days everything just feels like I am trying to complete a task with an extra 500lbs on my chest. Some days I wonder how I am still alive, and how I get up to face the day. Easter and the day before were those days for me recently. I knew that we were going to Shane’s grandma’s for Easter and while I love his family so incredibly much, I knew it would be hard. It will ALWAYS be hard from now on. To make matters worse, there is a child in the family who is a month and a half older than what Kenley should be. I see that child, I think of what I’m missing. You can surely understand why it’s hard? It’s not this child’s (or her parents) fault my daughter died, but it still stings more than there are words and I will never not be sad around them. That is my life now. 

Easter morning it was just me, Landon and Alden. Landon ran into our room saying “the Easter bunny came!” Then he excitedly ran out to get both his and Alden’s baskets. As I was putting them together the day before, it just hit me like a ton of bricks- there should be three, but there will always only be two. 

Even if we have more children, we’re always going to be down one child and that is so fucking cruel. I know we’re not the only family who deals with this, but that doesn’t bring me any comfort what so ever. 

Before anyone gives me crap about Landon’s basket and the math work book, he loves math! He asks for “plus” when we go to bed at night. The kid loves his math.

LOL at our creepy eggs. Thanks to Target for the pirate egg kit. Landon had fun…even if it was a day late. #parentingfail #doingthebestIcan


So needless to say, Easter was rough. I feel like such a bad mom, too. I didn’t buy Alden or Landon any cute little Easter specific outfit. (I also didn’t decorate eggs until today…) I’m kind of thinking that I just didn’t care enough, I’m just too sad to make an effort? I love my kids and I would love to dress them up all cute but this year was unexpectedly hard. I felt like the grief and sadness was fresh. Last year I was sad because Kenley should be have been here enjoying Easter, and this year I’m sad for that as well as feeling guilty that she isn’t here and Alden is. 


It’s just all so messed up. 

The thoughts in my brain are things that I can only share with a few select people. Loss mom’s, and maybe my mom or/and sister. They make no sense and they are dark and scary. 

Today I was cleaning up the nursery. It’s been a disaster, like the entire house, since Alden came. I am overcome with anxiety which makes cleaning up pretty much impossible until I have a good day (today was a decent day so I took advantage) I don’t know why, but I started taking the newborn diapers out of the diaper caddy that I placed there with hopes and dreams of diapering Kenley. It was so so hard.  I felt a heat rush over my body and down my chest.

 How is this my life? 

How am I deciding if I want to remove these or leave them there (probably forever) instead of just simply running out because they’ve all been used. It hurts. My eyes got hot because I knew I was going to start crying any second. 

How is this my life? 

In my before, they were just diapers, but now, unfortunately, they come with so much attached to them.

 Sadness. 

Grief.

Guilt because I’m replacing them with her sisters. 

Parenting after a loss is all sorts of messy. You never know what a trigger is going to be ( although I knew these were a trigger…that’s why they’re still there…) I will never understand why this happened to our family, to my precious daughter who was wanted SO badly. I would give anything to have her laying here in front of me. No…she would probably be running around actually. Ugh. 

The realizations of what she should be doing sting so badly. This is also why Easter was so. fucking. hard. this year. The child I mentioned above was walking, and running, and talking. That should be Kenley…and it never will be. 

I guess I was feeling extra ambitious today (read: felt like torturing myself more then usual today) because I decided to put Alden in Kenley’s clothes again today. I chose a shirt that I picked for Kenley and fell in love with. It was in her diaper bag at the hospital when we found out she died. The leggings are the ones I had ordered just a few days before she died…they were in the mailbox the day we came home from the hospital. 

I love seeing her wear these but I cannot help but wonder what Kenley would have looked like in them…


I also put her in the outfit my sister bought for her. She wasn’t too happy with it, but she looked cute so here’s the best picture I could get. 

Not too pleased with all the picture taking


Alden is officially one month old! It’s flying by, and I can’t believe it. 

She loves to sleep, eat and poop. She is recognizing our specific voices, and trying to grab her toys. She’s also been holding her head up for a long time now! Still wobbly as heck but she does a good job trying. Also, she’s a grunting, stretching, farting rude girl 🙂

looking inside.

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Sometimes when it’s dark out, and were driving down the road I will look inside peoples houses if their curtains aren’t pulled shut. I know that I’m not the only person who does this, and so I know that there are people who have driven by my house and looked into the Nursery when it’s evening and the curtains have been open.

Those people are not aware of the pain and suffering that has been the last year of my life. They drive by, peer in and see a little girls nursery. They could have even driven by multiple times and seen a guest room, Kenley’s nursery, and then now Aldens’s. Maybe they didn’t notice, or maybe they did. It’s such a harmless thing, just looking out the window of a moving car. It’s just amazing what you will never know from just looking inside someone’s window while driving by.  It’s such a weird thing to think about, but it’s been on my mind a lot lately. Maybe it’s because I fully expect many people to discuss my pregnancies when we’re in the hospital, or maybe it’s because losing a child makes you wonder who else has gone through it?

Maybe it’s because I feel like everyone should just know about Kenley. I wrote about this in the very first blog post I ever wrote. I feel like once you’re a loss parent, you are marked and everyone should just see your pain, no matter how long it’s been, and no matter how your child died.

Shane and I were talking at breakfast the other morning and we were discussing how naive we were when we had Landon. Shane said he remembers how proud he was to take Landon out to meals and have people tell us how adorable he was. We talked about how we never in a million years would have ever thought that we were hurting anyone buy taking our child to breakfast with us in public; now however I’m constantly wondering who is suffering.  I know that there will always be someone in pain, and that we will never be able to know for sure who it is, but I will always be more aware now.

Today is March 1st.

I can’t even with all the weird feelings I’m having, but let me try…

I feel excited because yeah, theoretically, I should be having a baby soon (I’m not counting my chickens before they hatch though…).

I feel sad because I should have Kenley in my arms, as a beautiful funny 14 month old baby- instead, I’m super pregnant, again.

I feel nervous because I’m pretty sure I’ve forgotten everything I know about taking care of a baby. I had postpartum depression with Landon pretty badly, and I’m scared that it will be that again on top of grieving for Kenley.

I feel extreme love when I think about watching Landon hold Alden. I cannot wait for that moment; I have been waiting for far too long to witness it.

And, on top of all of that, I feel guilt. Guilt that I’m being monitored so well by my doctor and that Kenley didn’t even get a chance to be monitored like this. Guilt for being so excited for Alden to come. So much guilt over pretty much everything. It’s just so difficult to explain to anyone who hasn’t lost a child what the guilt is like and how I feel it vs pure excitement.

Tomorrow we have a NST, and my doctor is going to check the blood flow in her cord for us.  At Monday’s appointment I think that I scared my doctor. I have been cool and calm so far but not on Monday. I think she finally really understood how intense this has been for me. I let my guard down and cried and cried and cried. I begged her to take Alden at 36 weeks, or that day. Just take her while I know that she is alive and well. Kenley died 6 days before her scheduled c-section date, and I cannot go through losing a child this close to the end again.

She offered me daily NST’s, and to see me personally at everyone. I don’t think that I can bring myself to go up there every single day and not feel absolutely insane. The NST’s themselves give me super PTSD. They are how we found out that Kenley had died, so they just don’t do much to calm me down. I emailed my doctor last night, and she wrote back within 4 minutes- I appreciate that more than she will ever know.

I’m trying. 14 days left. 2 weeks. I can do this.

38+4

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5

Today is another rough day.

Today, the amount of time that has passed since you died, is the amount of time you were alive.

Tomorrow you will be gone longer than you were with us.

I don’t think there are words to describe the way that I’m feeling.

The only thing that I feel like doing or saying is screaming from the top of my lungs that I love you.  That I am your Mother. That you are my Daughter. That you were taken away from our family. That I will always ache for your presence in my life. And that I will never be whole again.

 

rough day.

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Our Molly Bear came today. I had to call the post office and ask them to hold it there for me so I could pick it up early because Shane had to be at work before our mail usually gets here.

We went to the post office about 9 am and there it sat. A huge white box, just staring back at me; I almost cried just looking at it. When we got home, Shane cut the tape on the box and we opened it. Immediately I cried. When I opened the box, my beautiful Kenley bear was looking back at me. She is perfect. I don’t think I could have made a better bear for us had I done it myself.

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When I held the bear, I cried. I knew that I would probably lose it, and I was right. She was heavy- 7lbs 5oz- but, that’s what Kenley weighed at birth. It just feels weird to feel her weight in my arms again. Shane held her for a little while, and we talked about it. We said how perfect she was over and over. We said that Landon is going to love her, and want to play with her.

Then, Shane asked if I wanted to go in her room.

We took the bear, and we went in.

I haven’t been in her room since…April 29th. It was so hard. I mean, hard in the way that your chest gets tight, and you can’t breathe. You cry the same kind of tears you cried at the hospital when your baby was born silent; when your whole world came crashing down around you within seconds and you didn’t know how you would ever survive.

We sat there for a while, and just talked about her room. About how beautiful it is, about her clothing, and the “why her” conversation happened again. I cried more. Going in was extremely hard, but I feel so calm in her room. We decided to look through her drawers, and closet. We looked at all of her clothing. We looked in her memory box from the hospital. We opened the envelope that has a lock of her hair. Her beautiful dark brown auburn colored hair. She had so much hair, my sweet girl.

Then, I asked Shane to open her diaper bag. This bag hasn’t been opened in nearly 9 months. I haven’t looked in there with a semi-clear mind, so I wanted to look. We pulled everything out, smelled it, looked through her baby book and sorted out what we wanted to keep specifically for Kenley, and what we could reuse for this baby. There were two outfits that Kenley didn’t wear in the hospital so we kept those out, but the rest is in the diaper bag still. image3

Today was a really hard day. I feel like I ran a marathon on the beach in cement boots.

I just really miss my baby girl.

We put her 2 quilts, and 1 crocheted blanket into the hope chest, along with the diaper bag and all the items we kept in there. It’s a step. It’s a huge step. I know that this room is going to be our new little girl’s room, and I need to work through a lot of stuff before I’m comfortable with that. It breaks my heart to think about taking her nursery apart, but it also breaks my heart to think about leaving it the same. It’s just not fair. No mother should ever have to think about these things.

Someday’s I feel absolutely insane. I don’t know how I’m going to make it through the next 25ish weeks.

NT.

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Tomorrow we have our NT scan and first official MFM/OB appt. I’m nervous, but not much.

I’m a little scared because I stopped my PIO, and my estrogen, and haven’t been back for a scan since…It freaks me out to think that something could have gone wrong after I stopped those medications. I’m trying to have control over my mind and control over the fear, but well…lets me honest now.

The appointment is at 12:20, then my OB appointment is in the same place just at 1:45. I have my Mother in Law coming to get Landon off the bus if needed.

If all looks well in my scan tomorrow, and we get a good picture of our girl, I’m going to post it here. I wanted to let all of the loss moms know, just incase you were having a bad day, or will be having a bad day tomorrow. I feel as if I owe it to this baby to be excited for her (obviously I am, but it’s complicated…) so I’m going to try and do one thing every few days that makes me a little uncomfortable. Posting her ultrasound photo will be that thing. I posted photos of EVERYTHING when I was pregnant with Kenley, and this baby deserves to be loved just the same.

(I have to repeat this in my head daily. Losing Kenley has greatly altered my emotional state)

I hate this. I hate every second of the way I have to live my life now.

I am trying.

Little Miss, I can’t wait to see you on your ultrasound tomorrow. Please dance up a storm and make it hard for the tech to see you, so we can see you longer (but make sure to let her get all the measurements and pictures she needs!) .

 

 

shipped.

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4

Today has been a rough day. Shane asked me how I was feeling about “little miss”, and it sort of just opened flood gates. We ended up talking about her for a long time. We talked about Kenley, her nursery, the new baby, and a bunch of stuff. I told him I was thinking about going into her room today, but ultimately I decided that I didn’t want to/wasn’t ready. He asked me if I wanted to start putting things into her hope chest, and I just lost it.  Cue all the tears, for the rest of the day.

No, I don’t want to put her stuff in the box. I WANT her to be here so she can use it. I want to never have known this level of pain, and heartache. I want to be naive about pregnancy, and never suffer 2 miscarriages, and a stillbirth. I want to not feel sad/guilty/depressed every second of every day even on my good days.

I know that nothing will ever bring Kenley back, and I know that I am doing a lot better with processing her death but quite frankly it just fucking sucks.

The whole thing sucks. 

I want to be excited for this new baby; we worked our asses off to get her. I am happy and excited to be pregnant, but it is overshadowed. I am trying— I say this so much that I sound like a broken record. I’m having a hard time thinking about this new baby using the swing that was purchased for Kenley. I know that it probably seems like a trivial thing for some people, but those people probably don’t truly understand. The items that we purchased for Kenley were burned into our minds as “her things”.

We dreamed of bringing her home from the hospital, and laying her in the rock n’ play my friend bought for her.

We dreamed of bringing her home and dressing her in one of the adorable outfits we specially bought for her.

We envisioned laying her in her crib, the one that we spent so long researching.

I dreamed of her doing tummy time on her bright yellow chevron rug (that I spent way too much money on- but didn’t care because, anything for her, right?)

I never in a million years expected to not have her here with me. I never thought for one second that I would have a nursery full of brand new items, never to be used by the intended child. But, instead, I have to process my grief and allow a new baby to use these items. I know that sounds weird, even as I type it my rational brain is screaming out–but my loss mom brain…well…that part of my brain gets it. That part of my brain understands the true depths of my pain. That part of my brain will always be fucked up now.

So the way it stands is that one half of my brain is always going to be living in fear or something terrible happening, and a huge chunk of my heart is pretty much broken and dead.

I’ve spent the evening googling “what to do with a nursery after stillbirth”… I bet your evening was better…

As I was sobbing and reading through multiple websites, I received an email.

Our Molly Bear has shipped…with 2 day shipping.

The bear will be here before 38+4…

I know that Kenley was looking out for me, and wanted to make sure the bear got here before the day when she has been gone for longer than she was alive.

I love you baby girl. You give me the strength to wake up everyday. I wish I could be holding you, smelling your sweet baby smell right now.

honor.

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Somedays I wake up and I don’t get regular clothes on (I must not tell lies). I smack on the yoga pants, a t-shirt and call it a day. Those days I don’t usually put on my Kenley necklace. Somedays it doesn’t even phase me, but some days it really bugs me. Some days I feel like if I don’t wear that necklace, I am not honoring my girl. It’s like I feel as if I’m “forgetting” her if I don’t wear it. I know that’s stupid, and I know that wearing my necklace here in my house isn’t making me any closer to Kenley. I can’t get any closer to her- I’m her mother. I am the one who loves her more than anything in this world.

Sometimes I feel like, as a loss mom,  I look for ways to honor my daughter that are above and beyond. Like, somehow if I take my love for her above and beyond, she will be able to feel that extra love. I know it’s not true, I know that she knows I love her, and that I would do anything in my power to have her here if it was possible. It’s just another way that losing a child fucks your brain up. It sucks. It’s sad. It hurts. It’s depressing knowing that no matter what I do to honor my girl, it’s just not going to matter when it comes to saving her.

I couldn’t save her.

Maybe honoring her by wearing her necklace, taking care of her tree, making things for other loss moms, makes me feel closer to her. Maybe it makes me feel like I’m caring for her, even though she is not here. I’m not sure what it is exactly. I’m sure I’m not the only one who feels this way.

There are other things that I do now that I need to do every day because I feel like if I stop, it’s one more step away from my girl. Now that we have our hope chest I know that I should take small steps to start putting things in there. I have a shoe box of random things from our bedroom that are related to her, and it’s sitting on my dresser. I think the first step in this whole “hope chest” thing will be putting that shoe box in there.

I don’t know if you’re like me, but when I clean something up I always end up getting sucked into it and looking at it again. Usually tying to clean one thing quickly takes a full day and will get me so off track. I know the second I step into her room and start to unpack that diaper bag, I’m going to fall apart into a million pieces. I haven’t looked at her blanket from the hospital, or the hat. I haven’t re-read her 25% finished baby book that will never be 100% finished. There are so many things that I want to look at, but know that I am not strong enough for yet.

Next Tuesday is 38 weeks. Next Saturday is 38+4, the length of time I carried her. Sunday she will be gone longer than she was alive, and that’s a real gigantic mind fuck.

Maybe next week I will find the strength to go in her room. I don’t know. Maybe not.

Probably not.

dentist.

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Today I had a cleaning at the Dentist. I knew that I would have to update my paperwork, and inevitably this means updating medication, and pregnancy information. They only had me fill out 5 update questions, and the last one was “pregnancy- yes or no”? So I checked yes, and handed it back to the front desk lady. She proceeded to read over my 5 questions, and when she hit the bottom one she looked up at me with pure excitement and exclaimed ” OH! CONGRATULATIONS! When are you due?!”.

It took everything (EVERY. THING.) I had inside of me to smile and tell her 4/5/17.

When I got back to the exam room, the hygienist went over my paper work…again…and she did the same thing. “SQUEEE!!! WHEN ARE YOU DUE! CONGRATS!”… Again, I answered and smiled.

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She proceeded to talk to me and asked about my children, which I knew was coming obviously. I answered her, and told her about Kenley. I talked about Kenley like she deserves to be talked about. I spoke of her, and Landon, and the new baby.

My gums were super sore during the cleaning (thanks pregnancy hormones…), but it was finally over. She told me to sit tight and the Dentist would be in to talk to me. Well, during the 5 second wait, a new hygienist (who I hadn’t seen at all) came in and read my chart AGAIN.

I bet you can’t guess what happened. 

Then she starts talking to me about a procedure that will cost like $500-1,000 and isn’t covered by insurance (assuming she was just making convo) and said I should totally have it done. And…that’s when I couldn’t take it anymore.  She had squee’d FAR too much for me. So, I straight up told her ” I would love to have that done, but I just simply cannot afford it. We did IVF this summer and now I’m nearly $23,000 in debt. I just don’t have the money, but thanks for the offer”.

She gasped at the cost (YEP. ME TOO, LADY, EVERY TIME I PAY THE BILL) and told me how sorry she was that Kenley died and we had to do IVF etc etc.

Then it came time to schedule my next cleaning, in 6 months…

Right when this baby will be due. 

I had to tell them I would call them to set it up, and I pretty much ran out of the office holding back tears.

I’m sorry hygienist lady, I cannot guarantee that I will be able to “bring that cute baby in for all of you to see!” because I can’t guarantee that she will fucking live.

IT HAPPENS. BABIES DIE.

So please for the love of god, just stop talking to me about it, and let me leave your office with my new toothbrush and sample toothpaste. PLEASE.

 

busy.

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I am so freakin tired. I’m tired physically, mentally, and emotionally. I am so tired of pretty much everything.

This past weekend was my little Sister’s Bridal Shower. I had to go up to my hometown for it, and I just spent the entire weekend running around trying to get everything finished up. The shower went well, and I think she really enjoyed it so yay.

I never sleep well at my Mom’s house; I don’t know if it’s the bed, or the fact that it’s just not my house, or what. Needless to say I slept like a rock last night, and definitely didn’t want to get up this morning. I had to actually wake Landon up, which never happens.

 

This week is going to be a struggle for me. I just know it. I’m really hoping that Friday comes ASAP.

I don’t have any appointments this week to see little miss moving and grooving, but I do have my NT scan next Thursday. I’m sure it will be a decently long scan, so I’m excited to have it done.

I cannot believe we are already almost 11 weeks. On Wednesday, I will have 26-ish weeks left. On one hand it feels like such a short period of time, but on the other hand to a loss mom…

It’s 26 more weeks of waiting for the other shoe to drop. 26 more weeks of expecting to see blood every time you pee. 26 more weeks of dreading each doctors appointment because you just know something is going to be wrong. 26 more weeks of straight fear.

I could get my doppler out, but that means going in Kenley’s room (the Nursery? the new baby’s room? The girls’ room? I shouldn’t have to worry about this…). It means bringing myself back to the days of using it with her. Brings me back to the day before she died, with her beautiful strong heart beating away for me to record on my phone one last time. I will never forget that I sent it to Shane, and he replied something along the lines of “So strong! Can’t wait to meet our girl!”…

And the next day she died.

I will never understand. a24e4ee918c1ac347a4e8291df26f7c6

 

socks.

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Landon spent this weekend with my family up north. He had such a great time, and went to a see wooden ships, to a few festivals and played with his cousins and my moms neighbors.

He was exhausted, needless to say.

When I got him back home and settled in, I started unpacking his bags. My mom text me and asked if I saw the gift that he got for the baby. I hadn’t found it yet so I went looking through the other bags for it. I found the brown bag the gift was in, and asked Landon what was inside. “A gift for my new baby sister! I wanted to get her a shirt too but grandma said we didn’t know what size she would be so we could buy her a shirt when she’s born” (read: grandma spent $12 on a pair of socks, so she definitely wasn’t going to spend another $12 on a shirt the baby would wear for a hot second – completely understandable).

So, I slowly opened the bag not sure what to expect.

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It took every thing I had not to burst into tears. Landon’s staring at me, waiting for me to say something; I said I loved them and his baby sister was so lucky to have him as a big brother. He smiled and went back to playing toys.

I turned to Shane and started crying.

The first thing for the new baby.

The first baby item I’ve really looked at or held since Kenley died.

The tag on the socks says that this brand supports March of Dimes. When Kenley died, the girls on my board donated money to March of Dimes in honor of her. I feel like somehow this was a small sign from my girl. A sign that tells me that she is with us, no matter where we are at, and no matter what we are going through. She was there helping Landon choose these sweet rattle socks for his new sister. She knew it would be hard for me to see them, but she made a way to let me know it was ok.

I miss you, my sweet girl. I wish I could have seen your sweet feet in cute rattle socks. I am forever missing you.