As the year comes to a close and Kenley’s second birthday speeds toward me like a fucking bullet train, I am so thankful for the donations we will be making to the hospital in her memory.
After Kenley died I knew that I wanted to do something in her honor for the Hospital where she was born. I didn’t know what; nothing felt right to be honest. We ended up donating 2 large photos and they are placed in the room where she was born- 3E11-, and the room next door. I didn’t think that was enough, and still didn’t feel right. What could I do to make her name mean something to other people?
I was given a book and a rubber bracelet when Kenley was born still. I wear the bracelet every single day, as does Shane. I haven’t taken it off once since I put it on; I had it on the day Alden was born. I thought for a while about what would be good to put in the bags. I came up with a list of items that I knew would have really helped me had I received them at the time of her death.
- good quality tissues (my nose was bloody & raw from the hospitals)
- relaxing lotion
- a candle to light in honor of your baby
- two books that helped me in my early grief
- a note pad and pen to jot down information
- forget me not seeds to plant in honor of your baby
Last year, we donated 20 bags in Kenley’s name. We also donated some crocheted hats, and sleepers for the babies who are born still.
I was contacted by the Hospital and told all bags had all been used within 6 months. Twenty babies born sleeping within 6 months in my town. How? How is this still happening? I know that it’s never NOT going to happen, at least not in my life time, but it’s just mind boggling that in 2017 babies still die. The fact that these babies don’t even get a chance is what hurts the most.
This year, in honor of Kenley, we have chosen to donate 40 bags to the Hospital system. We are also going to donate 40 girl sleepers, 40 boy sleepers, and 40 books for the parents to give to the siblings (if needed). This is going to be a huge undertaking, and I’m looking forward to organizing it again this year! I’m starting things early that way there is plenty of time to organize the creation of all bags, and make sure things fall into place.
Last year, tons of people reached out to me and asked what they could do for Kenley’s birthday. I chose to have people take photos of her name and send them to me. I then printed them out and have them in a collage in my home. It was so healing to see her name written in all kinds of places, in all kinds of ways.
This year, I’m asking for people to donate to her care packages.
I’ve made an Amazon wish list as well if people would rather purchase items instead of donating money to the *gofundme account we made for donations.
I’m planning to post this information in a separate page at the top of my blog so it’s accessible all the time and you won’t have to go fishing through old posts to find the information. It’s extremely hard for us to “shop” for things that will go to grieving parents, but I don’t know anyone better to help other grieving parents than another grieving parent. It broke my heart to add all of these sleepers to the wish list knowing that they will be given to babies who didn’t get to spend time with their parents how they should. I wish that they could be worn while the child is laying in their parents arms, staring into their eyes full of joy and a future, instead of the parents staring at all they lost in their child.
I hope that you will consider taking a peek at the Amazon wish list to see what we plan to donate! (Please view the entire list as Amazon makes it impossible to set default priority settings, or simply sort by priority)
Please feel free to reach out to me if you would like to donate something than what is on the list, or have any questions what so ever! Any help or donation is appreciated SO very much!
**ALL DONATIONS WILL GO TOWARD CARE PACKAGES.**
Some days there are no words that come to my head when I think about describing how sad I am without my middle child.
There have been conversations lately that revolve around my newest child and make no mention of Kenley. I want my life with Alden to move forward; I don’t want to live one second without her sweet face in my life. I just want people to remember Kenley, too.
I often wonder if people think about her as much as I do? Do certain things that they do, or things that happen to them remind them of her? Are certain situations reminders of the sweet baby girl we lost?
Do they wonder what she would look like now, or what she would be doing?
Do they wake up each morning with her near the front of their minds like they did for so long?
I doubt it.
And I cannot blame them- life continues to move forward and my life in the “after” includes Alden. It IS Alden. It’s incredibly hard to explain, and this is a very random post so don’t try to make heads or tails of it- I just needed to put this down somewhere.
The 4th was rough. Alden enjoyed the parade and I found myself getting choked up quite frequently. I mentioned to Shane that I was getting upset and he comforted me. He is amazing and I am so thankful for him. I ended up leaving him there with Alden so I could step away and break down.
It was too much.
I was brought to tears by a fucking parade.
All because my daughter is dead.
It is not fair that everything is so hard for a parent who has lost a child.
It’s so unfair.
This Holiday sucks for a lot of my loss mom friends.
For me, I have a very strong dislike as well. It makes me so mad that loss has stolen this holiday from me as well. I LOVED the 4th before. It was my favorite holiday for reasons unknown; It just was.
I remember being 4 months pregnant with Kenley in July 2015 and going to the lake to watch fireworks with Shane’s family. My sister in law gave me Kenley’s first gift- a 6 month outfit for next July 4th. It was adorable. SO CUTE. and I just had all these visions of her wearing this outfit, and sitting up, eating little puffs while sitting on a blanket under a tree with me.
But, that never happened. She never even got to see this outfit, or fireworks.
After she died, this outfit hung in her closet, mocking me. Just staring at me, trying to convince me that I’m a bad mom and Kenley’s death was my fault. I know that sounds crazy, but these are the things people don’t talk about. Shit like that ACTUALLY happens.
This year, it’s still there. Alden can fit into 6 month clothes- they’re a little big but they fit.
The Fourth of July outfit is 6 month.
I looked at it.
I took it off the hanger and washed it.
I just hung it back up in the closet- on Alden’s side.
Alden will be wearing it this holiday- in honor of Kenley.
Most days (now) I wake up and feel like I’ve lived a really bad dream for the past (almost) 18 months. It just doesn’t seem like this can be MY life. This type of stuff happens to other people, not to me. Not to my family; we had already faced so much when we found out Kenley died. How could we be dealt this hand, too? Why me? Why Shane? Why Landon? But most of all, why Kenley? My sweet girl. My innocent little baby…what did she do to deserve this?
I often think of her, and what she would be doing these days. I find myself looking at her photo while feeding Alden. Staring at her, staring at both of them, hoping to see a similarity that I can cling to in my living child’s face. I usually come up empty handed. Alden is her own person, and I know that, but I wish I could see Kenley in her.
People have asked me if I’ve called Alden by Kenley’s name. I haven’t yet, but it is only because I consciously tell myself that it is not her name. Every time I speak Alden’s name, Kenley’s name comes to my lips first. Always. I’m pretty sure this is normal, and I’m also sure it will be a life long battle in some capacity.
I know that as Alden becomes her own person I will be able to separate them more. I only knew Kenley inside of me, and outside, even though she had passed away, for a few hours. I won’t ever really know her, because I already know all there is to know about her. I know the foods she liked, and the music she liked.
She loved Mexican food, and Ceasar Salad from Panera Bread.
She loved Christmas music.
But, I will never know her favorite color, or if she would have been tall like me. What color eyes would she have had at Landon’s age? These are things I will always have to wonder about. I will get to see Alden become her own person, and every single day I am so thankful for that, but you know what? It still stings. I am not ok. I am not “better” because she is here; I am different, sure, but not better. My life will never be “better”- I’ve lost a child and that is something you cannot replace.
Alden does not take Kenley’s place in my life or in our family.
I read a quote the other day that said “I think hell is something you carry around with you, not somewhere you go”.
This rings so true with me. No matter the happiness I feel, no matter the joy and light that Alden brings to me, or the length of time that passes since Kenley’s birth, the scars of going through the deepest darkest hell are still going to be there. I will be carrying the aftermath, my new life, the “hell”, with me forever.
This is my life, forever. Nothing can ever change that. Nothing can bring Kenley back, so this is it.
I am the parent of a dead child.
Lately I’ve been trying to figure out how to strike a balance between my every day stressors, my grief, and my two living children. It’s not easy, and I’m really afraid that I’m doing a shitty job. There are days that I just literally cannot do anything except exist and I feel that is extremely hard. Then, there are days where I feel good- positive almost. It never fails that those days where the positivity starts to creep in always end in disaster. I will feel ok then something will happen in the afternoon that makes me derail and feel like shit. I can handle the fact that Kenley died; I’ve almost come to accept the fact in a way…but add in the every day crap and it just sends me over the edge.
I’m trying to figure out how to balance all of that. I know that I will never wake up and feel “normal” and I really don’t want to feel that way. I feel like normal is a relative word and I’m discovering what my “new” normal is every day.
I had a follow up MFM appointment on Thursday. They gave me a postpartum depression questionnaire thing to fill out. When my Dr came in she said ” So your depression scale was really high” (no shit) so we decided to add in an anti-anxiety medication on top of my anti-depressant. I know that I need this medication to get my shit under control. Then we talked about a few other things like when I would be able to get pregnant again if we decided to do so, testing to see if I have a blood clotting disorder that will require lifetime medication, and was given a full exam.
- Not allowed to transfer an embryo for at least a year if we decide to have more children.
- Went to the lab to have blood drawn
- Full exams suck
The next day the doctor called and told me that my Protein S levels were in normal range which means that it was artificially lowered in pregnancy BY pregnancy…This means that Kenley did not die from my blood clotting disorder because I don’t technically have one. I am NOT ok with this answer, so I am seeking out a hematologist to discuss things further. It does not make sense that my levels were so extremely low during pregnancy and I took blood thinners and bam, Alden’s here alive and healthy and Kenley died. I’m just confused on it all so I will leave this open ended and post more about it when I know more/have more time.
Yesterday should have been a good friends Daughters 1st Birthday. She was taken too soon, just like all of our babies. I went to Starbucks and said my name was Meredith so they would write it on my cup, and I paid for the two cars behind me in honor of Meredith on her birthday. (Also- side note- had a cake pop for the first time…omfg. so good.)
My planner is full of names of babies who are gone too soon, and I hate it. It makes me so sad. These poor babies should be here with their parents, it’s just unfair.
Alden is nearly rolling from front to back already. It’s insane! She has almost done it three times now, and I give her a few days before she masters it. She’s such a good baby, I’m so thankful that she isn’t colicky like her brother because I would not be able to handle it.
I need to get my hair done, Landon needs a hair cut, and so does Shane. It’s insane. We all look homeless.
The paving company came last Monday to fill in the sides of our driveway with dirt, and no one told me they were coming. I was in my robe at 8am and my door bell rang. I thought it was UPS and didn’t answer it, then I hear the sounds of dump trucks backing up. When I looked outside there were tons of machines and men working. WTAF? Why didn’t anyone tell me they were coming????? I walked out and told them, hey sorry I didn’t move the truck, no one gave me a date or time for the work to start so you’re going to have to work around it. This week they should come to seal the drive way (per the man doing the work last week…) so we’ll see what happens. They didn’t tamp the dirt down, so when it rained yesterday the dirt ran into my yard. Shane took pics and sent them to the company because that shouldn’t happen, and quite frankly this company has been shit-tacular at best in doing the jobs the way they should.
I can’t wait until it’s all done, and we can not have to worry about them anymore. I will be hiring other people to seal the driveway in the following years.
When it’s all done, were buying Landon a basketball hoop for the driveway. Then, we will be getting mulch, and flowers for the front of the house. I can’t wait to get my daffodils planted around all the trees and get the house looking nice again for spring time. I’m pretty sure that Kenley’s tree is dead; it’s pretty “crisp” and hasn’t had any new buds this spring sooooo……I guess I’ll give it another year.
Yesterday, Kenley should have been 16 months old.
Ouch. My heart.
Alden woke up at 6 this morning to eat. I felt pretty good after feeding her, so I put her back to sleep (read: laid her down cus she was passed the heck out anyway), and I went to make coffee. I looked out the kitchen window and noticed it look so calm outside. I grabbed a cup of coffee and decided to walk out on the back deck, something that I never do in the mornings.
I walked outside. It was so calm, and so still. I couldn’t hear a car, I couldn’t hear anything other than birds quietly chirping as if they were just waking up. I stood there, warm coffee in hand thinking of Kenley; Of how quiet the morning was…of how quiet her birth was. It was a beautiful and heartbreaking moment as the sun slowly started to rise.
Then, I noticed something out of the corner of my eye.
It was a fox…
and it was walking across my back yard.
I cannot tell you if I have ever seen a fox in “nature” before, but for some reason this morning there was a beautiful one trotting across my back yard at 6:30 a.m. It walked from the field, to my yard, to the side of my yard, then down our tree line back to the field. When it reached the fence of my yard, it stopped for 2-3 seconds and stared at me.
I burst into tears.
I’m not sure I’ve ever felt more at peace in my life…
We had our second to last NST this morning at 10:30. Before we left the house, I used my doppler to check her heart beat; I cannot be surprised in the worst way ever again in my life. She sounded great, and I was able to get it right away.
The nurse was able to find her heart beat immediately, too, so that made me feel really good. Her NST was going really well, when all of a sudden she got this really weird deceleration for 5-7 seconds. Shane and I both heard it and looked at each other. Her heart rate went from 140s down to 100 and stayed low. We were both like ummm what the hell is happening? After those few seconds, it went back to normal, and everything sounded perfect for the rest of the NST. I asked the nurse about it and she wasn’t concerned.
We then met with our MFM and I asked her about it. She said that they don’t get concerned unless it’s a deceleration over 15 seconds. She reassured me that everything looked amazing, and that she is consistently doing fantastic on the NSTs. We talked a little and I asked some questions. She also gave me her cell phone number which I thought was pretty sweet and amazing of her. She did tell me that if I went to L&D this weekend and ended up delivering, that she wouldn’t be the one to deliver me. I told her I would try to keep the crazy at bay this weekend to avoid L&D, because I really really want her to deliver Alden. It’s been a long freakin road, and we’re all ready. She said “I know you’re nervous, but I’m really excited for Wednesday- we finally get to meet her”. I am so thankful for her; she will never know how much her care has meant to me during this pregnancy.
Today is Shane’s Monday…so needless to say the next 5 days when he is at work will be incredibly difficult and taxing on me while I’m here alone. If you’ve been wanting to text me, or email me to catch up, this weekend is the time to do so! LOL Help keep me occupied! I’ve got a few things on a list that I would like to accomplish, so I’m hoping to work through those things.
Preparing for this c-section is bringing back so many memories about Kenley’s c-section. I need to pack my bag, and the baby’s bag…I remember doing this for K. We need to get the camera all charged up, and I remember doing this for Kenley…the only video I have on my camera of me carrying Kenley is right before we left for the hospital and she had already died. I can’t even stand thinking about that. I will never be able to watch that video, ever.
Just so many emotions and feelings are flooding into my brain these past few days. I’m trying to separate them, but it’s proving pretty difficult. I did manage to sit down and figure out that Kenley actually died 8 days before her scheduled c-section (here I was thinking it was 6 days before, which would be today). It wasn’t a “good” realization per se but I felt kind of glad that that day came and went and I was worried about today, when actually today is just another day.
Currently, Alden has the hiccups.
Six days left.
I’m pretty sure that the last two weeks of this pregnancy are going to just drive me absolutely up the wall crazy. Since last Wednesday when I posted last, I have gone off the deep end it feels.
Thursday we had our NST, and it was CAKE…like nothing has ever gone so smooth in my life kind of cake. We walked in, I peed in a cup- all was good, I lost two lbs, blood pressure was like ridiculously perfect, and Alden was kicking the NST’s ass. We were in and out within what felt like 30 minutes. After, we went to Panera bread and enjoyed a nice relaxing lunch. I love Thursdays with Shane because we always get lunch together and it’s just so relaxing to be with him.
So, fast forward to Friday. Landon is in school, and my mom came to visit for the weekend. Everything is going well, but just somewhere in the back of my mind I feel super uneasy. I think the closer it is getting to d-day, the worse I’m feeling. Saturday I convinced myself that she wasn’t moving “right”, or that her pattern was different. Of course this caused me to spiral and push on her a bunch to see if she would move (which she did). I would get so close to saying I had to go into L&D, then she would move enough for me to feel confident in her being alive.
Saturday night however was a different story. She didn’t move while I laid in bed with Shane watching tv. She didn’t move when I rolled on my back, or my other side. In the tiny little rational part of my brain I have left I’m thinking, ok…she is sleeping so much right now, everything is fine. It’s constantly overshadowed by the giant irrational (read: totally legit) part of my brain that says OMG. IT’S BEEN FOREVER SINCE YOU FELT HER MOVE. GET UP. GO TO LABOR AND DELIVERY. GO NOW. WHO CARES IF YOU CAN HEAR HER HEART BEAT ON YOUR DOPPLER. THAT’S NOT GOOD ENOUGH.
Saturday night I slept like SHIT. I was up 4 times to pee, and one of those times I was woken up by a contraction that hurt like hell.
Oh and at 4:45 am that “legit” part of my brain made me use my doppler to hear her heart beat.
FOUR. FOURTY. FIVE. AM.
Tomorrow it will be 16 days until she’s here. Kenley died a week before her scheduled c-section date. I cannot stop thinking about how were coming up on that date. Sure, this is a different pregnancy, and things are different this time yada yada yada, but honestly? Things are so much worse this time. Before, I was excited. I wanted to let her cook in there as long as she could! I asked for a c-section at 38 weeks and was told no. If my doctors would have agreed, she would be here. They had no reason to not agree.
This time, my MFM is willing to take her at 37 weeks, and I’m pretty sure I’m going to beg her to take her at 36, or 36.3 I don’t know, just something. She needs to come out while I know she’s alive. I didn’t know that Kenley wasn’t alive. It was so unfair, and cruel. I want to be able to say that this isn’t driving me insane, or that I’m handling it super well, but the truth is I’m not.
My anxiety is overwhelming. My fear of losing this child has become to much. I am excited for Alden to come…but what if she doesn’t get to come home with us? What would I do? People are taking time off of work for her arrival- just like with Kenley- and what happens if she doesn’t survive. It’s all too much.
Tomorrow we have an NST followed by a Growth Ultrasound and an appointment with my MFM. She is so reassuring, so I know she will calm me down, but I really really hope that she considers my mental health when I ask her if we can go any earlier.
I’m sure she’ll say no and try to talk me down…but I feel like my concerns are valid and my opinion matters.
Having a baby should not be this god damn hard.
Yep. It’s a real thing, at least it should be a real word anyway.
Yesterday at our first NST of the week, Alden decided she would be a super jerk and not let the nurse find her heart beat right away. And, by right away, I mean it took THREE WHOLE MINUTES to find her heartbeat. Sure, 3 minutes doesn’t seem like a long time, but remember the standard NST testing hook up is how we found out Kenley died. That was the longest probably 10 minutes of my entire life…
So, I’m sitting there… the nurse says “ok lets have you roll toward me” (I do) still no heartbeat.
Lets have you roll on to your other side (I do) still, I hear nothing.
I’m feeling her move inside me, or so I think; I thought Kenley was moving, too, but I was horribly mistaken.
I say, “ok let me lay flat on my back for a second because sometimes when I do that she moves and brings herself pretty close to the surface and we get her heartbeat”.
I lay flat. NOTHING.
I lost it; I cried and was shaking so much we had to turn the machine down because it was so loud. I’m sorry, but there is only so much you can handle! I had reached my limit about 20 seconds after we couldn’t find her heartbeat in the beginning so the nurse is lucky I held out as long as I did.
Finally, we got it. It was faint and sounded super distant. I don’t know what she was doing in there (besides stressing me the hell out) but she just kept her distance. We were finally able to get a good trace on her, and she passed with flying colors, as per usual.
After the nurse left to let my MFM read the strip, I lost it again. Shane could tell I wasn’t holding it together very well, and I could tell he was a little stressed out too. He swears he heard her faintly in the beginning, and that the Nurse was never worried…well, I sure as hell was (and I know he’s lying and was scared half to death too…)
So the rest of the appointment I was scared. I wanted to just cry to my MFM and beg her to take Alden now. Please god just take her while we know she’s still alive. I know that she will be fine on the outside. What if my body kills her again between now and the time she’s supposed to come? Kenley died 7 days before her scheduled c-section date, so what am I supposed to do around that time with Alden? I’m pretty sure I’ll either be at an NST, in Labor and Delivery getting monitored, or I’ll be sitting here with my doppler on my stomach listening to her heartbeat all night.
I talked with my MFM, and told her I had been having some Braxton Hicks contractions, and that they pretty much happen every time I stand up. I sit down, and they eventually go away after a few seconds. I drink tons of water, so I know I’m not dehydrated. She told me that if they increased, or the pain intensified that I should head to L&D. She didn’t seem too worried about them, but I go for another NST on Thursday and so far today they have been happening again so I will mention it to her.
She told me that she had put her cell phone number in my chart so that if I end up at labor and delivery in the middle of the night they know to call her for delivery- That kind of freaked me out I won’t lie! We also discussed that I need to stop Lovenox 12 hours before I deliver because if I don’t, they won’t give me a spinal due to bleeding risks, and I’ll have to be put under. I would just lose my mind if I had to be asleep for her birth! Not cool!
I have been trying my hardest to not let my mind get the best of me, but the NST just pushed me over the edge. I don’t know how I’m going to get through the next 20-something days. I really don’t know.
On a happy, less neurotic, note- Alden now has a light fixture for her bedroom!