SAHM after loss

When I found out I was pregnant with Landon, I thought I would have him without issue, stay home for 6 weeks, then go back to work. Wrong. The minute I laid eyes on him I knew that I didn’t want to return to work. It just so happened that Shane makes good enough money that this was an option for us. We would have to sacrifice some extra spending but it was so worth it. Raising Landon was the hardest (and still is the hardest) thing I had been through. He was difficult, didn’t sleep, had colic and acid reflux and on top of all of those things was my first child so I was super anxious. Fast forward 7 years and he’s still the hardest kid I have!

Being a stay at home Mom is very rewarding, and on the other hand it is the worst thing in the world some days. I am a very social person, and I crave interaction with other adults so at first immediately after Landon I struggled SO BAD with this. I was lonely, I felt like it was just me and Landon all day every day. We had no family to visit, I didn’t have a job, and I was in a town where I had about 4 friends (all of whom worked at the job I no longer had). It was rough. I remember feeling sad a lot. Shane worked really weird hours, and it left me alone with Landon a lot. I took on the morning routines, and the night routines and pretty much everything, honestly.

When I found out I was pregnant with Kenley, I was scared to take my SAHMing to another level with two kids. Landon was 4 (almost 5) and would be starting Kindergarten that fall, so I was nervous about preparing him for that while having a newborn. It’s funny the things I used to worry about…So when Kenley died, I was stuck at home, again, without a baby, and with a child who just witnessed his Mother and Father go through the worst thing in the whole entire world. I was left to handle my grief and help this poor  4 year old navigate his own grief. How are you supposed to help someone handle and understand their grief when you literally are barely able to wake up every morning and DO NOT understand it yourself?

I tried. I tried really, really hard. I would listen to Landon, and let him cry, and ask questions, and say all of these things that would cut me like a fucking knife. It hurt. It hurt my heart every single day (still does) to watch him process the death of his sister. He is still processing it. He talks about her, he draws pictures of her, looks at her picture, includes her in conversation, but sometimes I wonder if he really considers her a person, or just a dream. I’m not sure.

When we had Alden, I was nervous again. Now, I had my living child who was plagued with grief from losing his first sister, and I had MY grief from losing her, and then we had a newborn. I was scared that things wouldn’t flow properly and that I would resent her for taking Kenley’s “space” (nursery). I really felt a lot of emotions about having her. Some good…some bad…some scary.  When she came, I couldn’t have loved her anymore. It took me a while to really feel connected with her, I won’t lie. I loved her so much, but it was different. Once we settled in, and things become routine, my love for her just exploded and now I cannot imagine living without her. It does hurt to know that Kenley should be here, and be older than her, but at the same time it’s so hard to think that way because Alden wouldn’t be here if Kenley was here. I hate even allowing my brain to think that way. It’s not fair. It shouldn’t be one or the other– it should be BOTH. Or better yet, ALL.

Alden and Landon’s interactions make my heart burst. It is so amazing to see Landon be a brother to her. He is amazing, and loves her so much. He loves Alden fiercely; I can see the protection in his eyes when he is with her. And he also loves Kenley, albeit differently. That makes my Momma heart proud. Having two children at home was different. Having all things compounded with grief, and fatigue was super hard. But, Landon went to first grade and Alden watched him get on the bus every day. When she could talk, she would scream “bubby” as he left in the mornings. She is a PERFECT baby. She sleeps so well, she is so fun, she entertains herself when needed, and she is my little bestie.

When we found out we were expecting Rowan it was SO different. We were done after Alden. We weren’t expecting to have another baby let alone so quickly after Alden arrived. Alden was barely 4 months old when I found out I was expecting Rowan. Cue fear. I was done being stressed out and worried but now I had no choice but to go through it all again. Once Rowan arrived it was the same course of emotions I experienced with Alden; fear, fatigue, and tons of grief and guilt. I didn’t feel connected to her just like with Alden, and I feared it was far worse that with Alden because she was a “surprise” (for lack of better words). As we all fell back into a routine, now with 3 living children at home, my feelings towards Rowan changed. Now, once again, I couldn’t imagine my life without her. She is growing into this little person and it’s so much fun to witness.

Having 2 under 2 is rough. SUPER ROUGH. I’m tired, I’m always covered in puke, or food. I pee with the door open, and as fast as I can because undoubtedly someone will cry, or Alden will come running into the bathroom with cold (sometimes wet?) hands and smack my legs while I sit there. SAH momming is NOT pretty. I don’t wear makeup, I don’t change out of my pjs usually.  I never have a second to sit down and just breathe. I found the time to write this today because the girls are napping and I made Landon go do something and give me space. Not because I don’t love him and want to be around him, but because I am a person too, and I deserve a free second. I work extremely hard every second of every day and I need “me” time. Having the babies is a lot of work. I am always changing a diaper or feeding someone it feels like (and that person being fed is never me!) . Landon is home for the summer, and in ways it’s super helpful but in some other ways it’s so much worse because he needs attention on top of the girls, and trying to find time to include him is kind of impossible.

I explain to him that the girls NEED me, he is able to take care of himself, and that I need him to help me out, but I know that he feels left out a lot. It’s hard. It makes my heart feel guilty. The days when I have a bad day (emotionally) are the worst. Everything seems 1000x harder, and I feel like I snap and yell a lot. It’s a work in progress, this life with 3 living kids. I’m trying the best I can, but I cannot help but feel like I lose myself a lot.

I am a Mother of 4 children, and a lot of times that is all that people see. Heck, they technically only see me being a Mother to 3 children, and they miss this HUGE part of my life. I feel like my life is an Onion; I have a trillion layers and some of them will make you cry. Finding time to include Kenley, and remember her is super difficult with 3 living kids, too. I feel guilt over not being able to spend time with her daily. I see that she is showing me she is with us in certain ways though. For example, I always tend to look at the clock on the “32” minute of whatever hour it is. It’s weird! She was born at 10:32 pm and I don’t know why it happens, but it just does. And if it’s just a completely random thing that happens, fine, but I NEED to think it’s a sign because it makes me feel close to her.

Being a mom is rough. Being a stay at home mom is rough. Being a stay at home mom, to 4 kids one of whom died before you got to know her is sad and rough.

But, somehow, it’s also the greatest thing I’ve ever done and I am proud of myself that I am able to hold my shit together to raise these little loves we created.

I can only dream about having them all here…

Someday we will all be together again. I look forward to that day–whenever and wherever it may be.

Care Packages.

After Kenley died I knew that I wanted to do something in her honor for the Hospital where she was born. I didn’t know what; nothing felt right to be honest. We ended up donating 2 large photos and they are placed in the room where she was born- 3E11-, and the room next door. I didn’t think that was enough, and still didn’t feel right. What could I do to make her name mean something to other people?

Care packages. 

I was given a book and a rubber bracelet when Kenley was born still. I wear the bracelet every single day, as does Shane. I haven’t taken it off once since I put it on; I had it on the day Alden was born. I thought for a while about what would be good to put in the bags. I came up with a list of items that I knew would have really helped me had I received them at the time of her death.

  • good quality tissues (my nose was bloody & raw from the hospitals)
  • relaxing lotion
  • a candle to light in honor of your baby
  • two books that helped me in my early grief
  • a note pad and pen to jot down information
  • chapstick
  • forget me not seeds to plant in honor of your baby

Last year, we donated 20 bags in Kenley’s name. We also donated some crocheted hats, and sleepers for the babies who are born still.

I was contacted by the Hospital and told all bags had all been used within 6 months. Twenty babies born sleeping  within 6 months in my town. How? How is this still happening? I know that it’s never NOT going to happen, at least not in my life time, but it’s just mind boggling that in 2017 babies still die. The fact that these babies don’t even get a chance is what hurts the most.

This year, in honor of Kenley, we have chosen to donate 40 bags to the Hospital system. We are also going to donate 40 girl sleepers, 40 boy sleepers, and 40 books for the parents to give to the siblings (if needed). This is going to be a huge undertaking, and I’m looking forward to organizing it again this year! I’m starting things early that way there is plenty of time to organize the creation of all bags, and make sure things fall into place.

Last year, tons of people reached out to me and asked what they could do for Kenley’s birthday. I chose to have people take photos of her name and send them to me. I then printed them out and have them in a collage in my home. It was so healing to see her name written in all kinds of places, in all kinds of ways.

This year, I’m asking for people to donate to her care packages. 

I’ve made an Amazon wish list as well if people would rather purchase items instead of donating money to the *gofundme account we made for donations.

I’m planning to post this information in a separate page at the top of my blog so it’s accessible all the time and you won’t have to go fishing through old posts to find the information. It’s extremely hard for us to “shop” for things that will go to grieving parents, but I don’t know anyone better to help other grieving parents than another grieving parent. It broke my heart to add all of these sleepers to the wish list knowing that they will be given to babies who didn’t get to spend time with their parents how they should. I wish that they could be worn while the child is laying in their parents arms, staring into their eyes full of joy and a future, instead of the parents staring at all they lost in their child.

I hope that you will consider taking a peek at the Amazon wish list to see what we plan to donate!  (Please view the entire list as Amazon makes it impossible to set default priority settings, or simply sort by priority)

You can find our gofundme page here.

Please feel free to reach out to me if you would like to donate something than what is on the list, or have any questions what so ever! Any help or donation is appreciated SO very much!

**ALL DONATIONS WILL GO TOWARD CARE PACKAGES.**

shower.

This past weekend was my baby shower for Alden. It was in my home town and was small as far as guests go. I was so anxious leading up to the shower that I literally made myself sick over it. Landon and I drove up on Saturday afternoon, and hung out for a little before the madness of Sunday. I knew that I would have a good time celebrating Alden, and being with friends and family. I think that I was just feeling more guilt over not having a shower for Kenley than I thought I actually was. It just kinda hit me hard; we didn’t have a shower for her, and we never ever would. It is what it is.

The shower was amazing, and I really really enjoyed myself. My sister and mom really made it special, and included Kenley, too. There was a small fox, and letter K behind where I was sitting on the entertainment center. I felt like she was there watching me open all these gifts for her little sister.

We received many many gifts for our sweet girl. I am so thankful that people came to shower her in love along with us. There were a few times where I felt like crying, specifically when I opened gifts that had “little sister” onesies in them. I know she’s a little sister, but it should say “littlest” sister, or something similar. She’s my THIRD child, but she will always look like my second and that is really hard to swallow.

When I got home, I showed everything to Shane. He of course loved it all. It’s so bittersweet. You want to be excited for this baby and her arrival, AND WE ARE, but we miss our first born girl. We wanted to do all these things for her, and we never will. It’s just rough. On Monday Shane had off for the holiday so he helped me get a lot of things done around here that we needed to do. We then went into the Nursery and took down all of Kenley’s decor.

Shane took her name banner down.

This was one of the hardest things to do since hearing Kenley died. 

I cried. I cried realllllllly hard. It seemed to rip my heart wide open again. I hate when this happens because I feel like it sets me back 1,000 steps. I know that’s not true, yet I can’t help thinking that. Taking down her name banner was awful. I felt like somehow taking it down was just the end of her. No more of her left in that room. But, that’s not true. Her little sister is going to be lucky enough to wear her clothes, and use her crib, and dresser. She’s getting her older sisters hand me downs and I’m thankful for this (Disclaimer: This opinion changes on the daily, so don’t hold me to these feelings).

Landon helped us do some of the stuff we needed to do, and ultimately he ended up crying. He told us he missed her and wanted her here. We comforted him, and eventually he was ok. It’s just a constant secondary loss. I feel like that is what our life is going to be now; life will be one constant secondary loss.

I’m just really ready for this girl to be here, screaming. I have seen a lot of the moms I follow on IG having their rainbows, and it’s just making me antsy I think.

The painters rescheduled for next Tuesday @ 8:30 am. Shane will be here, so he can go in and set them all up. I don’t think I will be able to go in there and look at the room for a while. I don’t know, maybe I’ll surprise myself but I highly doubt it. Sometimes I feel like I “power through” because it’s all I know how to do. I don’t want to sit and be sad, and cry over this.

I’m so sick of crying all. the. god. damn. time. 

I cry when I’m sad. I cry when I’m happy. I cry because I don’t want to throw away the December part of the calendar because it has Kenely’s first birthday with a heart around it.  I cry when Alden moves, because I can’t remember how it felt to feel Kenley move. I cry because Landon misses her, and Shane misses her. It’s just so unfair.

 

 

the first year without you.

It finally came…Kenley’s first birthday.

The days that followed Halloween were brutal. It was like the Holidays were taunting me. I knew where we were at each moment in time last year (How far I was at Thanksgiving/how many days until she was born etc etc…) and so going through each day up until her birthday was really rough. When we went to get our Christmas tree this year, the place we normally go closed before we could get there (Landon started Kindergarten so we didn’t have enough time to get there after he got off school). We had to go to a new place; It was nice, but far less exciting than our normal place.

It felt good to do something different than we had the year before, though– the year when Kenley was safely tucked inside of me, growing and thriving like she should have been. When we put up the tree, I was overcome with intense grief. I cried, and I cried hard. No, let me rephrase that, I sobbed. That deep sob, you know? The one that you have no real idea where it comes from except you know deep down that it comes from a place of pain that no human being should ever have to feel.

Having to put an ornament on my tree in memory of my daughter, instead of having her there to clumsily hang hers (read: tear down the lights/tree/decor) was extremely hard. I was transported back to the Hospital when they told me she wasn’t alive anymore. I felt THAT level of sadness. It wasn’t just that she wasn’t here anymore, it was also the fact that she would NEVER be here. Maybe a realization occurred? I’m not sure.

She will never be able to hang an ornament, instead, for the rest of my life, I will be hanging her memorial ornaments. Do I buy a new one each year? Do I only hang the one that I bought specifically for her? How does a mother handle Christmas decorations when one of her children is no longer with her? There isn’t a guide for how to handle these types of things.

I avoided Christmas music VERY well this year; I think I listened to it maybe 2 times? I’m pretty happy about that, to be honest. I started listening to Christmas music the day after Halloween in 2015 and soon found out that Kenley loved it. She would dance around while it played. Avoidance was my only coping mechanism re: xmas music this year.

Every Christmas Eve, we go to Shane’s family’s get together. We went last year, and I was about to burst- 38 weeks exactly. It was SUCH a great day. I remember people giving us gifts for Kenley, telling me they were so excited for her to get here, asking how I was feeling/how things were going/next doctors appt/squeeing that her C-section date was literally a week away.  A week. Like…ouch. It still stings so deep when I think of that. It stings extra bad when I remember that I asked to have a c-section at 38 weeks 1 day- the day after Christmas- and my doctors told me no. It stings really badly when I remember that the day after Christmas last year I called my obgyn and told them I was having contractions that were able to be timed pretty close together, but the OB thought I “sounded ok”, and advised me that she didn’t think I needed to be seen, but if it made me feel better that I could go.

What kind of bullshit doctor says that? “You sound ok”. Oh good, I’m glad you can register what is happening inside my uterus by the tone of my voice. And for someone to pretty much patronize me by saying “if it makes you feel better, you can go in”, is just something that I will never EVER be able to live down. I hope that this Doctor feels extreme regret for not telling me to go to L&D that night, because who knows what could have been done…

Anyway, this year I didn’t want to go to the annual Christmas Eve get together…but I went for my Landon. I know he needed things to feel as normal as possible. When we got there, I lost it. People hugged us, and I just couldn’t handle it. It was like everything from last year just washed over me. All in all it ended up being a decent night, and I am thankful we went. Landon had an incredible time, and that is what really counts.

Christmas morning wasn’t too bad for me either. I’m not sure why…Maybe it’s because Landon’s joy just overshadowed my sorrow. Seeing him smile is the greatest gift to me, and hearing how excited he was about all of the gifts that Santa got him really really made me genuinely happy. And also, maybe I was actively blocking my feelings out; not thinking that I should have two children on Christmas morning. I should have a little girl crawling all over and being amazing. I’m pretty sure it was 50/50 (ok …70/30).

As the days ticked down to her birthday, I could feel my anxiety ramping up. The plan was to have immediate family over, have lunch, a cake, and a balloon release. I had been talking with Shane for a few weeks about what he wanted to do to “celebrate” (side note- I hate this term. I hate it so much. I’m not celebrating her birthday, for fucks sake, she’s not here. I’m mourning her, and all the things I lost when she died) her day. He’s pretty easy going so he ultimately said “whatever you wanna do”, which I sometimes hate. So, the day before he admits to me that he was surprised I wanted to have people over, and thought it would be nice to just have him, myself and Landon together on the day.

Ugh.

I told him that he needs to tell me these things when I’m asking him for a few weeks at a time. It was too late to cancel everything, and we ended up going forward with my plans. At the end of the night when everyone left, he hugged me tight, told me he was so happy we went through with it and that he had a really nice day. I’m so thankful that I can trust my gut sometimes, and strong arm him into things that I know are ultimately better for us.

We had a christmas gift exchange with my Dad and Sister before everyone showed up at 2 for the “party”. I wasn’t sure that I wanted to do this, as it felt like it was taking away from her, but ultimately I’m glad we did. Then, around 2, Shane’s family showed up. We all just kind of hung out for a little bit, then had lunch. We ate, and decided that we would do the balloon release. Everyone wrote or drew on their balloons (only popped 2!) and then we made our way outside. It was extremely windy, but so clear. Landon counted to 3, and we all let them go. It felt good to watch them float away. I kept my message short and simple. She knows how much I love her, so my balloon was just a small reminder of that.



After, we came inside, and had cake and ice cream. My sister brought a flower arrangement that is so beautiful and reminds me of Kenley in so many ways. My mom bought her a gift which I love. It’s a stuffed fox with a tutu on it, and I plan to keep it in her memory box. A wonderful friend sent over birthday balloons.


After all the commotion was done, we just hung out and talked for a bit. Slowly people started to leave one by one.

All throughout the day I was getting texts from people all over letting me know that she was on their minds, and that she was missed. I woke up to a specific Instagram tag from a woman who lost her son last year about a week or two before we lost Kenley. I don’t know what specifically about her words struck a chord with me, but it sort of set my tone for the day. I think it was what I was meant to see on the morning of her first birthday.


The love and support from everyone really made the day better- not easier by any means- just better.

I missed her more than I could ever explain to anyone, yet, I was so thankful there were so many people thinking of her and our family. Knowing she was and is so loved on her birthday, even after all this time, made my heart heal a little, I think.

I want to thank every single person who got in contact with me somehow yesterday. Your love and support means the world to us, and I believe it is what helped us through yesterday with a little less pain than I expected.

Our lives will never be the same, and I wouldn’t ever want them to be. If they were, I wouldn’t know my sweet girl’s face. I wouldn’t have ever known her hair color, or how her lips looked just like her brothers. I wouldn’t trade her for the world.

I am her Mother; she chose me to be that for her. It’s all that I can do to love her like she deserves, and honor her memory like she deserves.

I love you my sweet girl. Happy First Birthday.

I will hold space in my heart for you until I can hold you in my arms again.

 

 

 

 

grief is love with no place to go.

I’ve been wanting to adopt a family for Christmas, but with all this grief and stress I have going on time has slipped away from me. Today was the last day to actually take the gifts to the office, and I didn’t even get a chance to pick a family. ugh. I really really wanted to do this.

15 sleeps until Christmas.

19 sleeps until Kenley’s first birthday.

Landon is with my family this weekend. My Mom and Stepdad are taking him to the grinch musical, and to dave and busters to eat. He’s going to have one hell of a weekend. I’m so thankful that they do fun stuff with him, but I miss him terribly.

I spent the night shopping for preemie and newborn sleepers online to buy and donate to the hospital. My goal, once again, is to have them up to the hospital by Kenley’s first birthday.

•• If you feel you would like to purchase a sleeper and send it to me for donation, let me know. The more we donate, the more loss parents we can help. ••

Tonight I was able to purchase 4 preemie sleepers, and 6 newborn sleepers. I’m sure that I will buy a few more tonight as I browse the internet for great deals.

Once again, grief is love with no place to go.

I have all this love for my daughter who should be here. Who should be crawling around causing chaos. Who should be giving me wet kisses. But, it has no place to go. So, helping people makes my heart feel better…and that’s all I can really ask for.

Just another shout out to my amazing husband for supporting me and all the things I need to do to make my heart feel better. I love you. I love you. I love you. You will never know how much.

 

First Birthday Request.

 

Kenley’s first birthday -December 29th- is just a few weeks away. I can’t believe I should have a child in my arms who would be possibly walking, jabbering, or causing chaos in our lives every day. I can’t believe that she isn’t here. It breaks my heart every day that I wake up and I’m alive, and she is not.

For Kenley’s first birthday, I’m asking for help from anyone who reads this, follows me on IG, or knows me any other way.

I’m asking you to write my daughters name. Write her name, anyway you would like to, and send me a picture. I want to take all of the photos that we receive and make a collage to put in my bedroom so I can make a wall dedicated to her. 

I’ve had a few people send me photos already, and I love them! Be as creative as you want, I welcome the diversity of the photos! If you send them, please include who you are and how you know us. I’m assuming I will know most people, but I guess you never know.

If you want to participate in this, I have set up a specific e-mail account for photos to be sent to, you can DM it to me on IG, or you can text them to me if you know my number- I’m fine with whatever.

My goal is to have all of the photos by the middle of December so I can have her collage done by her first birthday party.

Here is the e-mail address for photos:

KenleyPhotos@Gmail.com

I look forward to all the pictures! I can’t wait to see how this turns out for our sweet girl! Thank you in advance for helping with this project, and for loving our Kenley so fiercely throughout this past year. Let me know if you have any questions about this, and I will gladly answer! ❤

need help!

 

I’m going to put this out there, and maybe someone will stumble across it and have advice.

I’m planning on making (at minimum currently) 20 care packages of the hospital where we had Kenley. I am planning to include a bunch of things, but the one thing I’m struggling with is a candle. I would like to include a glass votive candle, or something bigger (depending on price) with a healing quote, or something about the candle being a memorial candle etc. I cannot find any that I like on the internet anywhere. I’m thinking of aromatherapy type scents. Nothing too over powering, and definitely nothing that would smell like anything child related.

Sooooo….I’m wondering if anyone makes candles, or knows of someone who makes them? Heck, or just someone who would like to be part of the donation and is willing to learn to make them? I would love to have something made by another loss mother, or someone who has been affected by the loss of a child in some way shape or form. Like I stated, I would be looking for 20 currently. If I cannot find a candle maker, I will probably buy them from somewhere, but would be interested in someone who could make a graphic sticker for the front of the candles, also.

Please let me know if you have any ideas, or know anyone who could help!

The goal is to have the 20 care packages done by Kenley’s first birthday…December 29th.

I’m open to suggestions as well for ideas to include with the care packages. What did you need after you lost your child? What did someone give you that really stuck with you? Is there something you didn’t think about needing but ended up REALLY needing?

• I needed tissues. The hospital tissues sucked ASS and my nose was bloody and raw from crying into them. My step-dad purchased a really nice box of soft tissues for us, and brought them the second day in the hospital. This is where the idea came from to buy puffs soft pack tissues (I bought about 40 full size packs) and I will be donating them to the maternity ward for baby loss mommas only.

• I needed chapstick. I didn’t bring any in my bag, when usually I do. I plan to include a nice chapstick in the carepack as many moms don’t plan to have this awful thing happen to them, and chapstick is the last thing on their mind…until their lips are so dry from constant crying and face wiping.

• I’m adding in a personal bottle of aromatherapy hand lotion. I know that the hospital gives you these things, but having a good quality lotion might make you feel more relaxed? I know that sounds like a joke, and honestly even saying it sounds awful because nothing can make you feel more relaxed after you just find out your baby died.

• I’m planning to include this book that I was given at the funeral home. It’s a very light read, and that is what I needed in the days after Kenley- not the gigantic book that I was given. This is such a good small book to start with.

41nfq-g5njl-_sy344_bo1204203200_

I’m also planning to include this book which has been the greatest book I have read since Kenley died. It is written by a loss mother, as well, and it just tells you what you need to hear. The version I will be donating will have Kenley’s name in the back on the memorial page.

51fqiwcvqjl-_sy497_bo1204203200_

• A pack of forget me not seeds that are specifically packaged in memory of a lost loved one.

I had also tossed around the idea of including a molding kit for hand prints. I didn’t get any hand prints from Kenley and I would have loved to have them. These are things that you just don’t think of during the absolute worst moments of your life.

I had also thought of including some sort of lara bar, or something like that, but when I thought about it, it made me want to puke a little. I remember them wheeling in this huge cart of coffee, tea, drinks and snacks after she died. It sat in front of my bed about 10 feet away from me, staring at me the entire time we were there. The nurses would come in and ask if we needed our coffee refreshed and all I could think was “my daughter just died”.

Eating was not the best memory from the hospital.

Anyway, those are my ideas. I know there are a lot of you reading who have lost your children too, so please don’t keep quiet. I’m looking for input on ANYTHING you can offer me.

 

family, weddings, and refi- Oh my!

I’m here! I swear!

I’ve been so busy this past week that I really haven’t had time to post much of anything.

On Wednesday of last week all 3 (well 4) of us made the trip up to my hometown for my little sisters wedding. We spent the next 2 days setting up, typing up loose ends, and making sure everything was perfect for her big day. Friday, we had the rehearsal, then we all hung out and ate BBQ (which was freakin delish).

Saturday morning we woke up and met everyone at the hair salon. I was one of the first ones to get my hair done that way my mom and I could go do the things that we needed to do for the wedding. When we were done with those things, we gathered up my sisters dress, our dresses, and headed to her house to wait for the other girls to get there. Once everyone was there we started getting ready. I’m pretty sure my sister has about $500 in foundation in her makeup arsenal. We had pizza, and everyone was drinking (except me and another girl) and having a good time. The videographer arrived, followed by the photographer. Soon it was time to get into our dresses, and get Cassie into hers.

Once everyone was ready, we walked outside and got some photos done in their back yard.

Then…off we went to the ceremony! Everything kind of happened really fast. Landon was the ring bearer, and did a really freakin great job. I couldn’t even believe how good he did. I kind of figured he would be nervous or something, but nope. My little boy is a social butterfly (more to come on this later lol). They were finally married and people were hanging out taking pictures and drinking beer. Around 4:30 the party bus came to pick up the bridal  party for photos and ridiculous amounts of booze for those able to drink.

We drove around and got some really fun pictures in special places. Then, we arrived back at the reception venue. We were greeted by the DJ and he explained where we were to walk, what we were to do etc. We walked in, and all met on the dance floor waiting for the newly married couple. After a few photos, and them cutting the cake (side note- they cut the cake, and ate their own pieces instead of feeding each other. I lol’ed so hard) we were seated. Then, it was time for my speech. I wrote it with the help of Shane in hopes that I could make it light hearted and I wouldn’t cry. I was pretty sure I could handle it without breaking down- wrong. Pretty much everything makes me cry these days, but just being there with her, and seeing how beautiful and happy she looked filled my heart with so much joy.

It made me miss the days where we were so little, and I hated being near her. It made me wish that I could go back and relive those times with her. Now, she’s 125 miles away at all times and I can’t see her whenever I want. It really makes me sad pretty much 24/7 because besides Shane, she is my best friend.

So anyway, I cried. Barely able to get it together to finish my story, but I managed. Then we were released to eat and I ate some of the best freakin mashed potatoes I’ve ever eaten in my lifeeeeee. I want them right now, actually. The rest of the night is kind of a blur. Lots of people dancing, lots of talking to family that I haven’t seen since Kenley died. Tons of people came up to me and told me that they read this blog and that really touched my heart so thank you guys for saying the things that you did to me. I love that Kenley is so loved by all of you.

Landon was a dancing machine. I’m going to try and upload a video so you can see it because oh my god. I don’t think I’ve ever felt more love for this kid than at the moment he was called to the dance floor by himself to dance to AC/DC TNT….and he tore that shit up. He has some real moves, I was impressed!!

 


All in all the weekend was a great success. I had such a good time, Shane had a nice time relaxing and being away from home, too. Landon found a new love in Amanda, and I’m pretty sure Cassie had an awesome time. Now for some pictures!


 

We are getting our house appraised in hopes that we can eliminate our PMI payment, combine our IVF loan (home equity loan) and our mortgage into one payment, and save close to $700 a month. We have our appraisal set for Thursday @ 2:30, and were trying to get the few things done (paint touch ups, patching a hole in the wall that shane made while chasing Landon around the house one day) before the appraiser comes. I’m kind of stressing out a little about it strictly because she is going to go into Kenley’s nursery. She is going to see that we are without a baby, and that the Nursery looks untouched. She is going to see the sign on our wall that says our baby was too beautiful for earth and her birthdate. She’s going to wonder, and probably ask.

I am not afraid to tell her about Kenley. I am not afraid to talk about her. I will talk about her, very openly. I just hope that she doesn’t panic and leave our house feeling weirded out because yeah…dead babies are not a fun topic. Whatever. I guess we will see how it goes. Send the good vibes my way…hopefully our house appraises for what we need so we can catch a fucking break.


 

While we were home we had lunch at a little Chinese place that we used to frequent when we lived there. While we were eating, my IG dinged letting me know that I had a DM. I was contacted by a woman named Lauren from Breastfeeding World asking if I would be willing to write a piece in honor of Pregnancy and Infant loss month about Kenley. I was so touched that she reached out to me, and I cannot wait for my piece to be featured on this Friday!  I will link to it on Friday when it’s posted in case anyone wants to read it. I shared some photos that I haven’t shared before, and it was really emotional for me to write. I hope someday that I can write a piece for them about the joys I will (hopefully) feel when I am able to breastfeed my Rainbow baby.


 

I have an MFM appointment on Thursday at 10:30. This will just be a check up to make sure everything is looking good. I have been feeling little miss kicking off and on more lately. I guess my MFM typically finds the heartbeat via ultrasound instead of doppler, which I am ok with, but I just hope that maybe I can talk her into letting me see her for a few seconds. I haven’t in like 5 weeks and it’s killing me.


 

And finally, Saturday was Pregnancy and Infant Loss Awareness day. My Sister had a special place for Kenley at a memorial table with a K, fox, and candle. It was very sweet, and moved me to tears. I also was sent many many texts, DMs, etc to let me know that a candle was being lit for Kenley and that she was being thought of. I wanted to show you all the candles that were lit for her, so here they are.


So there is a run down of what’s been up in my neck of the woods. I’m hoping that things are going to calm down after this week so I can get back to regular posting. I feel so much comfort when I speak about Kenley and how she impacts my life. I love that little girl so incredibly much…I missed her so bad this weekend.

I miss her every second of every day.

I will miss her for the rest of my life.

 

 

blah.

I feel very blah today. I don’t really know how to describe it other than that. I’m tired, I’ve been randomly nauseous all day, and I have a wicked headache.

I know these things are normal, but I can’t help but think about my previous pregnancy. I took a medicine for nausea with K that I didn’t take with Landon–could that have contributed to her death?  I definitely don’t want to take that medicine this time around, but if my nausea gets as bad as it was, how will I function?

I think of how tired I was with Kenley. I remember how amazing Shane was about letting me nap whenever I needed to. Now, I can’t help but think, “Well, you’re going to have all the time in the fucking world to nap while Landon is in Kindergarten, and you are all alone without your daughter”. I know it’s irrational to think like that, I do, but I can’t help but have those thoughts.

The same irrational thoughts go along with this current pregnancy, and getting congratulations about it. I don’t want congrats. In my mind I’m getting these congrats on being pregnant because a series of really fucking shitty events happened in my life that led me here. My daughter who I tried so hard for, died, without warning and stole the light from my soul. I went through (and am currently/will always be going through) the worst time of my life. I went through IVF, and paid completely out of pocket (how much is IVF, you ask? We’re looking at a cool $23,000 after this cycle is said and done). And countless invasive procedures to get where I am. Yes, I am pregnant. I am so thankful for this pregnancy, and I will love this child (if I get to keep her) with all of my heart.

It’s just hard. I think that people heard we’re pregnant again and immediately think “ok they’re done grieving”. Nope. Not anywhere near what the truth is. I am not ok with being around your baby. I do not want to see your baby bump or talk about your pregnancy. I am not okay with being around large groups of people yet. The pain of these things, is not gone just because I am pregnant. I don’t know how to explain this to people yet, or how I can make them understand this. I know that some people will never understand it; they will always think that I should “be ok” by now.

I know that people are going to expect one thing from me during this pregnancy and I’ll probably be over here doing the complete opposite, but I hope that they try to understand. If I don’t want to come to the christmas get together this year, I hope you understand. If I don’t want to buy a million gifts, and celebrate this year, I truly hope that you get it. If, on thanksgiving, I would rather be with my family at my house, alone, I hope you understand why I need that. This year of first’s is going to be the hardest, and I need people to just fucking understand it.

I think we need to take a vacation for Christmas this year. Santa can find Landon anywhere, so why not, right?

 

PIO.

I started my PIO (progesterone in oil) shots the other day, and for some reason they hurt really bad this time. After my egg retrieval my RE had me start the same shots “just incase” our embryos sucked and didn’t make it to day 5 for PGS (can you tell my  Dr has like, zero faith in my body? I don’t blame him, really) and they didn’t hurt at all! Shane was a pro then, maybe he’s just rusty. He says when he’s doing it this time there is resistance. Yeah…I know. I feel it.

I watched a few videos today of others giving themselves the shots, and I feel like I could do it but I figure we’ll give it one more shot with Shane doing it. I think tonight when he gets home, I will warm the oil by rolling it in my palms for a few minutes, and have him give me the shot while I’m laying down.

 ( * I ended up holding the vial of progesterone for a while to warm it up, which made the withdrawal so much easier. Once the syringe was filled I held it in my hand for another 5 mins and laid on my bed when Shane gave me the injection. Perfection! Didn’t even feel the shot at all *) 

For those who don’t know about PIO, it’s to support the uterine lining during the luteal phase of a FET (frozen egg transfer) or a fresh transfer.

The set up looks like this (not my photo):

needles

The one closest to the bottle is an 18g needle. It is used to draw up the medicine. The one on the right is a 22g-1.5 inch needle used to administer the injection. The shot is intramuscular.

And the shots go here:

shotsite

Um Ouch.  

If our embryo sticks, and we are indeed pregnant, we will continue this for 12 weeks. TWELVE. Every. single. night. I’m sorry – I know I should feel so pumped and excited, but it’s just not that simple anymore. I’ve lost my naivety toward the situation; I know too much.

 I know what can go wrong if your hormone levels are off, or if you start spotting. I know that you can have an ectopic pregnancy and lose a tube, or an ovary, or fucking die. I know that your cervix can “not do it’s job” and you can lose your baby at any time even when you think you’ve past the scary points. I know that, even a week before you’re scheduled to have a normal repeat C-section, you can hear the words that will shatter your world forever; “This is where her heart is, and unfortunetly there is no heartbeat”. I know that you can truly feel like you want to die for the foreseeable future because your child died inside of you when you were in the clear; your daughter died when she shouldn’t have.

Those things could happen to us again. Any of them could be a possibility and I hate that I even have to worry about it.  I know that we will be monitored so intensely, but my mind just goes back to “well, shouldn’t I have been monitored this well anyway? I am growing a human for fucks sake”. Sadly, that’s not the case. Monitoring for normal pregnancies is a joke. I had a shitty NINE MINUTE (yes, nine minutes…normal scans can range from 20 mins to an hour for some people) anatomy scan, an intake scan at a new OB that was probably 25-30 minutes long, and a scan at 36.5 weeks…and somehow, no one detected a possibly anomaly with Kenley’s cord. Maybe, just maybe, if a Biophysical Profile Ultrasound was done on me my daughter would be here. Maybe, if my doctors sent me to an MFM because of my history with Preeclampsia, they would have done one on me. I should have been sent to an MFM. I was failed by doctors. All of my doctors failed us during Kenley’s pregnancy.

There is a standard of care, and a general guideline to follow when sending your patient to an MFM…and I ticked many boxes, yet I wasn’t sent.

I will never forgive myself for not advocating harder for my Daughter.

The medical field needs to get their shit together. 26,000 stillbirths a year, and yet we just can’t figure it out?

Unacceptable.

Medicine failed my sweet girl, and it’s hard to believe that anything positive could happen for us now.