birthday

4.

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Today is your fourth birthday. I can still remember the way your skin felt under my fingers–like cool velvet. I would give anything to feel that again.

4 years ago on this day I woke up and had no clue my life would be forever changed. But, maybe I did? I naively thought that all was well, and that we would get to keep you. But, this day four years ago I found out the truth.

Nothing is guaranteed. Life is fragile.

I found out what it feels to die; to have your entire soul ripped from your chest and tossed away never to be repaired.

I found out what it felt like to lose everything you have ever known to be true about yourself, your husband, your life.

When you were born I found out what it feels like to give birth to death. I held you, the exquisite, perfect human we had created after years of infertility, as you were lifeless. You never knew life outside of me, and you never knew pain or hate or heartbreak.

When you were born still, my world shattered around me. I changed. We changed. He changed. Your brother changed. Your grandparents and great grand parents and aunts and uncles changed. You changed us; you brought us closer, even though you left us.

My sweet Kenley, I, still and always, will never know why I didn’t get to keep you. I will never know why you had to be taken from us 4 days after Christmas and 4 days before I was scheduled for a c-section. FOUR DAYS. I hold on to so much hate and anger toward my doctors for this. I asked, begged, pleaded to be taken at 38 weeks and no one listened. 38 weeks was Christmas. No one wanted to be bothered.

I bet they wish they had listened to a mother’s intuition now.

It’s like I knew in the depths of my soul that I wouldn’t be able to keep you.

I feel like such a failure; I’m an outcast and an example. I couldn’t keep you alive, in the safest place possible. What kind of Mother am I?

It has taken me years but, I know that your death was not my fault. I know that what happened was out of my control, but it still hurts.

I look at your brother and it hurts to think about the pain he has endured. The loss that he has suffered as well. How little he was when I had you…it breaks my heart into a million pieces.

I look at Alden and I don’t see any of you, but I know that she would not be here in the slightest if you were and I swear to god that’s one of the hardest feelings to wrap my head around.

I look at Rowan and I see you. I see your hair and eyes. I see your nose and mouth. I see you. I watch her grow and wonder if she looks like you. I see you in her in many many ways, and it’s heartbreaking and lovely all at the same time.

I admit that time has softened some things for me, yet some things take me right back to that day. I struggle with anxiety on the daily and I am often taken by surprise at the things that trigger me now a days.

You should be here.

We should be together. I should be holding your hand while we walk through the store. I should know how you smell, and know the color of your eyes, and the freckles on your face.

But I don’t.

And I never will.

And that’s the hardest most painful realization in the whole universe.

No matter how bad I want you back, I just cannot have you. Nothing will ever make that right.

Happy 4th birthday in the stars my beautiful first born daughter.

You are so loved every second of every day. Mommy cannot wait to hold you again some day. I love you forever.

3.

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My sweetest Kenley,

Today you are three. Except you aren’t…but you are? You are three, wherever you are. You have been missed earth-side for 3 years.

Three years have passed since you were physically here. Three whole years since I held you in my arms.

I can’t believe it.

I was planning to write this huge wonderful birthday letter but honestly? Your momma’s heart is broken into a million pieces and I have no words.

I have said it a million times and I don’t think saying it again would make it any different. It changes nothing.

I miss you. I love you. I hope you know how much your life changed mine. I hope you see how important you are in our daily life. I hope you see all the good I try to do in your name.

You are so loved.

You are so missed.

Your life meant something and it always will.

I see your absence in your sisters presence. It is heart breaking to say the least.

I love you. I love you. I fucking love you more than life itself and I hope that you know that.

I wish I knew that you knew what you mean to me.

Happy Birthday, my beautiful daughter.

Mommy loves you.

Care Packages.

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6

After Kenley died I knew that I wanted to do something in her honor for the Hospital where she was born. I didn’t know what; nothing felt right to be honest. We ended up donating 2 large photos and they are placed in the room where she was born- 3E11-, and the room next door. I didn’t think that was enough, and still didn’t feel right. What could I do to make her name mean something to other people?

Care packages. 

I was given a book and a rubber bracelet when Kenley was born still. I wear the bracelet every single day, as does Shane. I haven’t taken it off once since I put it on; I had it on the day Alden was born. I thought for a while about what would be good to put in the bags. I came up with a list of items that I knew would have really helped me had I received them at the time of her death.

  • good quality tissues (my nose was bloody & raw from the hospitals)
  • relaxing lotion
  • a candle to light in honor of your baby
  • two books that helped me in my early grief
  • a note pad and pen to jot down information
  • chapstick
  • forget me not seeds to plant in honor of your baby

Last year, we donated 20 bags in Kenley’s name. We also donated some crocheted hats, and sleepers for the babies who are born still.

I was contacted by the Hospital and told all bags had all been used within 6 months. Twenty babies born sleeping  within 6 months in my town. How? How is this still happening? I know that it’s never NOT going to happen, at least not in my life time, but it’s just mind boggling that in 2017 babies still die. The fact that these babies don’t even get a chance is what hurts the most.

This year, in honor of Kenley, we have chosen to donate 40 bags to the Hospital system. We are also going to donate 40 girl sleepers, 40 boy sleepers, and 40 books for the parents to give to the siblings (if needed). This is going to be a huge undertaking, and I’m looking forward to organizing it again this year! I’m starting things early that way there is plenty of time to organize the creation of all bags, and make sure things fall into place.

Last year, tons of people reached out to me and asked what they could do for Kenley’s birthday. I chose to have people take photos of her name and send them to me. I then printed them out and have them in a collage in my home. It was so healing to see her name written in all kinds of places, in all kinds of ways.

This year, I’m asking for people to donate to her care packages. 

I’ve made an Amazon wish list as well if people would rather purchase items instead of donating money to the *gofundme account we made for donations.

I’m planning to post this information in a separate page at the top of my blog so it’s accessible all the time and you won’t have to go fishing through old posts to find the information. It’s extremely hard for us to “shop” for things that will go to grieving parents, but I don’t know anyone better to help other grieving parents than another grieving parent. It broke my heart to add all of these sleepers to the wish list knowing that they will be given to babies who didn’t get to spend time with their parents how they should. I wish that they could be worn while the child is laying in their parents arms, staring into their eyes full of joy and a future, instead of the parents staring at all they lost in their child.

I hope that you will consider taking a peek at the Amazon wish list to see what we plan to donate!  (Please view the entire list as Amazon makes it impossible to set default priority settings, or simply sort by priority)

You can find our gofundme page here.

Please feel free to reach out to me if you would like to donate something than what is on the list, or have any questions what so ever! Any help or donation is appreciated SO very much!

**ALL DONATIONS WILL GO TOWARD CARE PACKAGES.**

six.

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Last year, on 2/7, Landon turned 5. I remember (before Kenley died) spending so much time thinking about how “stressed out” I was going to feel for his birthday party. How was I going to throw it all together when I had a newborn? How was I going to make it special for him with his new sister in the mix? I had plans to have him Paw Patrol party, and I was going to dress Kenley up as one of the dogs to surprise him. Instead, the reality of the situation was, how can I walk through party city and buy paper plates without bursting into tears (I couldn’t)? How can I function enough to make this day special to him because his sister just died and isn’t here to celebrate with us (still not sure I succeeded).

It’s stuff like this that I really kick myself for. Sure, I didn’t know that Kenley wasn’t going to survive, so technically I shouldn’t beat myself up for that. However, I should have been thinking about all the awesome ways that I would be spending Landon’s birthday with him AND his sister- not how stressed out I was going to be. How dumb and naive I was.

This year, as Landon’s birthday started to creep closer, I found myself on Amazon. What can I buy on Amazon so that I don’t have to go to the store (read: so I can avoid a panic attack/PTSD flash backs)? I found everything online. I didn’t have to go to a store, and I found that I was better able to control my anxiety here at my house vs actually walking into the store again.

*Side note*

You know, as I sit here and write these things out all I can think is “god people probably think I’m a giant loser cry baby”…

That’s totally fine.

Think whatever you want to think about grief, but, try not to judge us who are grieving the death of a child too harshly. And, I hope with all of my heart that you never ever have to grieve the way that I am.

Anyway, I am pretty happy with how everything has turned out. He’s having a minecraft party, so I was able to buy a lot of the stuff on Etsy, which was cool.

So here we are again, at a birthday milestone. Six. He is going to be six. He was turning 5 and so excited for his sister to be there, and I couldn’t even give him that. Sure I’m pregnant now and things are looking good for her to come very soon, but let’s be honest here…I’m pretty sure his little mind doesn’t understand if he will ever get a real living sibling. I can try to explain it to him over and over, but, I’m sure he won’t believe it until she’s here either.

Can’t say that I blame him.

 

 

the first year without you.

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5

It finally came…Kenley’s first birthday.

The days that followed Halloween were brutal. It was like the Holidays were taunting me. I knew where we were at each moment in time last year (How far I was at Thanksgiving/how many days until she was born etc etc…) and so going through each day up until her birthday was really rough. When we went to get our Christmas tree this year, the place we normally go closed before we could get there (Landon started Kindergarten so we didn’t have enough time to get there after he got off school). We had to go to a new place; It was nice, but far less exciting than our normal place.

It felt good to do something different than we had the year before, though– the year when Kenley was safely tucked inside of me, growing and thriving like she should have been. When we put up the tree, I was overcome with intense grief. I cried, and I cried hard. No, let me rephrase that, I sobbed. That deep sob, you know? The one that you have no real idea where it comes from except you know deep down that it comes from a place of pain that no human being should ever have to feel.

Having to put an ornament on my tree in memory of my daughter, instead of having her there to clumsily hang hers (read: tear down the lights/tree/decor) was extremely hard. I was transported back to the Hospital when they told me she wasn’t alive anymore. I felt THAT level of sadness. It wasn’t just that she wasn’t here anymore, it was also the fact that she would NEVER be here. Maybe a realization occurred? I’m not sure.

She will never be able to hang an ornament, instead, for the rest of my life, I will be hanging her memorial ornaments. Do I buy a new one each year? Do I only hang the one that I bought specifically for her? How does a mother handle Christmas decorations when one of her children is no longer with her? There isn’t a guide for how to handle these types of things.

I avoided Christmas music VERY well this year; I think I listened to it maybe 2 times? I’m pretty happy about that, to be honest. I started listening to Christmas music the day after Halloween in 2015 and soon found out that Kenley loved it. She would dance around while it played. Avoidance was my only coping mechanism re: xmas music this year.

Every Christmas Eve, we go to Shane’s family’s get together. We went last year, and I was about to burst- 38 weeks exactly. It was SUCH a great day. I remember people giving us gifts for Kenley, telling me they were so excited for her to get here, asking how I was feeling/how things were going/next doctors appt/squeeing that her C-section date was literally a week away.  A week. Like…ouch. It still stings so deep when I think of that. It stings extra bad when I remember that I asked to have a c-section at 38 weeks 1 day- the day after Christmas- and my doctors told me no. It stings really badly when I remember that the day after Christmas last year I called my obgyn and told them I was having contractions that were able to be timed pretty close together, but the OB thought I “sounded ok”, and advised me that she didn’t think I needed to be seen, but if it made me feel better that I could go.

What kind of bullshit doctor says that? “You sound ok”. Oh good, I’m glad you can register what is happening inside my uterus by the tone of my voice. And for someone to pretty much patronize me by saying “if it makes you feel better, you can go in”, is just something that I will never EVER be able to live down. I hope that this Doctor feels extreme regret for not telling me to go to L&D that night, because who knows what could have been done…

Anyway, this year I didn’t want to go to the annual Christmas Eve get together…but I went for my Landon. I know he needed things to feel as normal as possible. When we got there, I lost it. People hugged us, and I just couldn’t handle it. It was like everything from last year just washed over me. All in all it ended up being a decent night, and I am thankful we went. Landon had an incredible time, and that is what really counts.

Christmas morning wasn’t too bad for me either. I’m not sure why…Maybe it’s because Landon’s joy just overshadowed my sorrow. Seeing him smile is the greatest gift to me, and hearing how excited he was about all of the gifts that Santa got him really really made me genuinely happy. And also, maybe I was actively blocking my feelings out; not thinking that I should have two children on Christmas morning. I should have a little girl crawling all over and being amazing. I’m pretty sure it was 50/50 (ok …70/30).

As the days ticked down to her birthday, I could feel my anxiety ramping up. The plan was to have immediate family over, have lunch, a cake, and a balloon release. I had been talking with Shane for a few weeks about what he wanted to do to “celebrate” (side note- I hate this term. I hate it so much. I’m not celebrating her birthday, for fucks sake, she’s not here. I’m mourning her, and all the things I lost when she died) her day. He’s pretty easy going so he ultimately said “whatever you wanna do”, which I sometimes hate. So, the day before he admits to me that he was surprised I wanted to have people over, and thought it would be nice to just have him, myself and Landon together on the day.

Ugh.

I told him that he needs to tell me these things when I’m asking him for a few weeks at a time. It was too late to cancel everything, and we ended up going forward with my plans. At the end of the night when everyone left, he hugged me tight, told me he was so happy we went through with it and that he had a really nice day. I’m so thankful that I can trust my gut sometimes, and strong arm him into things that I know are ultimately better for us.

We had a christmas gift exchange with my Dad and Sister before everyone showed up at 2 for the “party”. I wasn’t sure that I wanted to do this, as it felt like it was taking away from her, but ultimately I’m glad we did. Then, around 2, Shane’s family showed up. We all just kind of hung out for a little bit, then had lunch. We ate, and decided that we would do the balloon release. Everyone wrote or drew on their balloons (only popped 2!) and then we made our way outside. It was extremely windy, but so clear. Landon counted to 3, and we all let them go. It felt good to watch them float away. I kept my message short and simple. She knows how much I love her, so my balloon was just a small reminder of that.



After, we came inside, and had cake and ice cream. My sister brought a flower arrangement that is so beautiful and reminds me of Kenley in so many ways. My mom bought her a gift which I love. It’s a stuffed fox with a tutu on it, and I plan to keep it in her memory box. A wonderful friend sent over birthday balloons.


After all the commotion was done, we just hung out and talked for a bit. Slowly people started to leave one by one.

All throughout the day I was getting texts from people all over letting me know that she was on their minds, and that she was missed. I woke up to a specific Instagram tag from a woman who lost her son last year about a week or two before we lost Kenley. I don’t know what specifically about her words struck a chord with me, but it sort of set my tone for the day. I think it was what I was meant to see on the morning of her first birthday.


The love and support from everyone really made the day better- not easier by any means- just better.

I missed her more than I could ever explain to anyone, yet, I was so thankful there were so many people thinking of her and our family. Knowing she was and is so loved on her birthday, even after all this time, made my heart heal a little, I think.

I want to thank every single person who got in contact with me somehow yesterday. Your love and support means the world to us, and I believe it is what helped us through yesterday with a little less pain than I expected.

Our lives will never be the same, and I wouldn’t ever want them to be. If they were, I wouldn’t know my sweet girl’s face. I wouldn’t have ever known her hair color, or how her lips looked just like her brothers. I wouldn’t trade her for the world.

I am her Mother; she chose me to be that for her. It’s all that I can do to love her like she deserves, and honor her memory like she deserves.

I love you my sweet girl. Happy First Birthday.

I will hold space in my heart for you until I can hold you in my arms again.

 

 

 

 

grief is love with no place to go.

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I’ve been wanting to adopt a family for Christmas, but with all this grief and stress I have going on time has slipped away from me. Today was the last day to actually take the gifts to the office, and I didn’t even get a chance to pick a family. ugh. I really really wanted to do this.

15 sleeps until Christmas.

19 sleeps until Kenley’s first birthday.

Landon is with my family this weekend. My Mom and Stepdad are taking him to the grinch musical, and to dave and busters to eat. He’s going to have one hell of a weekend. I’m so thankful that they do fun stuff with him, but I miss him terribly.

I spent the night shopping for preemie and newborn sleepers online to buy and donate to the hospital. My goal, once again, is to have them up to the hospital by Kenley’s first birthday.

•• If you feel you would like to purchase a sleeper and send it to me for donation, let me know. The more we donate, the more loss parents we can help. ••

Tonight I was able to purchase 4 preemie sleepers, and 6 newborn sleepers. I’m sure that I will buy a few more tonight as I browse the internet for great deals.

Once again, grief is love with no place to go.

I have all this love for my daughter who should be here. Who should be crawling around causing chaos. Who should be giving me wet kisses. But, it has no place to go. So, helping people makes my heart feel better…and that’s all I can really ask for.

Just another shout out to my amazing husband for supporting me and all the things I need to do to make my heart feel better. I love you. I love you. I love you. You will never know how much.

 

tomorrow.

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Tomorrow you should be 11 months old.

You could be walking, and jabbering. I can’t even think about what you would look like because it breaks my heart into a million pieces.

I can’t believe it’s been so long. I can’t believe I haven’t held your sweet body in such a long time. It makes me so sad. I miss you every second of every day.

Today was rough. I think the anticipation of these milestones is what gets me. Obviously the day is bad, too, but the lead up is worse.

I pulled the trigger on two piece of decor for baby A’s nursery today. After I bought the first one, I felt like I was hit by a bus. I pressed “purchase” and I literally didn’t move off the couch for 3 hours afterward. Grief, it’s a really fucked up thing.

I was happy to finally buy something, and then immediately sad and guilty for doing so. I know that those feelings are normal, but damn.

So in the spirit of making myself feel better, and maybe more excited (IDK?) here is what I bought today for her nursery. Ugh. My heart.

safavieh-lilac-shag-outdoor-area-rug-sg151-7272ptru1-23919455dt

pizza and pneumonia.

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Thanksgiving was yesterday and I’m pretty happy it is over. I won’t lie, it wasn’t as bad as I imagined it to be only because we have pneumonia and spent the day here, on the couch, eating pizza and watching tv.

I literally don’t think I could have spent the entire day at Shane’s grandmas with his entire family. I know, undoubtedly, one of them would have said something wrong to hurt us. Not on purpose, of course, but some people just don’t know what to say so they spew platitudes and well wishes. While the well wishes are great, I just don’t want to hear them. I honestly know that people would have been all “omg squee aren’t you thankful for your baby you’re carrying now!?” Um. Yes. OF COURSE. But, that does not bring back the daughter who I lost, or take away the pain and guilt of her death.

Landon went with my Mother in Law over to the family’s get together, and we just spent the day with each other coughing our lungs out. All in all, we are feeling a little bit better, if I’m being honest. I think our coughing is subsiding and Shane hasn’t had a fever in about two days. This is great because he kept waking up shivering in the middle of the night and I know he wasn’t getting any sleep trying to keep track of his medication times and what not.

He went back to work today for the first time in a week, so I hope that he isn’t too exhausted when he gets home (even though I know he will be).

So we’re in the thick of it now- the Holiday Season. I’m feeling very indifferent toward it all. On one hand I want to have the normal Christmas that we usually do especially for Landon, and because it’s my favorite holiday. I love decorating, listening to music, shopping and spending way too much money on stuff that no one needs, and being with my family…except this year, one member of MY family is gone. She got to experience my joy of Christmas inside my womb last year, and I know she loved the music. She knew how much I loved the holiday, and I know that she knew how much she was loved.

And then, 4 days after the best Christmas of my life, I had the worst day of my life.

I’m sure you can see why I’m feeling torn on how to feel about the holiday.

I’ve been trying to toss around what I want to do about a stocking for Kenley. I really wanted one for the longest time, and now that it’s here, I’m not so sure. I don’t know if I can stand to see an empty stocking, every year, with her name on it. Empty. Nothing. All the other stockings will have things in them, and her’s will be empty because she has no use for anything. She is not here; she will never be here.

I’m not sure what I’ll end up doing. I have an ornament for her, but nothing feels right. I’m sure others can relate to the “nothing feels right” thing. I don’t know if I would feel differently about the Christmas season if Kenley had died in like March or something. I don’t know. I think the fact that she was alive during the holiday, and died so shortly after just tears me apart. It just crushes me.

I guess maybe it’s (christmas) just hard because it’s always going to be 4 days before another anniversary of her death? I don’t know. I know that some day down the road I might see it differently, but not this year and probably not the foreseeable future.

I think for this Holiday season to mean something to me, I need to accomplish a few things.

First, I need to get these care package bags together, along with the hats that I crocheted (and my sweet friend Caroline’s that she sent me to donate too!), and I need to tell the Hospital to hang Kenley’s photos…I don’t know why that is so hard to me. I just think that it means we need to go up and see them. We bought them. We spent the time deciding what we wanted to have engraved in them…I need to see them I think.

Second, I need to donate some gifts to a needy family or something. I know that you can get those names off of trees at churches or the salvation army, but I want to know that whatever it is we choose to donate, is being used. I would donate to toys for tots but I don’t know… I want something more personal. If anyone has any ideas, let me know. I would love to sponsor a family’s Christmas who just couldn’t afford it.

Third, I need to make a plan for her birthday. I don’t know what feels right. Nothing feels right, again, but I want to celebrate her. I know that she knows how much we love her, how could she not? But, I want to do something for our family to remember her too. I know there isn’t a day that goes by that they don’t think of her, either, but I want us all to do something together. I’m leaning toward balloon release, and cupcakes. It’s just going to fucking suck so much to be celebrating a girl who will never actually get a birthday, or to take a breath of air outside of her mother. To be remembering a sweet, beautiful child who I could not save. To be remembering her…instead of watching her shove cake in her face.

Sometimes it’s just too much.

grief

First Birthday Request.

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Kenley’s first birthday -December 29th- is just a few weeks away. I can’t believe I should have a child in my arms who would be possibly walking, jabbering, or causing chaos in our lives every day. I can’t believe that she isn’t here. It breaks my heart every day that I wake up and I’m alive, and she is not.

For Kenley’s first birthday, I’m asking for help from anyone who reads this, follows me on IG, or knows me any other way.

I’m asking you to write my daughters name. Write her name, anyway you would like to, and send me a picture. I want to take all of the photos that we receive and make a collage to put in my bedroom so I can make a wall dedicated to her. 

I’ve had a few people send me photos already, and I love them! Be as creative as you want, I welcome the diversity of the photos! If you send them, please include who you are and how you know us. I’m assuming I will know most people, but I guess you never know.

If you want to participate in this, I have set up a specific e-mail account for photos to be sent to, you can DM it to me on IG, or you can text them to me if you know my number- I’m fine with whatever.

My goal is to have all of the photos by the middle of December so I can have her collage done by her first birthday party.

Here is the e-mail address for photos:

KenleyPhotos@Gmail.com

I look forward to all the pictures! I can’t wait to see how this turns out for our sweet girl! Thank you in advance for helping with this project, and for loving our Kenley so fiercely throughout this past year. Let me know if you have any questions about this, and I will gladly answer! ❤