life.

It’s becoming harder and harder to find time to do things that I enjoy. Blogging especially has been put on the back burner and I hate it. I pretty much have the same things to say over and over in different ways, but it is so comforting being here in front of the keyboard knowing that I get some time with Kenley.

Life has been super busy, and it seems to only keep getting busier. Landon is in baseball which takes up a lot of time, and the girls are SO. BUSY. ALL. OF. THE. TIME. which wears me out so much (cue never having any time for anything). I’m so grateful to be their mom but sometimes I cannot wait for it to be bed time.  I mean it helps that they look super cute in their PJs so…

I still haven’t been able to donate Kenley’s Care Packages. I don’t know why. WHY CAN’T I DO IT? I know what good they will bring, and I just like cannot bring myself to donate them, and make it happen. Actually maybe it’s not just the boxes that I’m procrastinating on…I feel like lately I’m dragging my feet about making commitments to little things even. I’m not sure what it is, or why it’s happening but I’m finding that I’m more and more frustrated with myself over it. Oh, and I feel like I’m constantly second guessing everything I do. Yet I don’t really care all at the same time? I don’t know how to describe it.

It’s almost Mother’s Day, a day which makes me and many of the women I’ve come to love, want to curl up and die. A day where Mother’s are celebrated…but only if you have children that you can see. Which, is kind of shitty, because even then you’re celebrated but your dead baby is not included in the count; They’re left out and forgotten. Who wants to be sad on Mother’s day?! GOD FORBID. *insert dramatic eye roll*

I am pretty sure that I’m going to pretend the day is normal and that is that. Shane works anyway so it’s not like I could even get a break if I wanted one? What I REALLY want is to sleep in a hotel bed, in the silence, alone, cuddled up with 50,000 pillows, AND sleep past 6 am. I mean I know that won’t happen, but a girl can dream right? I heard on the news that Kraft will pay for baby sitting up to $100 for moms who need a break. I should check into that…totally kidding.

or am I?

Anyway, this post is just to say hi and that I am still here. I have so many things I want to talk about and discuss, I just cannot find the time. Maybe it will be my new goal to commit to writing once a week at the very minimum. I wrote EVERY DAY for the longest time. Then it tapered off….now it’s like nonexistent. I need a place where I can come and just vent and say the most random things if need be, and that’s why I love this place.

This is my space, and I share it with my beautiful child who lives in the stars. I share it with all of my beautiful children, but it feels more like Kenley and I’s special place.

I just need some time to connect to her. I miss her. I miss everything she was to me. I miss who I was before she died. I miss who we were as a family before she died. I just want to see her perfect face again. poetry about miscarriage read beautiful stillbirth poems to help grieving print famous

 

Rowan is ONE!

How did THAT happen?! I cannot believe that at 10:32 a.m., my sweetest surprise came into this world. Screaming, dark haired and perfect. She chose to share a birth time (only a.m. v. p.m.) with Kenley. This is so special to me and makes me feel that maybe, in some way, they planned it that way for me together at one point…

Rowie, you are a bundle of laughs all the time. You are feisty, and sweet; You’re smart and out going yet a little shy. You started walking at 9.5 months, and we can’t keep you down. You have the sweetest personality and we don’t know how we ever lived with out you.

You are my greatest surprise and I am so thankful for the chance to be your Mommy. Some day I will explain to you allllllllll the things that came together to make you being in our lives possible, but for today?…

I just want you to know that I will love you with every ounce of my soul until the day that I die.

And I will love you after that, too.

3.

My sweetest Kenley,

Today you are three. Except you aren’t…but you are? You are three, wherever you are. You have been missed earth-side for 3 years.

Three years have passed since you were physically here. Three whole years since I held you in my arms.

I can’t believe it.

I was planning to write this huge wonderful birthday letter but honestly? Your momma’s heart is broken into a million pieces and I have no words.

I have said it a million times and I don’t think saying it again would make it any different. It changes nothing.

I miss you. I love you. I hope you know how much your life changed mine. I hope you see how important you are in our daily life. I hope you see all the good I try to do in your name.

You are so loved.

You are so missed.

Your life meant something and it always will.

I see your absence in your sisters presence. It is heart breaking to say the least.

I love you. I love you. I fucking love you more than life itself and I hope that you know that.

I wish I knew that you knew what you mean to me.

Happy Birthday, my beautiful daughter.

Mommy loves you.

two and a half.

Today you should be two and a half years old. You should be doing a wide array of things that I have not allowed myself to even think about quite honestly. I don’t know what type of little girl you would be. Would you be a stubborn independent child, or would you be a cuddly love bug? Or both? Would you let me put your hair in pigtails and let me paint your nails?

What would your voice sound like?

Would your eyes stay brown like I read on your autopsy report they were?

How much would you love Landon? He loves you so much and he never got to meet you. That is one of my biggest “I don’t know if I did the right thing” moments…it’s probably the only moment in my life that I’m always questioning or replaying…should I have let him see you? He misses you so bad.

I don’t typically allow my brain to go to these places because it’s just too sad. It is so fucking sad. My heart breaks daily for you and what our family lost when you left us. I wish so badly that you were alive and I was able to hold you in my arms and kiss your warm skin. I would give anything to run my hands over your beautiful face one more time. I love you, sweet girl.

It is not lost on me that both of your sisters wouldn’t be here if you were and that is a very hard thing to swallow. These days, it feels like I can’t imagine you being alive, and them not being here. I never thought I would be able to even think that way, but grief is weird and confusing. I know it’s all part of healing but it makes me so sad.

Grief is changing for me lately.

Maybe it’s not the grief that is changing per se; I still miss you as much if not more than the day you left me. Instead, maybe it’s the fact that your sisters are helping me heal in ways I never thought possible mixed with the fact that my heart has cried all it possibly can for you. There are times when everything feels fresh and I am overwhelmed with the raw grief of the early days, but that is more rare now. More often it is something small that brings a tear to my eye; instead of crying for an entire day, I will be blindsided and cry for a few moments. The grief is short lived and super intense but I’m able to pull myself from its grips.

Christmas anything, songs, colors, the weather, noises, driving past certain places, wearing certain clothes, certain scents, the way your Daddy looks at me…these are some of the things that are normal, yet somehow are also triggers for me. Life is like a second hand puzzle you get at goodwill and you are the missing piece; Everything now feels discounted, and cheap. I feel cheated. I’ll never get that piece back.

Today you should be 2 and a half. How is that even possible. The mind is an amazing thing capable of understanding some really intense stuff but I will NEVER understand your death. I know that there is a “scientific reason” why you died; we were fortunate enough to get that answer. But, there is no logical reason in the same sense…there is no reason a perfect child should die. My perfect baby should be alive.

I’ve never allowed myself to fully go back to that day. My heart is one small break away from irreparable damage. It’s not that I don’t want to remember it, I do so badly, but it hurts. It’s a memory that no one should ever have.

Kenley, you were (are) so wanted. I planned for you. I prepared my life for your arrival and you never came. I am so sorry that I couldn’t save you; I know that it’s not my “fault” but IT IS.

Two and a half years…how does it feel like just yesterday, but also an eternity since I’ve held you in my arms? Two and a half years closer to you, my sweet first daughter.

I love you.

————-

Your skin

Oh yeah, your skin and bones

Turn into something beautiful

You know, you know I love you so

You know I love you so

-Coldplay. Yellow.

donating.

As the year comes to a close and Kenley’s second birthday speeds toward me like a fucking bullet train, I am so thankful for the donations we will be making to the hospital in her memory.

Continue reading

Fourth. 

This Holiday sucks for a lot of my loss mom friends. 

For me, I have a very strong dislike as well. It makes me so mad that loss has stolen this holiday from me as well. I LOVED the 4th before. It was my favorite holiday for reasons unknown; It just was

I remember being 4 months pregnant with Kenley in July 2015 and going to the lake to watch fireworks with Shane’s family. My sister in law gave me Kenley’s first gift- a 6 month outfit for next July 4th. It was adorable. SO CUTE. and I just had all these visions of her wearing this outfit, and sitting up, eating little puffs while sitting on a blanket under a tree with me. 

But, that never happened. She never even got to see this outfit, or fireworks. 

After she died, this outfit hung in her closet, mocking me. Just staring at me, trying to convince me that I’m a bad mom and Kenley’s death was my fault. I know that sounds crazy, but these are the things people don’t talk about. Shit like that ACTUALLY happens. 

This year, it’s still there. Alden can fit into 6 month clothes- they’re a little big but they fit.

 The Fourth of July outfit is 6 month. 

I looked at it. 

I took it off the hanger and washed it. 

I just hung it back up in the closet- on Alden’s side. 

Alden will be wearing it this holiday- in honor of Kenley. 

No one.

As I reached into the back of my spice cabinet and felt them, I knew what they were. The numbers 3 & 0. They were my birthday candles; hot pink, and glittery on tiny little toothpicks. They were my favorite candles, and they were from my favorite birthday- My 30th. I was finally pregnant after all of our infertility treatments, and I was so happy. Shane and Landon went together to buy me a birthday present. They bought me a past present future ring that I’ve worn on my right ring finger ever since.

This is the only gift I have “from” Kenley. When I opened the gift, I imagined giving it to her when she was older, maybe on her high school graduation day. Maybe on her wedding day; it could be her something old. People don’t prepare you for these things.

No one ever tells you what happens after.

After the initial shock wears off.

After you wake up for consecutive days without the baby you carried for 9 months.

After you can so sadly say “I’m a survivor of child loss”.

No one ever tells you that every day is a fight; to get out of bed, to not fall apart every second of every day, to feel normal- whatever that new normal may be. No one ever tells you that you will feel like your body failed you; that you will hate yourself for what your body did to your child. You never hear about the judgement you will face, like you’re damaged goods, and now you’re less of a Mother because your child is dead. No one tells you that you will constantly replay the moments over and over in your head, no matter how hard you try to block them out; your memories become your nightmares.

No one tells you that somehow you make it through. Somehow you are still alive. Somehow you are still breathing, but you are not the same person as before. You will never be that person; that person died with the child you lost.

That person no longer exists.

I don’t know that I would have believed anyone, during the early days of grief, had they told me that eventually you just learn how to survive. Surviving doesn’t mean that things get easier; honestly, things get more complicated and weird as time goes on. Surviving doesn’t mean that you forgot, or ever will forget the child you lost, or that this child is any less loved than they were the moment you found out of their existence.

Surviving means that the love you have for that child transcends time and space.

Surviving means you are keeping the memory of your child alive.

Every day that I survive on this earth, is one day closer to my Daughter. 

face. 

Most days (now) I wake up and feel like I’ve lived a really bad dream for the past (almost) 18 months. It just doesn’t seem like this can be MY life. This type of stuff happens to other people, not to me. Not to my family; we had already faced so much when we found out Kenley died. How could we be dealt this hand, too? Why me? Why Shane? Why Landon? But most of all, why Kenley? My sweet girl. My innocent little baby…what did she do to deserve this? 

I often think of her, and what she would be doing these days. I find myself looking at her photo while feeding Alden. Staring at her, staring at both of them, hoping to see a similarity that I can cling to in my living child’s face. I usually come up empty handed. Alden is her own person, and I know that, but I wish I could see Kenley in her. 

People have asked me if I’ve called Alden by Kenley’s name. I haven’t yet, but it is only because I consciously tell myself that it is not her name. Every time I speak Alden’s name, Kenley’s name comes to my lips first. Always. I’m pretty sure this is normal, and I’m also sure it will be a life long battle in some capacity. 

I know that as Alden becomes her own person I will be able to separate them more. I only knew Kenley inside of me, and outside, even though she had passed away, for a few hours. I won’t ever really know her, because I already know all there is to know about her. I know the foods she liked, and the music she liked. 

She loved Mexican food, and Ceasar Salad from Panera Bread. 

She loved Christmas music. 

But, I will never know her favorite color, or if she would have been tall like me. What color eyes would she have had at Landon’s age? These are things I will always have to wonder about. I will get to see Alden become her own person, and every single day I am so thankful for that, but you know what? It still stings. I am not ok. I am not “better” because she is here; I am different, sure, but not better. My life will never be “better”- I’ve lost a child and that is something you cannot replace. 

Alden does not take Kenley’s place in my life or in our family. 

I read a quote the other day that said “I think hell is something you carry around with you, not somewhere you go”.  

This rings so true with me. No matter the happiness I feel, no matter the joy and light that Alden brings to me, or the length of time that passes since Kenley’s birth, the scars of going through the deepest darkest  hell are still going to be there. I will be carrying the aftermath, my new life, the “hell”,  with me forever. 

Forever. 

This is my life, forever. Nothing can ever change that. Nothing can bring Kenley back, so this is it. 

I am the parent of a dead child. 

Forever

rational brain=non existent

I’m pretty sure that the last two weeks of this pregnancy are going to just drive me absolutely up the wall crazy. Since last Wednesday when I posted last, I have gone off the deep end it feels.

Thursday we had our NST, and it was CAKE…like nothing has ever gone so smooth in my life kind of cake. We walked in, I peed in a cup- all was good, I lost two lbs, blood pressure was like ridiculously perfect, and Alden was kicking the NST’s ass. We were in and out within what felt like 30 minutes. After, we went to Panera bread and enjoyed a nice relaxing lunch. I love Thursdays with Shane because we always get lunch together and it’s just so relaxing to be with him.

So, fast forward to Friday. Landon is in school, and my mom came to visit for the weekend. Everything is going well, but just somewhere in the back of my mind I feel super uneasy. I think the closer it is getting to d-day, the worse I’m feeling. Saturday I convinced myself that she wasn’t moving “right”, or that her pattern was different. Of course this caused me to spiral and push on her a bunch to see if she would move (which she did). I would get so close to saying I had to go into L&D, then she would move enough for me to feel confident in her being alive.

Saturday night however was a different story. She didn’t move while I laid in bed with Shane watching tv. She didn’t move when I rolled on my back, or my other side. In the tiny little rational part of my brain I have left I’m thinking, ok…she is sleeping so much right now, everything is fine. It’s constantly overshadowed by the giant irrational (read: totally legit) part of my brain that says  OMG. IT’S BEEN FOREVER SINCE YOU FELT HER MOVE. GET UP. GO TO LABOR AND DELIVERY. GO NOW. WHO CARES IF YOU CAN HEAR HER HEART BEAT ON YOUR DOPPLER. THAT’S NOT GOOD ENOUGH.

Saturday night I slept like SHIT. I was up 4 times to pee, and one of those times I was woken up by a contraction that hurt like hell.

Oh and at 4:45 am that “legit” part of my brain made me use my doppler to hear her heart beat.

FOUR. FOURTY. FIVE. AM.

Tomorrow it will be 16 days until she’s here. Kenley died a week before her scheduled c-section date. I cannot stop thinking about how were coming up on that date. Sure, this is a different pregnancy, and things are different this time yada yada yada, but honestly? Things are so much worse this time. Before, I was excited. I wanted to let her cook in there as long as she could! I asked for a c-section at 38 weeks and was told no. If my doctors would have agreed, she would be here. They had no reason to not agree.

This time, my MFM is willing to take her at 37 weeks, and I’m pretty sure I’m going to beg her to take her at 36, or 36.3 I don’t know, just something. She needs to come out while I know she’s alive. I didn’t know that Kenley wasn’t alive. It was so unfair, and cruel. I want to be able to say that this isn’t driving me insane, or that I’m handling it super well, but the truth is I’m not.

My anxiety is overwhelming. My fear of losing this child has become to much. I am excited for Alden to come…but what if she doesn’t get to come home with us? What would I do? People are taking time off of work for her arrival- just like with Kenley- and what happens if she doesn’t survive. It’s all too much.

Tomorrow we have an NST followed by a Growth Ultrasound and an appointment with my MFM. She is so reassuring, so I know she will calm me down, but I really really hope that she considers my mental health when I ask her if we can go any earlier.

I’m sure she’ll say no and try to talk me down…but I feel like my concerns are valid and my opinion matters.

Having a baby should not be this god damn hard.

NSTptsd.

Yep. It’s a real thing, at least it should be a real word anyway.

Yesterday at our first NST of the week, Alden decided she would be a super jerk and not let the nurse find her heart beat right away. And, by right away, I mean it took THREE WHOLE MINUTES to find her heartbeat. Sure, 3 minutes doesn’t seem like a long time, but remember the standard NST testing hook up is how we found out Kenley died. That was the longest probably 10 minutes of my entire life…

So, I’m sitting there… the nurse says “ok lets have you roll toward me” (I do) still no heartbeat.

Lets have you roll on to your other side (I do) still, I hear nothing.

I’m feeling her move inside me, or so I think; I thought Kenley was moving, too, but I was horribly mistaken.

I say, “ok let me lay flat on my back for a second because sometimes when I do that she moves and brings herself pretty close to the surface and we get her heartbeat”.

I lay flat. NOTHING. 

I lost it; I cried and was shaking so much we had to turn the machine down because it was so loud. I’m sorry, but there is only so much you can handle! I had reached my limit about 20 seconds after we couldn’t find her heartbeat in the beginning so the nurse is lucky I held out as long as I did.

Finally, we got it. It was faint and sounded super distant. I don’t know what she was doing in there (besides stressing me the hell out) but she just kept her distance. We were finally able to get a good trace on her, and she passed with flying colors, as per usual.

After the nurse left to let my MFM read the strip, I lost it again. Shane could tell I wasn’t holding it together very well, and I could tell he was a little stressed out too. He swears he heard her faintly in the beginning, and that the Nurse was never worried…well, I sure as hell was (and I know he’s lying and was scared half to death too…) 

So the rest of the appointment I was scared. I wanted to just cry to my MFM and beg her to take Alden now. Please god just take her while we know she’s still alive. I know that she will be fine on the outside. What if my body kills her again between now and the time she’s supposed to come? Kenley died 7 days before her scheduled c-section date, so what am I supposed to do around that time with Alden? I’m pretty sure I’ll either be at an NST, in Labor and Delivery getting monitored, or I’ll be sitting here with my doppler on my stomach listening to her heartbeat all night.

I talked with my MFM, and told her I had been having some Braxton Hicks contractions, and that they pretty much happen every time I stand up. I sit down, and they eventually go away after a few seconds. I drink tons of water, so I know I’m not dehydrated. She told me that if they increased, or the pain intensified that I should head to L&D. She didn’t seem too worried about them, but I go for another NST on Thursday and so far today they have been happening again so I will mention it to her.

She told me that she had put her cell phone number in my chart so that if I end up at labor and delivery in the middle of the night they know to call her for delivery- That kind of freaked me out I won’t lie! We also discussed that I need to stop Lovenox 12 hours before I deliver because if I don’t, they won’t give me a spinal due to bleeding risks, and I’ll have to be put under. I would just lose my mind if I had to be asleep for her birth! Not cool!

I have been trying my hardest to not let my mind get the best of me, but the NST just pushed me over the edge. I don’t know how I’m going to get through the next 20-something days. I really don’t know.

On a happy, less neurotic, note- Alden now has a light fixture for her bedroom!

lydia-flushmount-chandelier-c