The title of this post has many meanings; let me explain what I mean.
I was sitting here trying to think of a way to title this post, and I was coming up blank. I knew the things I wanted to write about and I just couldn’t figure it out. Then it came to me – STEPS.
Taking steps moving forward in my life.
Never getting to see Kenley take steps.
Taking steps by walking in a 5k for a woman who lost her daughter, Lydie, to stillbirth.
If you write it out enough, it just doesn’t even look like a word. You know how if you say a word too much it starts to sound weird, or not like a word? Same for when you spell it out over and over, it just looks weird eventually. I feel that way about repeating that my daughter is dead over and over. Kenley is dead. She died. I will never have her here with me on this earth again. It just doesn’t make fucking sense.
On October 1st, the woman who lost her daughter that I mentioned above has set up a 5k/1mile/kids dash in Columbus. All proceeds benefit the Star Legacy Foundation for stillbirth research and education. I want to participate in this so incredibly much. I want to start a team for Kenley. I feel a special connection to this woman, Heather, for many reasons.
She is from our area, she has also lost her beautiful daughter, and the most fucked up reason of all? She and her Husband were the people who raised the money to donate Cuddle Cots to the hospital system where we had Kenley. Kenley used a cuddle cot, which lengthened her stay with us in the room.We spent approximately 2 days with Kenley. Heather and her Husband only spent 6 hours with their daughter. Six Hours. For her entire life, she will only have those 6 hours with her daughter. It breaks my heart that she did not have this item and was not able to spend more time with her daughter, but I am beyond thankful that I was given that opportunity because of them.
If you’re interested in walking in this 5k/1mile walk here is the information:
I’ve been seeing a lot of babies around Kenley’s age lately. There seems to be an abundance of them at T-ball games. It crushes my soul each time I see a cute little girl, in a cute little sundress and headband being carried lovingly by their mother. It should be me. I should be carrying Kenley around, enjoying every single second of it. Instead I’m envious of the other mothers. It pains me to look at them, and be near them. I’m not a mean person, and I’m not mad that they have their children; I don’t wish what happened to us on my worst enemy. It’s just the worst pain there is, I’m almost 100% sure of it. I look away, I look at the ground, any thing to avoid the happy family with the daughter that I should have. The families who never had an issue having their sweet daughter, who never had to hear the worst words in the world – ” Unfortunately, there is no heartbeat”.
Yeah, good choice of words doctor. Unfortunately. I want to punch that doctor in her stupid face. I will forever hold this against her as a person. Have a little fucking compassion. There needs to be a change in medical care in regard to dealing with these issues because they are real, and they happen. Don’t tell me my daughter died in the middle of triage, where the rooms are separated by curtains. Don’t let me sit there and hear the other ladies being monitored with their beautiful children hearts beating on the monitors.
Some times I literally cannot believe these things have happened to me. To my family. To my husband and my son. To my daughter.
I can’t believe that we have to do IVF in hopes that we someday get to complete our family. I can’t believe that we have NO fertility coverage for IVF and we have to pay every single cent out of pocket. It just seems so unfair after what we’ve gone through. There should be someone with an actual heart who reviews your case and that is how your coverage is decided. You will cover my child’s autopsy report, but you will not cover a single thing related to having a child with infertility issues? It’s sickening, really.
The worst part of all of this is how incredibly fucked up my “Mom” mind is from all of this.
Everything has a direct link to my pregnancy with Kenley, or the fact that she is no longer here with us. Thinking about getting pregnant again is exciting because we will be bringing another child into the world. I’m sure we will feel more joy than we can even imagine right now. But…those thoughts come with thoughts of panic about her nursery, her things, this happening again, or something else happening.
I’m pretty sure that my life is always going to be an ever changing puzzle that I’m never going to figure out – think the Gryffindor stair case that constantly changes in Harry Potter…that’s what I’m sure my life will be forever.
Somedays I don’t have it in me to keep climbing, I won’t lie. I’m hoping as IVF moves along, I will feel more hopeful, more positive.
I just need to work on not letting my guilt pull me under.