Grief

baby book. 

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When we were 13 weeks pregnant with Kenley, my neighbor asked if she could bring over some gifts she bought us. I was so excited- Kenley’s first gifts! I couldn’t wait. One of the gifts was a baby book; the kind that I would have chosen myself which made it that much better. I remember flipping through and thinking about all the entries I couldn’t wait to make. First teeth to come in, first steps, favorite cartoons, or books. Except, I only filled in the first two or three pages; I was denied the opportunity to complete the other entries. 

Secondary Losses. 

When we got pregnant with Alden, things were extremely different- how could they not be? I didn’t want gifts for her; I didn’t want to make plans for her future because I was all too sure she would be ripped away from me too. A week or so before she came, I received a surprise gift in the mail from a dear friend. 

A baby book. 

I had put off buying one intentionally because I just couldn’t even think about filling in the beginning again. 

 “Mommy and Daddy were _________ when they found out you were coming!” 

Scared. Guilty. Mad. Excited. Happy. Sad. Anxious. Depressed. 

How do you fill in that answer? 

I took her book to the hospital to make sure her foot prints found the proper home inside, but I haven’t opened it yet to look at them. I know she deserves me to fill out her book just like I started to fill out Kenley’s, or how I’ve filled out Landon’s. I know that. I’m sure that some day I will fill it out because I want her to be able to look back at it after she’s had a child of her own to see when she started walking, or when she got her first tooth and to see which one it was. 

She deserves that.

 I owe it to her. 

I want to make her life as “shadowless” as possible and I know that having a baby book for her will be a step in that direction. I don’t want to ever imagine how she would feel if she asked me to see her book, and I told her I couldn’t make her one because after her sister died I would rather have sawed off my arm than write in another baby book. 

I’m finding out each day that there are new mountains to climb in my new life with Alden. 

One foot in front of the other, right? One step at a time. 

36+3 & a blogging nomination of sorts

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4 days left. It doesn’t feel real still. Of course all last night I laid in bed waiting to feel her move, and she just didn’t move as much or as hard as I liked. So this morning I woke up, and I just chugged 2 glasses of chocolate milk (pretty sure I’ll throw up here in about 5 seconds) in hopes to make her move. She’s usually pretty lazy until about 10-11 am, so I’m trying to be rational here…

I need to decide how I want to go about packing a hospital bag. I know I need to because it will make everything easier for us to have it at the hospital, or at least in the car where it’s easy access instead of driving 35 minutes back home to get something. Maybe I will try to tackle that today– I highly doubt it but we’ll see. I do need to wash some serious laundry so that’s probably what will be happening today. It’s about 20 degrees outside, with an extended warning for next week to be extremely cold.

As were inching closer to the big day, I can’t help but miss Kenley even more than normal if that’s possible. I feel so far away from her these days. She’s been gone for a long time, and somedays it just feels impossible that she was ever actually here. I would give anything to kiss her beautiful face one more time. There are many things I wish I could have done differently, but I am happy that I (hopefully) will get to mother her little sister. I just wish I could have them both in my arms.

On a different note-

I’ve been noticing a friends blog is referring people to my blog in great numbers for the past two days. I did a little more investigation and found out that she has been nominated to answer some fun questions for an award called the”Getting to know you” award, in which she is asked to nominate another blogger to do the same…I am that blogger! I was so thrilled when I finally had a second to sit down and read her answers to the questions. Christine is an amazing human. I found her very shortly after I lost Kenley, and creeped her blog hardcore. I don’t think she truly knows (yet..give it 5 seconds here) how much she has helped me on this journey to our Rainbow.

When I was sad, I would just find random posts on her blog to read. She would make me laugh, or make me cry, or sometimes she would manage to do both in one post. That my friends takes talent. I can relate to pretty much every single thing she posts, and I find that is very rare nowadays. So Christine, this is my thank you for supporting me even when you didn’t know I existed, and for now being an amazing friend whom I hope to stay in contact with for a long ass time.

Here are the questions I’m supposed to answer- Enjoy!

 

Who are you named after?

Honestly, I don’t think anyone. I know that I was supposed to be named something different but when my parents saw me they thought it wasn’t right. And that’s about all there is to the story of how I had a boys name growing up… Truth be told though, I love it now. I am so thankful it’s original and I think it fits me quite well.

 

Do you like your handwriting?

Yep. I always have. My cursive writing could use some practice, but lets be honest I don’t event think they’re teaching it in school anymore so I’m not gonna worry too much. I remember writing a letter to Shane when we first met; fast forward 13 years and I was just looking at it in our memory box thinking man! I really love my hand writing. Of course it could also be that I was obsessed with those fine tip purple inked pens.

 

What is your favorite lunch meat?

Well, I like Ham, but Christine’s answer (It was thinly sliced honey ham. But then Mark toured a meat plant and told me a little about it…) really bummed me out….so I’m gonna pass….

 

Longest relationship?

Shane and I will be together for 13 years/married for 7 in May. I am so lucky to have found my soul mate as a senior in high school and I try to remember that every day when I wake up. I’m so thankful for his love.  (The other longest relationship in my life is Jenny- best friends since 1990, bitches. I feel like I should insert some Lisa Frank photos here? I dunno.)

 

Do you still have your tonsils?

Random, but no. I think Christine said it best: ” I had them removed at age five. Coincidentally (or not), I haven’t had strep throat since age five either.” To this I can just say- Ditto.

 

Would you bungee jump?

You know, I can’t really say for sure. I’m pretty sure that I wouldn’t. I might sky dive? Bungee jumping just screams asking for trouble to me. So many things can (and would totally) go wrong. Your bungee cord could be too short, too long, it could snap, you could break your neck, you could hit whatever you’re jumping off of, or the ground…the list goes on and on. So no thanks.

 

Do you untie your shoes when you take them off?

I cannot tell you the last time I wore shoes that required me to tie them. Summer time is for sandals, and the winter is for boots…neither of which require me to tie them so win win.

 

Favorite ice cream?

Hands down Ben and Jerry’s Fudge Brownie ice cream. I did however find out last night that Alden is down with Vanilla Gelato and Hershey chocolate syrup. I ate some and she danced for a half hour after.

 

What is the first thing you notice about people?

Honestly? Their personality. I can tell within a few seconds if I like you or not. Sure, it may be a snap judgement, but I’m sorry. It’s always held true for me, so I’m gonna just continue to go with my gut on this one.

 

Football or baseball?

Ugh. Do I have to answer? Oh! Okay, I love t-ball. I love watching Landon play, and his little teammates pick up dirt in their gloves instead of grabbing the ball as it rolls by them.

 

What color pants are you wearing?

Black maternity leggings. I have been living in them for a long time now. It feels like nearly 2 years, oh thats right cus it’s been nearly two years i’ve been pregnant. Ugh.

 

Last thing you ate?

Landon and I had pizza for dinner!

 

If you were a crayon, what color would you be?

This is tough. My gut tells me to be magenta, or some amazing shade of pink. But, as I’ve grown older I’ve come to love many colors. Gray, mint greens, gold, and some weird color called Jungle Green that’s pretty cool. And now, they have metallic crayons? I just can’t pick one.

 

Favorite smell?

Shane’s cologne. The candle we had in our first apartment together. Bread.

 

Who was the last person you spoke to on the phone?

Shane

 

Hair color?

It’s naturally dirty blonde which I hate so I always lighten it wayyyy up.

 

Eye color?

Green

 

Favorite foods to eat?

Hmm…I’m not too sure. I guess I’d have to say that I like pretty much anything as long as I’m in good company. There is nothing I love more than a good lunch/dinner with Shane. It gives us time to really enjoy each other and talk.

 

Scary movies or happy endings?

Oh Lordy, no scary movies over here. I cannot handle that. I am so easily freaked out.

 

Last movie you watched?

Tonight Landon and I watched Moana. It was actually super cute, and kept his attention which NEVER happens. He loved it, and I just enjoyed him sitting with me for an hour and a half 🙂

 

Favorite holiday?

I would say Christmas, but I’m really not sure that’s true anymore. I’m going to leave this one open ended…

 

Beer or wine?

Wine

 

Night owl or early bird?

You know, I really think the older I get the more I’m becoming an early bird…and I hate it.

 

Favorite day of the week?

Tuesday

 

Favorite quote?

“You will always be my favorite what if”- unknown. I wish I had some huge amazing quote, but this is the only thing that I can think of. I think it’s going to be my favorite for the rest of my life.

 

Nominations?

I’m going to nominate the amazing Cassie over at Holding Our Angel! I met her, and instantly fell in love with her. She is so kind and sweet. She lost her sweet son Theo very shortly before we lost Kenley, so we share a very similar timeline and I think that helps to connect us.

 

 

 

looking inside.

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Sometimes when it’s dark out, and were driving down the road I will look inside peoples houses if their curtains aren’t pulled shut. I know that I’m not the only person who does this, and so I know that there are people who have driven by my house and looked into the Nursery when it’s evening and the curtains have been open.

Those people are not aware of the pain and suffering that has been the last year of my life. They drive by, peer in and see a little girls nursery. They could have even driven by multiple times and seen a guest room, Kenley’s nursery, and then now Aldens’s. Maybe they didn’t notice, or maybe they did. It’s such a harmless thing, just looking out the window of a moving car. It’s just amazing what you will never know from just looking inside someone’s window while driving by.  It’s such a weird thing to think about, but it’s been on my mind a lot lately. Maybe it’s because I fully expect many people to discuss my pregnancies when we’re in the hospital, or maybe it’s because losing a child makes you wonder who else has gone through it?

Maybe it’s because I feel like everyone should just know about Kenley. I wrote about this in the very first blog post I ever wrote. I feel like once you’re a loss parent, you are marked and everyone should just see your pain, no matter how long it’s been, and no matter how your child died.

Shane and I were talking at breakfast the other morning and we were discussing how naive we were when we had Landon. Shane said he remembers how proud he was to take Landon out to meals and have people tell us how adorable he was. We talked about how we never in a million years would have ever thought that we were hurting anyone buy taking our child to breakfast with us in public; now however I’m constantly wondering who is suffering.  I know that there will always be someone in pain, and that we will never be able to know for sure who it is, but I will always be more aware now.

Today is March 1st.

I can’t even with all the weird feelings I’m having, but let me try…

I feel excited because yeah, theoretically, I should be having a baby soon (I’m not counting my chickens before they hatch though…).

I feel sad because I should have Kenley in my arms, as a beautiful funny 14 month old baby- instead, I’m super pregnant, again.

I feel nervous because I’m pretty sure I’ve forgotten everything I know about taking care of a baby. I had postpartum depression with Landon pretty badly, and I’m scared that it will be that again on top of grieving for Kenley.

I feel extreme love when I think about watching Landon hold Alden. I cannot wait for that moment; I have been waiting for far too long to witness it.

And, on top of all of that, I feel guilt. Guilt that I’m being monitored so well by my doctor and that Kenley didn’t even get a chance to be monitored like this. Guilt for being so excited for Alden to come. So much guilt over pretty much everything. It’s just so difficult to explain to anyone who hasn’t lost a child what the guilt is like and how I feel it vs pure excitement.

Tomorrow we have a NST, and my doctor is going to check the blood flow in her cord for us.  At Monday’s appointment I think that I scared my doctor. I have been cool and calm so far but not on Monday. I think she finally really understood how intense this has been for me. I let my guard down and cried and cried and cried. I begged her to take Alden at 36 weeks, or that day. Just take her while I know that she is alive and well. Kenley died 6 days before her scheduled c-section date, and I cannot go through losing a child this close to the end again.

She offered me daily NST’s, and to see me personally at everyone. I don’t think that I can bring myself to go up there every single day and not feel absolutely insane. The NST’s themselves give me super PTSD. They are how we found out that Kenley had died, so they just don’t do much to calm me down. I emailed my doctor last night, and she wrote back within 4 minutes- I appreciate that more than she will ever know.

I’m trying. 14 days left. 2 weeks. I can do this.

husband. 

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Dear Shane, 

I know you don’t read this, but maybe someday you will. 

I want to tell you how much I love you. 

I want you to know how special it is to me to watch you lay your head on my belly and talk to your second daughter. 

It almost brings me to tears to hear you laugh when she kicks you in the hand or the side of the head randomly. 

She loves you, and so do I. 

You worked super early the past two days, yet you are having a sleep over with Landon…on his floor… telling ghost stories way past his bedtime because he asked you to. 

You’re an amazing Father. 

You’re an amazing Husband. 

I cannot wait to see you hold Alden, and to see the love in your eyes. 

I love you more than you will ever know. 

Love you always, 

Your best friend

30 days left.

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We had an NST today, and Alden was once again an over achiever. They want to see 2 accelerations in 2o minutes- she had 10. I’m so thankful that she is proving to me she is healthy, and active but damn I can’t wait until she is earth side and in my arms. While we were sitting there listening to her heartbeat (which, by the way is computer generated and not the real noise… I feel like I’ve been lied to!) I looked over at Shane and told him that I cannot wait to see him holding Alden. He was sitting so close to me, keeping a hand on the monitor because he wanted to make sure we were getting a good reading (her heartbeat wasn’t showing up strong so the nurse suggested I keep a hand over top of the monitor).

I am so thankful for him. I know I say it a lot, but sometimes it just hits me really really hard how much I love him. He really can’t wait for her to be here, and I am so excited to watch him be a Father again. I wanted to watch him Father Kenley, but I get to see that done in different ways. I know that he is going to love this little girl so much. I just can’t wait. I can’t wait to see Landon interact with her, too. Ugh, my heart is exploding just thinking about it! I know she will bring so much joy to our lives, and I am genuinely looking forward to that, but I am still so scared of Kenley being forgotten.

Tomorrow is Valentine’s day. Last year on Valentine’s day I remember sitting on the edge of my bed, in my robe, crying- no sobbing more like it, and thinking about how this was supposed to be Kenley’s first real holiday. I had gotten a cute little onesie for her to wear as an xmas gift; It say’s “Daddy’s Sweetheart”. I was looking through the clothes in the closet the other night when I came across it. It sent chills down my spine. I wanted to rip it out of the closet and throw it in the trash, yet at the same time I couldn’t stand to look at it long enough to even remove it. I’m not too sure what will happen with that outfit…

Last year at this time- specifically Valentine’s day- I did not want to be alive. I remember thinking about how badly I wanted to be with Kenley. I would never actually kill myself, but I remember thinking how sad I was, how lonely I was. I was in the raw grief period, and that period is like no other. There is no way to prepare someone for the darkness that you feel in the early days after a loss. It’s indescribable. I knew I needed help, so I called up some therapists and scheduled an appointment with one. I am so proud of myself for doing that because honestly? I could have literally laid down in bed and refused to get up again because that’s how awful I felt. I STILL feel that way sometimes.

I (we) saw a therapist until August, when all of a sudden one day it just didn’t feel right to go anymore. Shane and I agreed that we felt like we were just wasting money by seeing the therapist, not that she wasn’t a great one, but just that we were at the point in our grief where we could lean on each other. Before, it felt like I needed someone to hear everything I had to say, all the time, and I would sometimes lay it on thick to Shane (who was also grieving but wanting to make things easier on me so he would just listen to me cry for hours when that wasn’t fair to him). I can honestly say that I feel 100% not seeing a therapist anymore. There are days where I feel the darkness heavy inside of me, but I can battle that now. I know when it comes that it will pass, and I know why it’s coming- be it a trigger, or just a bad day.

Losing Kenley was a terrible, terrible thing. I think I can confidently say that losing a child is one of the worst- if not THE worst- things in the world. People think that just because you didn’t “spend time” with the child you lost, that you should heal quicker and move on; just the notion of that makes zero sense to me. Where in these people’s minds do they think it’s okay to expect, well, anything from a Mother who lost a child?

I text with a group of loss moms (Hi! I love you all!) and we were discussing God + losses today. We’re a pretty open minded bunch, and a few are religious (while a few aren’t) so this  next stuff isn’t some anti-christ opinion here. Anyway, we were discussing the things that people say to you after a loss, specifically when someone tells you that “it’s God’s plan”.

First off, no. Just no.  Yikes. Like…do you not realize what that sounds like? It sounds like you are telling a person who’s CHILD JUST DIED that God intended that to happen? Like he specifically chose that person and said ok, that baby won’t live. Just does not make sense. Also, there was another comment and it was greeted with a reply from one of the women who said “Ask that woman which one of her children she would like to give back” and that makes so much sense. People say things, such as “God needed another angel” (this saying makes me cringe deep into my soul) with intention of making you feel better, when really it’s just making THEM feel better (fuck if I know how it makes ANYONE feel better???). When you say God needed another angel, you’re telling that person “God” wanted your baby more than you deserved it. So, because he’s “God” he should just get what he wants. What about what you want? The chance to raise your baby (in a faith that serves him NONETHELESS!!!). 

Bottom line, don’t say dumb shit. Like, before you open your mouth, take FIVE seconds, and really, really think about if what you’re going to say is REALLY going to make this person (not yourself) feel any better.

Chances are, the answer is no because there is no comforting a child loss mother.

There just isn’t. 

This post really went all over the place.

l&d

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Last night before bed my back started to hurt, and I felt like I couldn’t take a deep breath. It’s not unusual for me to not be able to take a deep breath cus, well, all of my space is taken up. Breathing is not a fun activity these days. I went to bed with some back pain but didn’t think anything about it. I also felt really tired, but again, that’s normal these days. When I woke up this morning, my back still hurt; I couldn’t bend over without being in pain. Shane helped me by getting Landon ready for school this morning. When he was off to school, I went back to bed. I ended up sleeping until 11:30.

When I woke up, I was waiting to feel Alden move and I didn’t feel it. I kept waiting, and waiting…But I didn’t feel anything. I turned from side to side while laying in bed, expecting her to kick me hard like she usually does but nada.
I drank a sprite. Nothing.

I ate some food. Nothing.

I took a shower. Nope.

I ate some candy. Nothing.

I had her HB on my doppler which didn’t really calm me down, and she had the hiccups twice which also didn’t do much for my anxiety.

So, we decided that it was best for us to go to Labor and Delivery. I really really really didn’t want to go, but, I know that it’s better to be safe than sorry or whatever. I knew the PTSD was going to be full blown today, and I just really didn’t want to feel all that. We got there, and went back to a triage room.

They told me to give a urine sample and leave it in the bathroom …PTSD SOOOOOO much PTSD. I remember walking into L&D with Kenley, and giving a sample, and just feeling so naive to anything being wrong. Like, I think I made a joke about how bad I had to pee. But, it was like the clearest memory of the entire night when we found out she died. I left my sample in the bathroom that was in my personal room, and climbed into the bed. The nurse came in, talked to us about why we were there, and hooked us up to the monitor. We found her HB right away, thank god, but she wasn’t moving. Her heart rate was up in the 160’s and the OB resident wanted to see it a little lower so we kept monitoring her for about an hour.

The OB resident was so freaking sweet. She came in and discussed my history with us. She brought up Landon’s birth, and asked how we lost our second child. She offered her condolences about Kenley and she let me talk about her for a few minutes. It always feel good when someone cares about our story. She told us that Alden was showing good signs of accelerations, but she wasn’t moving as much as she liked so we were going to keep watching her for a while longer. After about 30 more minutes she came back in and told us that she was going to get the ultrasound machine (cue super PTSD- This is where I saw my sweet Kenley, lifeless, on screen. A mobile ultrasound machine is what confirmed my worst fears) and was going to make sure that they could see physical movement on the screen. I started to cry. She told me that she wanted to do everything possible to make me feel comfortable because of our history. I felt like she actually cared, and I jokingly told her to let me stay there for the next 5 weeks.

Once she brought the machine in, we were able to see Alden moving and squirming around. I don’t know if she had just changed positions again, and I’m just not able to feel them as much or what, but ugh. She showed us Alden’s stomach and told us that it was “black and fluttering” which meant that she was practicing breathing (a good thing), and that if she was in any kind of distress that this would be the first thing that would stop. Because she was breathing, having lots of movements, and her heart rate had dropped back down into the 130/140s, they said they felt comfortable sending us home. The resident said that there was no reason why she felt that our baby was in distress, and that we should feel confident in her health.

I cried a few more times, and thanked her for taking so much time with us to show us all these things even though we just had an NST yesterday.

Pregnancy after loss is a mind fuck.

Pregnancy after a full term stillborn child is a whole different kind of evil.

 

 

Dresser. 

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Today was the day. 

We painted over the color I spent months trying to find for Kenley’s dresser. When I found out I was pregnant with a girl, I looked at probably 8 different shades of coral.  I knew this one was it when I saw the paint chip. It was pink without being salmon, and orange without being too much like an apricot. 

It was perfection. 

And now, it’s gone. I know you’re thinking it’s “just” paint, and it’s “just” a dresser, right? Wrong. It was for my baby girl. I knew in my heart that some day I would tell her how long it took me to find that perfect color for her; I knew one day she would grow up and tell me how much she loved it. 

Shane told me a while ago that he would paint it for me after I had a major melt down while talking to him about it. But, somehow, it has been pushed to the back of the to do list. I know it’s extremely hard for him, and we talked about it today. Before we started painting I was crying just thinking about actually doing it. Guilt. So much guilt and sadness. 

He looked at me, grabbed my hand, and said “we will do it together”. 

I am the luckiest woman alive, I believe. 

So, together, through many tears on my part, we painted her dresser. We painted our daughter’s dresser; our second loved and oh so wanted daughter. 


Shane also painted her name letters yesterday, as well. They are gold, but l know they don’t look like it here. 

Painting her dresser, their dresser, was extremely emotional. The dresser is the last piece of “Kenley’s nursery” that we had left. The last remaining specific decor piece and it just felt like someone put that final nail in my coffin for lack of better words. They just reminded me that my daughter is gone, and she will NEVER be alive to enjoy the things I created for her. 

That…is a really really hard pill to swallow all over again. 

It seems like once a day I have to deal with something reminding me that she’s gone. Not just when I open my eyes and see her picture on my nightstand instead of her sweet face. Not when I feel her abscence in the silence of every day life. Not even when I walk by my dresser and see her urn, memory box and the bear I have that weighs as much as her. 

I’m talking a gut wrenching reminder that she is not here. 

Like when your insurance lists her as “deceased” on their website…with one date next to her name. Never to have a single claim billed for her medical care. 

Or when they deny coverage of the blood tests that ultimately proved you have a blood clotting disorder that killed her. 

Or when your son says he’s scared for the new baby because he “doesn’t want her to die, too”. 

I’m scared for the new baby too, buddy. 

I’m so incredibly scared. 

32 weeks today. 5 weeks to go. 

six.

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Last year, on 2/7, Landon turned 5. I remember (before Kenley died) spending so much time thinking about how “stressed out” I was going to feel for his birthday party. How was I going to throw it all together when I had a newborn? How was I going to make it special for him with his new sister in the mix? I had plans to have him Paw Patrol party, and I was going to dress Kenley up as one of the dogs to surprise him. Instead, the reality of the situation was, how can I walk through party city and buy paper plates without bursting into tears (I couldn’t)? How can I function enough to make this day special to him because his sister just died and isn’t here to celebrate with us (still not sure I succeeded).

It’s stuff like this that I really kick myself for. Sure, I didn’t know that Kenley wasn’t going to survive, so technically I shouldn’t beat myself up for that. However, I should have been thinking about all the awesome ways that I would be spending Landon’s birthday with him AND his sister- not how stressed out I was going to be. How dumb and naive I was.

This year, as Landon’s birthday started to creep closer, I found myself on Amazon. What can I buy on Amazon so that I don’t have to go to the store (read: so I can avoid a panic attack/PTSD flash backs)? I found everything online. I didn’t have to go to a store, and I found that I was better able to control my anxiety here at my house vs actually walking into the store again.

*Side note*

You know, as I sit here and write these things out all I can think is “god people probably think I’m a giant loser cry baby”…

That’s totally fine.

Think whatever you want to think about grief, but, try not to judge us who are grieving the death of a child too harshly. And, I hope with all of my heart that you never ever have to grieve the way that I am.

Anyway, I am pretty happy with how everything has turned out. He’s having a minecraft party, so I was able to buy a lot of the stuff on Etsy, which was cool.

So here we are again, at a birthday milestone. Six. He is going to be six. He was turning 5 and so excited for his sister to be there, and I couldn’t even give him that. Sure I’m pregnant now and things are looking good for her to come very soon, but let’s be honest here…I’m pretty sure his little mind doesn’t understand if he will ever get a real living sibling. I can try to explain it to him over and over, but, I’m sure he won’t believe it until she’s here either.

Can’t say that I blame him.

 

 

What I wish people knew about losing a child.

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It feels like such a cop out to say “you will never understand how it feels until it happens to you”, but that is the only way to properly convey this type of pain.  Many can only sympathize, and there are few that can fully empathize with the pain. I believe truly that it is too hard for people to actually empathize because no one wants to put themselves in our shoes. Why would they? Why would anyone want to truly try and feel the pain that accompanies losing a child? I’ve been thinking about a few things regarding what I wish people knew about losing a child, so I decided I would write about them here. What better place, right?

 

• Just because time passes, doesn’t mean that I am (or things are) better.

The grief of losing a child is not linear. There are days where I feel great, and there are days where I honestly wish I could just be with my Daughter at all costs. The pain will never “go away”.  Sure, it might lessen, change, or I might just become better at carrying my grief on a daily basis, but it will NEVER go away. If you think by looking at me that I’m feeling better, you’re terribly mistaken. I am missing my Daughter; she died inside of me and I couldn’t do anything to save her. It’s not a pain that someone gets over, ever. The guilt is no joke.  The love I have in my heart for her is not a flame that can be put out, and I would hope that everyone understands that. I will grieve differently day to day, from now until the day that I die, and people need to understand that. Sometimes you should really just give me a fucking pat on the back for even getting out of bed.

Yes. Still. Even after a year. And probably for the rest of my life.

 

• Losing a child doesn’t have to destroy your marriage like statistics say.

One of the scariest statistics I read after our daughter was stillborn was that up to 80 percent of marriages end in divorce after the loss of a child. I remember reading this percentage, and then re-reading it, to convince myself that I’d read it correctly. 80 percent?! Was that even possible?–Paul (a guest post on still standing)

After Kenley died, I never wanted Shane to leave my side. I had to be held at night to sleep. I needed him to be near me at all times. He was my security blanket, for lack of better words, and still is. I know that many people feel differently about their relationships after loss. Some women feel that their husbands are “over” the loss, or that their feelings aren’t taken into consideration. I’ve personally talked to many loss moms who feel this way. Some say that their relationship suffers in that they can’t talk about the loss to their husbands, for whatever reason. Some mention they don’t feel attractive to their husbands anymore, which makes their sex life suffer, which inevitably makes them feel sad and alone.

I asked Shane’s opinion on the subject and he had some really interesting things to say. He mentioned to me that there were times around the 5-6 month mark where he started to feel better, but I was still feeling intense sadness. He told me that he remembers making a decision to never make me feel bad for feeling how I did. He would consciously make an effort to allow me to cry if I needed to, and to not get frustrated if I was having a bad day, and he wasn’t. I’ve read that some spouses feel resentment toward their spouse for having bad days (while they are having a good day), and “bringing them down”; Shane agreed with this, and even offered up a few times that he felt that way.

We also discussed opening up to your spouse. If you’re feeling something, there is a really good chance that they are feeling the same way too. The triggers, the grief, it’s all different for everyone, but who can you relate to better than the other person who is feeling the loss of your child as intensely as you are? Don’t keep it bottled up.

This is why I love my Husband. He is open with me about this stuff; the real stuff that sucks to talk about. He knows he can tell me anything, and that I will not be offended that he may have been angry at me one day when I had a bad day and he didn’t. It’s okay to have bad days– your child died, it’s fully expected. We both wanted our marriage to work after the death of Kenley; Living without one another was never an option. It’s been different, sure, but in a good way; our relationship is stronger. I can sit here and honestly say that I have NEVER once felt like a divorce was even an option for us and Shane agrees with this 100%.

 

• Just because we are expecting again does not mean this baby will replace the child we lost.

I’ve read a lot (A LOOOOOT) online about rainbow babies. I’ve read that they can bring you intense joy; joy you never expected to feel again. I’ve read that loss moms can experience a wave of emotions when they finally hold their rainbow baby. Emotions that they’ve been suppressing for months while carrying their rainbow. The raw grief comes out full force again. When my Daughter is born (even saying the word “when” is hard because I cannot guarantee she will come into this world alive) I fully expect to feel a million emotions. This pregnancy has not been “normal” and her birth will not be normal. Subsequently her life will be as normal as I can manage to make it (while I always live one foot in joy, and one foot in sorrow). She will know about her older sister, and I will always make it a point to not let Kenley’s death shadow the birth of her. But, I’m sure it will be extremely hard.

Kenley was planned. She was wanted, and we tired for a really long time to conceive her. For her to be ripped away from us, so close to her birth, is cruel in ways that I have no words to explain. This baby will not take that sadness away from us. I will still be sad, but will have a living baby to hold. I will still walk into the nursery and think of the child who never got to see it. I will dress this baby in Kenley’s clothes, all the while knowing that they are brand new hand-me-downs. Life is never easy; life after grief is even more messy.

 

• PTSD in relation to losing a child is very real.

There have been many times since losing Kenley where PTSD hits me hard. I know there are people out there who think this (and all mental health issues) are not real; that they don’t deserve to be talked about and we should be ashamed of them. Well, those people are assholes. Those people have never had a bad day in their life, so its inconceivable that others could possibly feel anything other than great. There have been nights where I lay in bed, reliving the worst day of my life while listening to Shane’s rhythmic breathing as he sleeps next to me. It doesn’t matter what I do, I can’t stop my brain from taking me back to that triage room, and hearing the words.

Yesterday in the shower I was rinsing my hair and it hit me like a ton of bricks. I saw myself in the hospital shower, having to be washed by my husband because I physically could not move my arms due to shock. PTSD has no mercy. It hits you whenever it damn well pleases. Shane chimed in on this subject as well. He told me that he’s noticed it’s a lot harder than he ever expected it to be when co-workers and friends talk about their newborns or grandchildren. He went on to say that you want to be included and don’t want people to feel awkward talking about these things in front of you, but at the same time it’s extremely hard to hear. I think he was truly surprised at how sad/anxious he felt when he experienced his first “trigger” out side of the normal ones (babies in the store, etc etc). It goes to show you that PTSD can affect anyone, anywhere, anytime.

I found this on Grief Speaks and I think it’s an important piece to add to this post just incase someone is wondering if they might have PTSD related to child loss:

What are the symptoms of PTSD?
PTSD can cause many symptoms. These symptoms can be grouped into three categories:
1. Re-experiencing symptoms:
  • Flashbacks (reliving the trauma over and over, including physical symptoms like a racing heart or sweating)
  • Bad dreams or nightmares
  • Frightening thoughts     

2.  Avoidance Symptoms:

  • Staying away from places, events, or objects that are reminders of the experience
  • Feeling emotionally numb
  • Feeling strong guilt, depression or worry
  • Losing interest in activities that were enjoyable in the past
  • Having trouble remembering the dangerous event        

Things that remind a person of the traumatic event can trigger avoidance symptoms. These symptoms may cause a person to change his or her personal routine. For example, after a bad car crash, a person who usually drives may want to avoid driving or even riding in a car.

3.  Hyperarousal symptoms:

  • Being easily startled
  • Feeling tense or “on edge”
  • Having difficulty sleeping, and/or having angry outbursts                                                                                                                                                                                                                        Hyperarousal symptoms are usually constant, instead of being triggered by things that remind one of the traumatic event. They can make the person feel stressed and angry. These symptoms may make it hard to do daily tasks, such as sleeping, eating or concentrating. It is natural to have some of these symptoms after any dangerous event. Sometimes people have very serious symptoms that go away after a few weeks. This is called acute stress disorder, or ASD. When the symptoms last for more than a few weeks and become an ongoing problem, they might by PTSD. Some with PTSD don’t show any symptoms for weeks or even months. 

 

• Some things are always going to be hard for us now.

Seeing babies, attending Holiday functions, or get togethers, or seeing children around/younger than Kenley’s age are just a few things that will always be hard for us. Like our Grief, I’m sure these things will change in intensity, and possibly become less triggering as time goes on. This, however, does not mean that I want to see your “baby bump” photos, or that I am ok with seeing your child who was born after my child died. There are few women who I am ok with seeing the above things, and they know who they are because I’ve told them.

I don’t mean to sound like an awful person, but it is what it is. I didn’t make the rules of grief, people. I know that there are some people who understand us not wanting to be around their children, and they respect that. I am so thankful for those people. Then, there are people who think it’s okay to send you a Holiday card with their newborn baby’s photo on the cover. THIS IS NOT OK. This has not happened to me, thank sweet baby Jesus, but it has happened (more than I can actually believe) to friends of mine who have lost their children. Getting a photo of your newborn child, on what should be our child’s first Christmas, is not something that should happen-ever.

Please tell me on what planet that is ok? Oh wait, you can’t because it’s not.

I’m pretty sure I won’t ever send out Christmas cards again due to the fact I think I jinxed my pregnancy with Kenley by including her name before she was born.

I know that grieving a child comes in all different shapes and forms. I know that everything I posted won’t necessarily apply to you, and your situation, but if even one person reads this and feels like they’re not alone, my job is done. That’s why I started this blog. I need people to know that they are not alone. There are so many women who came before me, and unfortunately, there will be so many who come after me.

You are not alone.

 

 

 

netflix.

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I am so thankful that we have Netflix; I have been binge watching tv sitcoms for like, 5 weeks now. It started when a few friends told me to watch parks and rec. I had already started earlier this year, but I finished up the rest of the seasons and loved it. I found that it kept my mind super occupied, and that’s what I needed. I’m currently watching the office again; you can never get enough Pam and Jim love story.

I’ve found that since I hit 28 weeks, my mind is sort of off the charts. I think it’s been getting harder since we started buying big ticket items for Alden. We had most everything we needed for Kenley, like…literally everything. Her dresser is stocked with diapers, wipes, lotions, you name it. All things were ready for her to come home, and she didn’t. I think I feel like I’m jinxing myself, which I know is not a rational thing. Me buying a stroller does not mean that my baby is going to die. But, I’ll tell you what…it sure fucking feels like it.

We got the glider picked up, and it’s officially in our bedroom, which terrifies me (just the whole jinxing thing…). It’s so freakin comfortable and I’ve sat in it a few times. It’s right near our window, so it’s relaxing. We are scheduled to have the nursery painted on Monday morning, and I need to take down artwork, and her name banner. I’m not very excited to do this. It’s going to be super hard, and I’m feeling stressed and anxious about it.

I went into the nursery tonight while Landon was in the shower. I sat in the rocker, and just started to cry. Everything hit me at once. I don’t want to take it down, I don’t want to paint, I don’t want to see her dresser painted another color.

It’s just not fair.

I want my baby girl back.

Life is unfair. 

Today is the 2nd anniversary of our first miscarriage’s due date. I should have a two year old. 

It’s funny how fucked up life is.