guilt

face. 

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Most days (now) I wake up and feel like I’ve lived a really bad dream for the past (almost) 18 months. It just doesn’t seem like this can be MY life. This type of stuff happens to other people, not to me. Not to my family; we had already faced so much when we found out Kenley died. How could we be dealt this hand, too? Why me? Why Shane? Why Landon? But most of all, why Kenley? My sweet girl. My innocent little baby…what did she do to deserve this? 

I often think of her, and what she would be doing these days. I find myself looking at her photo while feeding Alden. Staring at her, staring at both of them, hoping to see a similarity that I can cling to in my living child’s face. I usually come up empty handed. Alden is her own person, and I know that, but I wish I could see Kenley in her. 

People have asked me if I’ve called Alden by Kenley’s name. I haven’t yet, but it is only because I consciously tell myself that it is not her name. Every time I speak Alden’s name, Kenley’s name comes to my lips first. Always. I’m pretty sure this is normal, and I’m also sure it will be a life long battle in some capacity. 

I know that as Alden becomes her own person I will be able to separate them more. I only knew Kenley inside of me, and outside, even though she had passed away, for a few hours. I won’t ever really know her, because I already know all there is to know about her. I know the foods she liked, and the music she liked. 

She loved Mexican food, and Ceasar Salad from Panera Bread. 

She loved Christmas music. 

But, I will never know her favorite color, or if she would have been tall like me. What color eyes would she have had at Landon’s age? These are things I will always have to wonder about. I will get to see Alden become her own person, and every single day I am so thankful for that, but you know what? It still stings. I am not ok. I am not “better” because she is here; I am different, sure, but not better. My life will never be “better”- I’ve lost a child and that is something you cannot replace. 

Alden does not take Kenley’s place in my life or in our family. 

I read a quote the other day that said “I think hell is something you carry around with you, not somewhere you go”.  

This rings so true with me. No matter the happiness I feel, no matter the joy and light that Alden brings to me, or the length of time that passes since Kenley’s birth, the scars of going through the deepest darkest  hell are still going to be there. I will be carrying the aftermath, my new life, the “hell”,  with me forever. 

Forever. 

This is my life, forever. Nothing can ever change that. Nothing can bring Kenley back, so this is it. 

I am the parent of a dead child. 

Forever. 

t-ball.

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On Wednesday night I got a voicemail from Landon’s t-ball coach. He told us that Landon’s team had practice this Saturday @ 11am. It’s been raining for 3 days, and I’m pretty sure that practice is going to be canceled tomorrow (not to mention it’s freezing cold for May).  Shane and I went out the next day to buy him new cleats and baseball pants while he was at School.

I was doing dishes tonight and my mind got to thinking about last t-ball season. After one of the first practices last year is when I started my blog. I think about how fresh in my grief I was, and about the things that bothered me then. If I’m being honest, not much has changed. I know a lot of people think that by now, at 16 months and 6 days after our daughter was stillborn, we should be feeling better, but the sad truth is we’re just not. I don’t know that we will ever “feel better” as I’m pretty sure this isn’t something you learn to feel better about. I think about how I was so upset seeing the family who had 3 kids perfectly spaced out…and that stings even more this year in some odd way.

Three kids.

I have 2

but…I have 3.

And this year, we’re on a team where no one knows our family’s story…

I’m not looking forward to all the families- the normal families- at these events. There were more strollers at the games last year than I could ever count. Now this year, I have to witness the little girls running around that would be Kenley’s age. I just don’t know how your heart is supposed to handle these things…year after year…

I know it’s a lifetime thing, and someday I’m sure i’ll be less aware of the ages of these children, but for now it just fucking sucks. And it sucks a lot.

I’m very excited to have Alden here, safe, in my arms. I’m excited that she gets to come to Landon’s t-ball games and he gets to show her off to his friends. I’m thrilled that I feel stressed out about having two kids and often having to take them alone to Landon’s games as Shane will be working…but…

There will always be one missing. It feels weird to say that because who knows, maybe there wouldn’t always be one missing per se. If Kenley had lived, we wouldn’t have Alden- we were done. If Kenley had lived things would be different. If Kenley had lived, I would be chasing around a 16 month old and she would be eating popcorn and waving at her brother while he’s on third base putting dirt in his glove instead of paying attention to the ball.

So many If’s associated with loss, and it’s just so sad to think about. I don’t like to let my mind go there because it’s too sad and painful. I can’t even do the “May we all heal” prompts this year. I’m pretty sure my grief has just become a part of me now; it’s now deep in my bones where it will stay for the rest of my earthly life.

I think my grief is so intense that I cannot allow myself to think about it because it will straight up kill me.

Imagine having to live every day knowing that you cannot see one of your children. Ever again.

Imagine waking up to their photo- in which they are dead-  instead of their face.

Imagine thinking about the day they died every. second. of. your. life.

Imagine thinking if you had gone to the Hospital that morning instead of waiting that she could be here, she would be alive, they could have saved her because the doctor said she had only been gone for less than 3 hours.

Imagine having to choose one of your children to live without.

It’s enough to kill you, isn’t it?

 

rational brain=non existent

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I’m pretty sure that the last two weeks of this pregnancy are going to just drive me absolutely up the wall crazy. Since last Wednesday when I posted last, I have gone off the deep end it feels.

Thursday we had our NST, and it was CAKE…like nothing has ever gone so smooth in my life kind of cake. We walked in, I peed in a cup- all was good, I lost two lbs, blood pressure was like ridiculously perfect, and Alden was kicking the NST’s ass. We were in and out within what felt like 30 minutes. After, we went to Panera bread and enjoyed a nice relaxing lunch. I love Thursdays with Shane because we always get lunch together and it’s just so relaxing to be with him.

So, fast forward to Friday. Landon is in school, and my mom came to visit for the weekend. Everything is going well, but just somewhere in the back of my mind I feel super uneasy. I think the closer it is getting to d-day, the worse I’m feeling. Saturday I convinced myself that she wasn’t moving “right”, or that her pattern was different. Of course this caused me to spiral and push on her a bunch to see if she would move (which she did). I would get so close to saying I had to go into L&D, then she would move enough for me to feel confident in her being alive.

Saturday night however was a different story. She didn’t move while I laid in bed with Shane watching tv. She didn’t move when I rolled on my back, or my other side. In the tiny little rational part of my brain I have left I’m thinking, ok…she is sleeping so much right now, everything is fine. It’s constantly overshadowed by the giant irrational (read: totally legit) part of my brain that says  OMG. IT’S BEEN FOREVER SINCE YOU FELT HER MOVE. GET UP. GO TO LABOR AND DELIVERY. GO NOW. WHO CARES IF YOU CAN HEAR HER HEART BEAT ON YOUR DOPPLER. THAT’S NOT GOOD ENOUGH.

Saturday night I slept like SHIT. I was up 4 times to pee, and one of those times I was woken up by a contraction that hurt like hell.

Oh and at 4:45 am that “legit” part of my brain made me use my doppler to hear her heart beat.

FOUR. FOURTY. FIVE. AM.

Tomorrow it will be 16 days until she’s here. Kenley died a week before her scheduled c-section date. I cannot stop thinking about how were coming up on that date. Sure, this is a different pregnancy, and things are different this time yada yada yada, but honestly? Things are so much worse this time. Before, I was excited. I wanted to let her cook in there as long as she could! I asked for a c-section at 38 weeks and was told no. If my doctors would have agreed, she would be here. They had no reason to not agree.

This time, my MFM is willing to take her at 37 weeks, and I’m pretty sure I’m going to beg her to take her at 36, or 36.3 I don’t know, just something. She needs to come out while I know she’s alive. I didn’t know that Kenley wasn’t alive. It was so unfair, and cruel. I want to be able to say that this isn’t driving me insane, or that I’m handling it super well, but the truth is I’m not.

My anxiety is overwhelming. My fear of losing this child has become to much. I am excited for Alden to come…but what if she doesn’t get to come home with us? What would I do? People are taking time off of work for her arrival- just like with Kenley- and what happens if she doesn’t survive. It’s all too much.

Tomorrow we have an NST followed by a Growth Ultrasound and an appointment with my MFM. She is so reassuring, so I know she will calm me down, but I really really hope that she considers my mental health when I ask her if we can go any earlier.

I’m sure she’ll say no and try to talk me down…but I feel like my concerns are valid and my opinion matters.

Having a baby should not be this god damn hard.

NSTptsd.

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Yep. It’s a real thing, at least it should be a real word anyway.

Yesterday at our first NST of the week, Alden decided she would be a super jerk and not let the nurse find her heart beat right away. And, by right away, I mean it took THREE WHOLE MINUTES to find her heartbeat. Sure, 3 minutes doesn’t seem like a long time, but remember the standard NST testing hook up is how we found out Kenley died. That was the longest probably 10 minutes of my entire life…

So, I’m sitting there… the nurse says “ok lets have you roll toward me” (I do) still no heartbeat.

Lets have you roll on to your other side (I do) still, I hear nothing.

I’m feeling her move inside me, or so I think; I thought Kenley was moving, too, but I was horribly mistaken.

I say, “ok let me lay flat on my back for a second because sometimes when I do that she moves and brings herself pretty close to the surface and we get her heartbeat”.

I lay flat. NOTHING. 

I lost it; I cried and was shaking so much we had to turn the machine down because it was so loud. I’m sorry, but there is only so much you can handle! I had reached my limit about 20 seconds after we couldn’t find her heartbeat in the beginning so the nurse is lucky I held out as long as I did.

Finally, we got it. It was faint and sounded super distant. I don’t know what she was doing in there (besides stressing me the hell out) but she just kept her distance. We were finally able to get a good trace on her, and she passed with flying colors, as per usual.

After the nurse left to let my MFM read the strip, I lost it again. Shane could tell I wasn’t holding it together very well, and I could tell he was a little stressed out too. He swears he heard her faintly in the beginning, and that the Nurse was never worried…well, I sure as hell was (and I know he’s lying and was scared half to death too…) 

So the rest of the appointment I was scared. I wanted to just cry to my MFM and beg her to take Alden now. Please god just take her while we know she’s still alive. I know that she will be fine on the outside. What if my body kills her again between now and the time she’s supposed to come? Kenley died 7 days before her scheduled c-section date, so what am I supposed to do around that time with Alden? I’m pretty sure I’ll either be at an NST, in Labor and Delivery getting monitored, or I’ll be sitting here with my doppler on my stomach listening to her heartbeat all night.

I talked with my MFM, and told her I had been having some Braxton Hicks contractions, and that they pretty much happen every time I stand up. I sit down, and they eventually go away after a few seconds. I drink tons of water, so I know I’m not dehydrated. She told me that if they increased, or the pain intensified that I should head to L&D. She didn’t seem too worried about them, but I go for another NST on Thursday and so far today they have been happening again so I will mention it to her.

She told me that she had put her cell phone number in my chart so that if I end up at labor and delivery in the middle of the night they know to call her for delivery- That kind of freaked me out I won’t lie! We also discussed that I need to stop Lovenox 12 hours before I deliver because if I don’t, they won’t give me a spinal due to bleeding risks, and I’ll have to be put under. I would just lose my mind if I had to be asleep for her birth! Not cool!

I have been trying my hardest to not let my mind get the best of me, but the NST just pushed me over the edge. I don’t know how I’m going to get through the next 20-something days. I really don’t know.

On a happy, less neurotic, note- Alden now has a light fixture for her bedroom!

lydia-flushmount-chandelier-c

 

 

30 days left.

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We had an NST today, and Alden was once again an over achiever. They want to see 2 accelerations in 2o minutes- she had 10. I’m so thankful that she is proving to me she is healthy, and active but damn I can’t wait until she is earth side and in my arms. While we were sitting there listening to her heartbeat (which, by the way is computer generated and not the real noise… I feel like I’ve been lied to!) I looked over at Shane and told him that I cannot wait to see him holding Alden. He was sitting so close to me, keeping a hand on the monitor because he wanted to make sure we were getting a good reading (her heartbeat wasn’t showing up strong so the nurse suggested I keep a hand over top of the monitor).

I am so thankful for him. I know I say it a lot, but sometimes it just hits me really really hard how much I love him. He really can’t wait for her to be here, and I am so excited to watch him be a Father again. I wanted to watch him Father Kenley, but I get to see that done in different ways. I know that he is going to love this little girl so much. I just can’t wait. I can’t wait to see Landon interact with her, too. Ugh, my heart is exploding just thinking about it! I know she will bring so much joy to our lives, and I am genuinely looking forward to that, but I am still so scared of Kenley being forgotten.

Tomorrow is Valentine’s day. Last year on Valentine’s day I remember sitting on the edge of my bed, in my robe, crying- no sobbing more like it, and thinking about how this was supposed to be Kenley’s first real holiday. I had gotten a cute little onesie for her to wear as an xmas gift; It say’s “Daddy’s Sweetheart”. I was looking through the clothes in the closet the other night when I came across it. It sent chills down my spine. I wanted to rip it out of the closet and throw it in the trash, yet at the same time I couldn’t stand to look at it long enough to even remove it. I’m not too sure what will happen with that outfit…

Last year at this time- specifically Valentine’s day- I did not want to be alive. I remember thinking about how badly I wanted to be with Kenley. I would never actually kill myself, but I remember thinking how sad I was, how lonely I was. I was in the raw grief period, and that period is like no other. There is no way to prepare someone for the darkness that you feel in the early days after a loss. It’s indescribable. I knew I needed help, so I called up some therapists and scheduled an appointment with one. I am so proud of myself for doing that because honestly? I could have literally laid down in bed and refused to get up again because that’s how awful I felt. I STILL feel that way sometimes.

I (we) saw a therapist until August, when all of a sudden one day it just didn’t feel right to go anymore. Shane and I agreed that we felt like we were just wasting money by seeing the therapist, not that she wasn’t a great one, but just that we were at the point in our grief where we could lean on each other. Before, it felt like I needed someone to hear everything I had to say, all the time, and I would sometimes lay it on thick to Shane (who was also grieving but wanting to make things easier on me so he would just listen to me cry for hours when that wasn’t fair to him). I can honestly say that I feel 100% not seeing a therapist anymore. There are days where I feel the darkness heavy inside of me, but I can battle that now. I know when it comes that it will pass, and I know why it’s coming- be it a trigger, or just a bad day.

Losing Kenley was a terrible, terrible thing. I think I can confidently say that losing a child is one of the worst- if not THE worst- things in the world. People think that just because you didn’t “spend time” with the child you lost, that you should heal quicker and move on; just the notion of that makes zero sense to me. Where in these people’s minds do they think it’s okay to expect, well, anything from a Mother who lost a child?

I text with a group of loss moms (Hi! I love you all!) and we were discussing God + losses today. We’re a pretty open minded bunch, and a few are religious (while a few aren’t) so this  next stuff isn’t some anti-christ opinion here. Anyway, we were discussing the things that people say to you after a loss, specifically when someone tells you that “it’s God’s plan”.

First off, no. Just no.  Yikes. Like…do you not realize what that sounds like? It sounds like you are telling a person who’s CHILD JUST DIED that God intended that to happen? Like he specifically chose that person and said ok, that baby won’t live. Just does not make sense. Also, there was another comment and it was greeted with a reply from one of the women who said “Ask that woman which one of her children she would like to give back” and that makes so much sense. People say things, such as “God needed another angel” (this saying makes me cringe deep into my soul) with intention of making you feel better, when really it’s just making THEM feel better (fuck if I know how it makes ANYONE feel better???). When you say God needed another angel, you’re telling that person “God” wanted your baby more than you deserved it. So, because he’s “God” he should just get what he wants. What about what you want? The chance to raise your baby (in a faith that serves him NONETHELESS!!!). 

Bottom line, don’t say dumb shit. Like, before you open your mouth, take FIVE seconds, and really, really think about if what you’re going to say is REALLY going to make this person (not yourself) feel any better.

Chances are, the answer is no because there is no comforting a child loss mother.

There just isn’t. 

This post really went all over the place.

Dresser. 

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Today was the day. 

We painted over the color I spent months trying to find for Kenley’s dresser. When I found out I was pregnant with a girl, I looked at probably 8 different shades of coral.  I knew this one was it when I saw the paint chip. It was pink without being salmon, and orange without being too much like an apricot. 

It was perfection. 

And now, it’s gone. I know you’re thinking it’s “just” paint, and it’s “just” a dresser, right? Wrong. It was for my baby girl. I knew in my heart that some day I would tell her how long it took me to find that perfect color for her; I knew one day she would grow up and tell me how much she loved it. 

Shane told me a while ago that he would paint it for me after I had a major melt down while talking to him about it. But, somehow, it has been pushed to the back of the to do list. I know it’s extremely hard for him, and we talked about it today. Before we started painting I was crying just thinking about actually doing it. Guilt. So much guilt and sadness. 

He looked at me, grabbed my hand, and said “we will do it together”. 

I am the luckiest woman alive, I believe. 

So, together, through many tears on my part, we painted her dresser. We painted our daughter’s dresser; our second loved and oh so wanted daughter. 


Shane also painted her name letters yesterday, as well. They are gold, but l know they don’t look like it here. 

Painting her dresser, their dresser, was extremely emotional. The dresser is the last piece of “Kenley’s nursery” that we had left. The last remaining specific decor piece and it just felt like someone put that final nail in my coffin for lack of better words. They just reminded me that my daughter is gone, and she will NEVER be alive to enjoy the things I created for her. 

That…is a really really hard pill to swallow all over again. 

It seems like once a day I have to deal with something reminding me that she’s gone. Not just when I open my eyes and see her picture on my nightstand instead of her sweet face. Not when I feel her abscence in the silence of every day life. Not even when I walk by my dresser and see her urn, memory box and the bear I have that weighs as much as her. 

I’m talking a gut wrenching reminder that she is not here. 

Like when your insurance lists her as “deceased” on their website…with one date next to her name. Never to have a single claim billed for her medical care. 

Or when they deny coverage of the blood tests that ultimately proved you have a blood clotting disorder that killed her. 

Or when your son says he’s scared for the new baby because he “doesn’t want her to die, too”. 

I’m scared for the new baby too, buddy. 

I’m so incredibly scared. 

32 weeks today. 5 weeks to go. 

six.

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Last year, on 2/7, Landon turned 5. I remember (before Kenley died) spending so much time thinking about how “stressed out” I was going to feel for his birthday party. How was I going to throw it all together when I had a newborn? How was I going to make it special for him with his new sister in the mix? I had plans to have him Paw Patrol party, and I was going to dress Kenley up as one of the dogs to surprise him. Instead, the reality of the situation was, how can I walk through party city and buy paper plates without bursting into tears (I couldn’t)? How can I function enough to make this day special to him because his sister just died and isn’t here to celebrate with us (still not sure I succeeded).

It’s stuff like this that I really kick myself for. Sure, I didn’t know that Kenley wasn’t going to survive, so technically I shouldn’t beat myself up for that. However, I should have been thinking about all the awesome ways that I would be spending Landon’s birthday with him AND his sister- not how stressed out I was going to be. How dumb and naive I was.

This year, as Landon’s birthday started to creep closer, I found myself on Amazon. What can I buy on Amazon so that I don’t have to go to the store (read: so I can avoid a panic attack/PTSD flash backs)? I found everything online. I didn’t have to go to a store, and I found that I was better able to control my anxiety here at my house vs actually walking into the store again.

*Side note*

You know, as I sit here and write these things out all I can think is “god people probably think I’m a giant loser cry baby”…

That’s totally fine.

Think whatever you want to think about grief, but, try not to judge us who are grieving the death of a child too harshly. And, I hope with all of my heart that you never ever have to grieve the way that I am.

Anyway, I am pretty happy with how everything has turned out. He’s having a minecraft party, so I was able to buy a lot of the stuff on Etsy, which was cool.

So here we are again, at a birthday milestone. Six. He is going to be six. He was turning 5 and so excited for his sister to be there, and I couldn’t even give him that. Sure I’m pregnant now and things are looking good for her to come very soon, but let’s be honest here…I’m pretty sure his little mind doesn’t understand if he will ever get a real living sibling. I can try to explain it to him over and over, but, I’m sure he won’t believe it until she’s here either.

Can’t say that I blame him.

 

 

What I wish people knew about losing a child.

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It feels like such a cop out to say “you will never understand how it feels until it happens to you”, but that is the only way to properly convey this type of pain.  Many can only sympathize, and there are few that can fully empathize with the pain. I believe truly that it is too hard for people to actually empathize because no one wants to put themselves in our shoes. Why would they? Why would anyone want to truly try and feel the pain that accompanies losing a child? I’ve been thinking about a few things regarding what I wish people knew about losing a child, so I decided I would write about them here. What better place, right?

 

• Just because time passes, doesn’t mean that I am (or things are) better.

The grief of losing a child is not linear. There are days where I feel great, and there are days where I honestly wish I could just be with my Daughter at all costs. The pain will never “go away”.  Sure, it might lessen, change, or I might just become better at carrying my grief on a daily basis, but it will NEVER go away. If you think by looking at me that I’m feeling better, you’re terribly mistaken. I am missing my Daughter; she died inside of me and I couldn’t do anything to save her. It’s not a pain that someone gets over, ever. The guilt is no joke.  The love I have in my heart for her is not a flame that can be put out, and I would hope that everyone understands that. I will grieve differently day to day, from now until the day that I die, and people need to understand that. Sometimes you should really just give me a fucking pat on the back for even getting out of bed.

Yes. Still. Even after a year. And probably for the rest of my life.

 

• Losing a child doesn’t have to destroy your marriage like statistics say.

One of the scariest statistics I read after our daughter was stillborn was that up to 80 percent of marriages end in divorce after the loss of a child. I remember reading this percentage, and then re-reading it, to convince myself that I’d read it correctly. 80 percent?! Was that even possible?–Paul (a guest post on still standing)

After Kenley died, I never wanted Shane to leave my side. I had to be held at night to sleep. I needed him to be near me at all times. He was my security blanket, for lack of better words, and still is. I know that many people feel differently about their relationships after loss. Some women feel that their husbands are “over” the loss, or that their feelings aren’t taken into consideration. I’ve personally talked to many loss moms who feel this way. Some say that their relationship suffers in that they can’t talk about the loss to their husbands, for whatever reason. Some mention they don’t feel attractive to their husbands anymore, which makes their sex life suffer, which inevitably makes them feel sad and alone.

I asked Shane’s opinion on the subject and he had some really interesting things to say. He mentioned to me that there were times around the 5-6 month mark where he started to feel better, but I was still feeling intense sadness. He told me that he remembers making a decision to never make me feel bad for feeling how I did. He would consciously make an effort to allow me to cry if I needed to, and to not get frustrated if I was having a bad day, and he wasn’t. I’ve read that some spouses feel resentment toward their spouse for having bad days (while they are having a good day), and “bringing them down”; Shane agreed with this, and even offered up a few times that he felt that way.

We also discussed opening up to your spouse. If you’re feeling something, there is a really good chance that they are feeling the same way too. The triggers, the grief, it’s all different for everyone, but who can you relate to better than the other person who is feeling the loss of your child as intensely as you are? Don’t keep it bottled up.

This is why I love my Husband. He is open with me about this stuff; the real stuff that sucks to talk about. He knows he can tell me anything, and that I will not be offended that he may have been angry at me one day when I had a bad day and he didn’t. It’s okay to have bad days– your child died, it’s fully expected. We both wanted our marriage to work after the death of Kenley; Living without one another was never an option. It’s been different, sure, but in a good way; our relationship is stronger. I can sit here and honestly say that I have NEVER once felt like a divorce was even an option for us and Shane agrees with this 100%.

 

• Just because we are expecting again does not mean this baby will replace the child we lost.

I’ve read a lot (A LOOOOOT) online about rainbow babies. I’ve read that they can bring you intense joy; joy you never expected to feel again. I’ve read that loss moms can experience a wave of emotions when they finally hold their rainbow baby. Emotions that they’ve been suppressing for months while carrying their rainbow. The raw grief comes out full force again. When my Daughter is born (even saying the word “when” is hard because I cannot guarantee she will come into this world alive) I fully expect to feel a million emotions. This pregnancy has not been “normal” and her birth will not be normal. Subsequently her life will be as normal as I can manage to make it (while I always live one foot in joy, and one foot in sorrow). She will know about her older sister, and I will always make it a point to not let Kenley’s death shadow the birth of her. But, I’m sure it will be extremely hard.

Kenley was planned. She was wanted, and we tired for a really long time to conceive her. For her to be ripped away from us, so close to her birth, is cruel in ways that I have no words to explain. This baby will not take that sadness away from us. I will still be sad, but will have a living baby to hold. I will still walk into the nursery and think of the child who never got to see it. I will dress this baby in Kenley’s clothes, all the while knowing that they are brand new hand-me-downs. Life is never easy; life after grief is even more messy.

 

• PTSD in relation to losing a child is very real.

There have been many times since losing Kenley where PTSD hits me hard. I know there are people out there who think this (and all mental health issues) are not real; that they don’t deserve to be talked about and we should be ashamed of them. Well, those people are assholes. Those people have never had a bad day in their life, so its inconceivable that others could possibly feel anything other than great. There have been nights where I lay in bed, reliving the worst day of my life while listening to Shane’s rhythmic breathing as he sleeps next to me. It doesn’t matter what I do, I can’t stop my brain from taking me back to that triage room, and hearing the words.

Yesterday in the shower I was rinsing my hair and it hit me like a ton of bricks. I saw myself in the hospital shower, having to be washed by my husband because I physically could not move my arms due to shock. PTSD has no mercy. It hits you whenever it damn well pleases. Shane chimed in on this subject as well. He told me that he’s noticed it’s a lot harder than he ever expected it to be when co-workers and friends talk about their newborns or grandchildren. He went on to say that you want to be included and don’t want people to feel awkward talking about these things in front of you, but at the same time it’s extremely hard to hear. I think he was truly surprised at how sad/anxious he felt when he experienced his first “trigger” out side of the normal ones (babies in the store, etc etc). It goes to show you that PTSD can affect anyone, anywhere, anytime.

I found this on Grief Speaks and I think it’s an important piece to add to this post just incase someone is wondering if they might have PTSD related to child loss:

What are the symptoms of PTSD?
PTSD can cause many symptoms. These symptoms can be grouped into three categories:
1. Re-experiencing symptoms:
  • Flashbacks (reliving the trauma over and over, including physical symptoms like a racing heart or sweating)
  • Bad dreams or nightmares
  • Frightening thoughts     

2.  Avoidance Symptoms:

  • Staying away from places, events, or objects that are reminders of the experience
  • Feeling emotionally numb
  • Feeling strong guilt, depression or worry
  • Losing interest in activities that were enjoyable in the past
  • Having trouble remembering the dangerous event        

Things that remind a person of the traumatic event can trigger avoidance symptoms. These symptoms may cause a person to change his or her personal routine. For example, after a bad car crash, a person who usually drives may want to avoid driving or even riding in a car.

3.  Hyperarousal symptoms:

  • Being easily startled
  • Feeling tense or “on edge”
  • Having difficulty sleeping, and/or having angry outbursts                                                                                                                                                                                                                        Hyperarousal symptoms are usually constant, instead of being triggered by things that remind one of the traumatic event. They can make the person feel stressed and angry. These symptoms may make it hard to do daily tasks, such as sleeping, eating or concentrating. It is natural to have some of these symptoms after any dangerous event. Sometimes people have very serious symptoms that go away after a few weeks. This is called acute stress disorder, or ASD. When the symptoms last for more than a few weeks and become an ongoing problem, they might by PTSD. Some with PTSD don’t show any symptoms for weeks or even months. 

 

• Some things are always going to be hard for us now.

Seeing babies, attending Holiday functions, or get togethers, or seeing children around/younger than Kenley’s age are just a few things that will always be hard for us. Like our Grief, I’m sure these things will change in intensity, and possibly become less triggering as time goes on. This, however, does not mean that I want to see your “baby bump” photos, or that I am ok with seeing your child who was born after my child died. There are few women who I am ok with seeing the above things, and they know who they are because I’ve told them.

I don’t mean to sound like an awful person, but it is what it is. I didn’t make the rules of grief, people. I know that there are some people who understand us not wanting to be around their children, and they respect that. I am so thankful for those people. Then, there are people who think it’s okay to send you a Holiday card with their newborn baby’s photo on the cover. THIS IS NOT OK. This has not happened to me, thank sweet baby Jesus, but it has happened (more than I can actually believe) to friends of mine who have lost their children. Getting a photo of your newborn child, on what should be our child’s first Christmas, is not something that should happen-ever.

Please tell me on what planet that is ok? Oh wait, you can’t because it’s not.

I’m pretty sure I won’t ever send out Christmas cards again due to the fact I think I jinxed my pregnancy with Kenley by including her name before she was born.

I know that grieving a child comes in all different shapes and forms. I know that everything I posted won’t necessarily apply to you, and your situation, but if even one person reads this and feels like they’re not alone, my job is done. That’s why I started this blog. I need people to know that they are not alone. There are so many women who came before me, and unfortunately, there will be so many who come after me.

You are not alone.

 

 

 

netflix.

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I am so thankful that we have Netflix; I have been binge watching tv sitcoms for like, 5 weeks now. It started when a few friends told me to watch parks and rec. I had already started earlier this year, but I finished up the rest of the seasons and loved it. I found that it kept my mind super occupied, and that’s what I needed. I’m currently watching the office again; you can never get enough Pam and Jim love story.

I’ve found that since I hit 28 weeks, my mind is sort of off the charts. I think it’s been getting harder since we started buying big ticket items for Alden. We had most everything we needed for Kenley, like…literally everything. Her dresser is stocked with diapers, wipes, lotions, you name it. All things were ready for her to come home, and she didn’t. I think I feel like I’m jinxing myself, which I know is not a rational thing. Me buying a stroller does not mean that my baby is going to die. But, I’ll tell you what…it sure fucking feels like it.

We got the glider picked up, and it’s officially in our bedroom, which terrifies me (just the whole jinxing thing…). It’s so freakin comfortable and I’ve sat in it a few times. It’s right near our window, so it’s relaxing. We are scheduled to have the nursery painted on Monday morning, and I need to take down artwork, and her name banner. I’m not very excited to do this. It’s going to be super hard, and I’m feeling stressed and anxious about it.

I went into the nursery tonight while Landon was in the shower. I sat in the rocker, and just started to cry. Everything hit me at once. I don’t want to take it down, I don’t want to paint, I don’t want to see her dresser painted another color.

It’s just not fair.

I want my baby girl back.

Life is unfair. 

Today is the 2nd anniversary of our first miscarriage’s due date. I should have a two year old. 

It’s funny how fucked up life is. 

27. 

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I’m officially done with grocery shopping at this point in pregnancy. There came a time during Landon and Kenley’s pregnancies where it was just too much to walk around for 2 hours, loading the cart, unloading, reloading and unloading and putting away the groceries…that time is now during this pregnancy. 

I started getting some RLP the last few aisles but powered through, but when I got in the car my stomach was as hard as a rock. Chugged some water when we got home, and laid down (read: freaked out and used the Doppler)  while Shane unloaded the car and put the groceries away. I don’t know if I didn’t drink enough water today or what but I HATE feeling like that. 

Tomorrow Landon goes back to school after being off for the Holidays. It’s bittersweet because I love spending time with him, but also I played more Uno, and Monopoly Jr than any human should in the last few days so…I’m kinda ready. 

Tomorrow marks my 27th week of pregnancy. Some people consider this to be the start of the 3rd Trimester.

 THIRD. TRIMESTER. 

There are only three; this is the LAST. Um excuse me? How is this possible. 

How has it been a year since I lost my first daughter, and now I’m entering the home stretch of a subsequent pregnancy for my second daughter…who will (hopefully) be my only living daughter. 

Life is just like a really bad rollercoaster. 

Life is like the fucking corkscrew at Cedar Point. 

Tomorrow at 10:30 Shane and I are having an elective 3D/4D ultrasound. We’ve had them with our other two pregnancies so, I decided it was 100% necessary for this one as well. I know some people think they’re creepy, but I love them. Both of my children have looked IDENTICAL to the 3D scans. It’s amazing. 

I’m both excited and nervous; more nervous that Baby A is going to look identical to Kenley. I’m not sure how I’ll react, but I plan to be open with the tech when we get there and s/he (undoubtedly) asks if this is my first baby/scan/child/ some other question that’s going to sting.  Also, I’m pretty sure I’m going to warn her, before I even lift my shirt, that my stomach is bruised all to hell from lovenox and to not be afraid/call the cops on me. 

Back in December I ordered curtains for the Nursery. Today they showed up, and I felt my heart drop a little. I don’t want to disassemble the remnants of “Kenley’s” nursery, but slowly it is happening. 

It’s becoming Alden’s room now. 

The curtains are adorable and I love them, but seeing Kenley’s curtains come down was a really sad moment. All of my moments anymore are sad & happy simultaneously and honestly, that is a lot to handle for one persons heart. I folded up Kenley’s curtains and placed them on her rocker. I’m not sure where I’ll put them, but eventually I’ll be able to find a place. 

Shane once said to me that there will be a time where we look at Alden and we won’t know how we would ever survive without her; that we won’t know our family any other way than WITH her in it. 

While I completely understand what he is saying, it breaks my heart that I will always have to wonder how my life would have been with Kenley in it…here, physically, not just in my heart. 

Fuck. Grief and Loss are so incredibly hard to navigate.