bornstillisstillborn

NSTptsd.

Posted by

2

Yep. It’s a real thing, at least it should be a real word anyway.

Yesterday at our first NST of the week, Alden decided she would be a super jerk and not let the nurse find her heart beat right away. And, by right away, I mean it took THREE WHOLE MINUTES to find her heartbeat. Sure, 3 minutes doesn’t seem like a long time, but remember the standard NST testing hook up is how we found out Kenley died. That was the longest probably 10 minutes of my entire life…

So, I’m sitting there… the nurse says “ok lets have you roll toward me” (I do) still no heartbeat.

Lets have you roll on to your other side (I do) still, I hear nothing.

I’m feeling her move inside me, or so I think; I thought Kenley was moving, too, but I was horribly mistaken.

I say, “ok let me lay flat on my back for a second because sometimes when I do that she moves and brings herself pretty close to the surface and we get her heartbeat”.

I lay flat. NOTHING. 

I lost it; I cried and was shaking so much we had to turn the machine down because it was so loud. I’m sorry, but there is only so much you can handle! I had reached my limit about 20 seconds after we couldn’t find her heartbeat in the beginning so the nurse is lucky I held out as long as I did.

Finally, we got it. It was faint and sounded super distant. I don’t know what she was doing in there (besides stressing me the hell out) but she just kept her distance. We were finally able to get a good trace on her, and she passed with flying colors, as per usual.

After the nurse left to let my MFM read the strip, I lost it again. Shane could tell I wasn’t holding it together very well, and I could tell he was a little stressed out too. He swears he heard her faintly in the beginning, and that the Nurse was never worried…well, I sure as hell was (and I know he’s lying and was scared half to death too…) 

So the rest of the appointment I was scared. I wanted to just cry to my MFM and beg her to take Alden now. Please god just take her while we know she’s still alive. I know that she will be fine on the outside. What if my body kills her again between now and the time she’s supposed to come? Kenley died 7 days before her scheduled c-section date, so what am I supposed to do around that time with Alden? I’m pretty sure I’ll either be at an NST, in Labor and Delivery getting monitored, or I’ll be sitting here with my doppler on my stomach listening to her heartbeat all night.

I talked with my MFM, and told her I had been having some Braxton Hicks contractions, and that they pretty much happen every time I stand up. I sit down, and they eventually go away after a few seconds. I drink tons of water, so I know I’m not dehydrated. She told me that if they increased, or the pain intensified that I should head to L&D. She didn’t seem too worried about them, but I go for another NST on Thursday and so far today they have been happening again so I will mention it to her.

She told me that she had put her cell phone number in my chart so that if I end up at labor and delivery in the middle of the night they know to call her for delivery- That kind of freaked me out I won’t lie! We also discussed that I need to stop Lovenox 12 hours before I deliver because if I don’t, they won’t give me a spinal due to bleeding risks, and I’ll have to be put under. I would just lose my mind if I had to be asleep for her birth! Not cool!

I have been trying my hardest to not let my mind get the best of me, but the NST just pushed me over the edge. I don’t know how I’m going to get through the next 20-something days. I really don’t know.

On a happy, less neurotic, note- Alden now has a light fixture for her bedroom!

lydia-flushmount-chandelier-c

 

 

What I wish people knew about losing a child.

Posted by

3

It feels like such a cop out to say “you will never understand how it feels until it happens to you”, but that is the only way to properly convey this type of pain.  Many can only sympathize, and there are few that can fully empathize with the pain. I believe truly that it is too hard for people to actually empathize because no one wants to put themselves in our shoes. Why would they? Why would anyone want to truly try and feel the pain that accompanies losing a child? I’ve been thinking about a few things regarding what I wish people knew about losing a child, so I decided I would write about them here. What better place, right?

 

• Just because time passes, doesn’t mean that I am (or things are) better.

The grief of losing a child is not linear. There are days where I feel great, and there are days where I honestly wish I could just be with my Daughter at all costs. The pain will never “go away”.  Sure, it might lessen, change, or I might just become better at carrying my grief on a daily basis, but it will NEVER go away. If you think by looking at me that I’m feeling better, you’re terribly mistaken. I am missing my Daughter; she died inside of me and I couldn’t do anything to save her. It’s not a pain that someone gets over, ever. The guilt is no joke.  The love I have in my heart for her is not a flame that can be put out, and I would hope that everyone understands that. I will grieve differently day to day, from now until the day that I die, and people need to understand that. Sometimes you should really just give me a fucking pat on the back for even getting out of bed.

Yes. Still. Even after a year. And probably for the rest of my life.

 

• Losing a child doesn’t have to destroy your marriage like statistics say.

One of the scariest statistics I read after our daughter was stillborn was that up to 80 percent of marriages end in divorce after the loss of a child. I remember reading this percentage, and then re-reading it, to convince myself that I’d read it correctly. 80 percent?! Was that even possible?–Paul (a guest post on still standing)

After Kenley died, I never wanted Shane to leave my side. I had to be held at night to sleep. I needed him to be near me at all times. He was my security blanket, for lack of better words, and still is. I know that many people feel differently about their relationships after loss. Some women feel that their husbands are “over” the loss, or that their feelings aren’t taken into consideration. I’ve personally talked to many loss moms who feel this way. Some say that their relationship suffers in that they can’t talk about the loss to their husbands, for whatever reason. Some mention they don’t feel attractive to their husbands anymore, which makes their sex life suffer, which inevitably makes them feel sad and alone.

I asked Shane’s opinion on the subject and he had some really interesting things to say. He mentioned to me that there were times around the 5-6 month mark where he started to feel better, but I was still feeling intense sadness. He told me that he remembers making a decision to never make me feel bad for feeling how I did. He would consciously make an effort to allow me to cry if I needed to, and to not get frustrated if I was having a bad day, and he wasn’t. I’ve read that some spouses feel resentment toward their spouse for having bad days (while they are having a good day), and “bringing them down”; Shane agreed with this, and even offered up a few times that he felt that way.

We also discussed opening up to your spouse. If you’re feeling something, there is a really good chance that they are feeling the same way too. The triggers, the grief, it’s all different for everyone, but who can you relate to better than the other person who is feeling the loss of your child as intensely as you are? Don’t keep it bottled up.

This is why I love my Husband. He is open with me about this stuff; the real stuff that sucks to talk about. He knows he can tell me anything, and that I will not be offended that he may have been angry at me one day when I had a bad day and he didn’t. It’s okay to have bad days– your child died, it’s fully expected. We both wanted our marriage to work after the death of Kenley; Living without one another was never an option. It’s been different, sure, but in a good way; our relationship is stronger. I can sit here and honestly say that I have NEVER once felt like a divorce was even an option for us and Shane agrees with this 100%.

 

• Just because we are expecting again does not mean this baby will replace the child we lost.

I’ve read a lot (A LOOOOOT) online about rainbow babies. I’ve read that they can bring you intense joy; joy you never expected to feel again. I’ve read that loss moms can experience a wave of emotions when they finally hold their rainbow baby. Emotions that they’ve been suppressing for months while carrying their rainbow. The raw grief comes out full force again. When my Daughter is born (even saying the word “when” is hard because I cannot guarantee she will come into this world alive) I fully expect to feel a million emotions. This pregnancy has not been “normal” and her birth will not be normal. Subsequently her life will be as normal as I can manage to make it (while I always live one foot in joy, and one foot in sorrow). She will know about her older sister, and I will always make it a point to not let Kenley’s death shadow the birth of her. But, I’m sure it will be extremely hard.

Kenley was planned. She was wanted, and we tired for a really long time to conceive her. For her to be ripped away from us, so close to her birth, is cruel in ways that I have no words to explain. This baby will not take that sadness away from us. I will still be sad, but will have a living baby to hold. I will still walk into the nursery and think of the child who never got to see it. I will dress this baby in Kenley’s clothes, all the while knowing that they are brand new hand-me-downs. Life is never easy; life after grief is even more messy.

 

• PTSD in relation to losing a child is very real.

There have been many times since losing Kenley where PTSD hits me hard. I know there are people out there who think this (and all mental health issues) are not real; that they don’t deserve to be talked about and we should be ashamed of them. Well, those people are assholes. Those people have never had a bad day in their life, so its inconceivable that others could possibly feel anything other than great. There have been nights where I lay in bed, reliving the worst day of my life while listening to Shane’s rhythmic breathing as he sleeps next to me. It doesn’t matter what I do, I can’t stop my brain from taking me back to that triage room, and hearing the words.

Yesterday in the shower I was rinsing my hair and it hit me like a ton of bricks. I saw myself in the hospital shower, having to be washed by my husband because I physically could not move my arms due to shock. PTSD has no mercy. It hits you whenever it damn well pleases. Shane chimed in on this subject as well. He told me that he’s noticed it’s a lot harder than he ever expected it to be when co-workers and friends talk about their newborns or grandchildren. He went on to say that you want to be included and don’t want people to feel awkward talking about these things in front of you, but at the same time it’s extremely hard to hear. I think he was truly surprised at how sad/anxious he felt when he experienced his first “trigger” out side of the normal ones (babies in the store, etc etc). It goes to show you that PTSD can affect anyone, anywhere, anytime.

I found this on Grief Speaks and I think it’s an important piece to add to this post just incase someone is wondering if they might have PTSD related to child loss:

What are the symptoms of PTSD?
PTSD can cause many symptoms. These symptoms can be grouped into three categories:
1. Re-experiencing symptoms:
  • Flashbacks (reliving the trauma over and over, including physical symptoms like a racing heart or sweating)
  • Bad dreams or nightmares
  • Frightening thoughts     

2.  Avoidance Symptoms:

  • Staying away from places, events, or objects that are reminders of the experience
  • Feeling emotionally numb
  • Feeling strong guilt, depression or worry
  • Losing interest in activities that were enjoyable in the past
  • Having trouble remembering the dangerous event        

Things that remind a person of the traumatic event can trigger avoidance symptoms. These symptoms may cause a person to change his or her personal routine. For example, after a bad car crash, a person who usually drives may want to avoid driving or even riding in a car.

3.  Hyperarousal symptoms:

  • Being easily startled
  • Feeling tense or “on edge”
  • Having difficulty sleeping, and/or having angry outbursts                                                                                                                                                                                                                        Hyperarousal symptoms are usually constant, instead of being triggered by things that remind one of the traumatic event. They can make the person feel stressed and angry. These symptoms may make it hard to do daily tasks, such as sleeping, eating or concentrating. It is natural to have some of these symptoms after any dangerous event. Sometimes people have very serious symptoms that go away after a few weeks. This is called acute stress disorder, or ASD. When the symptoms last for more than a few weeks and become an ongoing problem, they might by PTSD. Some with PTSD don’t show any symptoms for weeks or even months. 

 

• Some things are always going to be hard for us now.

Seeing babies, attending Holiday functions, or get togethers, or seeing children around/younger than Kenley’s age are just a few things that will always be hard for us. Like our Grief, I’m sure these things will change in intensity, and possibly become less triggering as time goes on. This, however, does not mean that I want to see your “baby bump” photos, or that I am ok with seeing your child who was born after my child died. There are few women who I am ok with seeing the above things, and they know who they are because I’ve told them.

I don’t mean to sound like an awful person, but it is what it is. I didn’t make the rules of grief, people. I know that there are some people who understand us not wanting to be around their children, and they respect that. I am so thankful for those people. Then, there are people who think it’s okay to send you a Holiday card with their newborn baby’s photo on the cover. THIS IS NOT OK. This has not happened to me, thank sweet baby Jesus, but it has happened (more than I can actually believe) to friends of mine who have lost their children. Getting a photo of your newborn child, on what should be our child’s first Christmas, is not something that should happen-ever.

Please tell me on what planet that is ok? Oh wait, you can’t because it’s not.

I’m pretty sure I won’t ever send out Christmas cards again due to the fact I think I jinxed my pregnancy with Kenley by including her name before she was born.

I know that grieving a child comes in all different shapes and forms. I know that everything I posted won’t necessarily apply to you, and your situation, but if even one person reads this and feels like they’re not alone, my job is done. That’s why I started this blog. I need people to know that they are not alone. There are so many women who came before me, and unfortunately, there will be so many who come after me.

You are not alone.

 

 

 

the first year without you.

Posted by

5

It finally came…Kenley’s first birthday.

The days that followed Halloween were brutal. It was like the Holidays were taunting me. I knew where we were at each moment in time last year (How far I was at Thanksgiving/how many days until she was born etc etc…) and so going through each day up until her birthday was really rough. When we went to get our Christmas tree this year, the place we normally go closed before we could get there (Landon started Kindergarten so we didn’t have enough time to get there after he got off school). We had to go to a new place; It was nice, but far less exciting than our normal place.

It felt good to do something different than we had the year before, though– the year when Kenley was safely tucked inside of me, growing and thriving like she should have been. When we put up the tree, I was overcome with intense grief. I cried, and I cried hard. No, let me rephrase that, I sobbed. That deep sob, you know? The one that you have no real idea where it comes from except you know deep down that it comes from a place of pain that no human being should ever have to feel.

Having to put an ornament on my tree in memory of my daughter, instead of having her there to clumsily hang hers (read: tear down the lights/tree/decor) was extremely hard. I was transported back to the Hospital when they told me she wasn’t alive anymore. I felt THAT level of sadness. It wasn’t just that she wasn’t here anymore, it was also the fact that she would NEVER be here. Maybe a realization occurred? I’m not sure.

She will never be able to hang an ornament, instead, for the rest of my life, I will be hanging her memorial ornaments. Do I buy a new one each year? Do I only hang the one that I bought specifically for her? How does a mother handle Christmas decorations when one of her children is no longer with her? There isn’t a guide for how to handle these types of things.

I avoided Christmas music VERY well this year; I think I listened to it maybe 2 times? I’m pretty happy about that, to be honest. I started listening to Christmas music the day after Halloween in 2015 and soon found out that Kenley loved it. She would dance around while it played. Avoidance was my only coping mechanism re: xmas music this year.

Every Christmas Eve, we go to Shane’s family’s get together. We went last year, and I was about to burst- 38 weeks exactly. It was SUCH a great day. I remember people giving us gifts for Kenley, telling me they were so excited for her to get here, asking how I was feeling/how things were going/next doctors appt/squeeing that her C-section date was literally a week away.  A week. Like…ouch. It still stings so deep when I think of that. It stings extra bad when I remember that I asked to have a c-section at 38 weeks 1 day- the day after Christmas- and my doctors told me no. It stings really badly when I remember that the day after Christmas last year I called my obgyn and told them I was having contractions that were able to be timed pretty close together, but the OB thought I “sounded ok”, and advised me that she didn’t think I needed to be seen, but if it made me feel better that I could go.

What kind of bullshit doctor says that? “You sound ok”. Oh good, I’m glad you can register what is happening inside my uterus by the tone of my voice. And for someone to pretty much patronize me by saying “if it makes you feel better, you can go in”, is just something that I will never EVER be able to live down. I hope that this Doctor feels extreme regret for not telling me to go to L&D that night, because who knows what could have been done…

Anyway, this year I didn’t want to go to the annual Christmas Eve get together…but I went for my Landon. I know he needed things to feel as normal as possible. When we got there, I lost it. People hugged us, and I just couldn’t handle it. It was like everything from last year just washed over me. All in all it ended up being a decent night, and I am thankful we went. Landon had an incredible time, and that is what really counts.

Christmas morning wasn’t too bad for me either. I’m not sure why…Maybe it’s because Landon’s joy just overshadowed my sorrow. Seeing him smile is the greatest gift to me, and hearing how excited he was about all of the gifts that Santa got him really really made me genuinely happy. And also, maybe I was actively blocking my feelings out; not thinking that I should have two children on Christmas morning. I should have a little girl crawling all over and being amazing. I’m pretty sure it was 50/50 (ok …70/30).

As the days ticked down to her birthday, I could feel my anxiety ramping up. The plan was to have immediate family over, have lunch, a cake, and a balloon release. I had been talking with Shane for a few weeks about what he wanted to do to “celebrate” (side note- I hate this term. I hate it so much. I’m not celebrating her birthday, for fucks sake, she’s not here. I’m mourning her, and all the things I lost when she died) her day. He’s pretty easy going so he ultimately said “whatever you wanna do”, which I sometimes hate. So, the day before he admits to me that he was surprised I wanted to have people over, and thought it would be nice to just have him, myself and Landon together on the day.

Ugh.

I told him that he needs to tell me these things when I’m asking him for a few weeks at a time. It was too late to cancel everything, and we ended up going forward with my plans. At the end of the night when everyone left, he hugged me tight, told me he was so happy we went through with it and that he had a really nice day. I’m so thankful that I can trust my gut sometimes, and strong arm him into things that I know are ultimately better for us.

We had a christmas gift exchange with my Dad and Sister before everyone showed up at 2 for the “party”. I wasn’t sure that I wanted to do this, as it felt like it was taking away from her, but ultimately I’m glad we did. Then, around 2, Shane’s family showed up. We all just kind of hung out for a little bit, then had lunch. We ate, and decided that we would do the balloon release. Everyone wrote or drew on their balloons (only popped 2!) and then we made our way outside. It was extremely windy, but so clear. Landon counted to 3, and we all let them go. It felt good to watch them float away. I kept my message short and simple. She knows how much I love her, so my balloon was just a small reminder of that.



After, we came inside, and had cake and ice cream. My sister brought a flower arrangement that is so beautiful and reminds me of Kenley in so many ways. My mom bought her a gift which I love. It’s a stuffed fox with a tutu on it, and I plan to keep it in her memory box. A wonderful friend sent over birthday balloons.


After all the commotion was done, we just hung out and talked for a bit. Slowly people started to leave one by one.

All throughout the day I was getting texts from people all over letting me know that she was on their minds, and that she was missed. I woke up to a specific Instagram tag from a woman who lost her son last year about a week or two before we lost Kenley. I don’t know what specifically about her words struck a chord with me, but it sort of set my tone for the day. I think it was what I was meant to see on the morning of her first birthday.


The love and support from everyone really made the day better- not easier by any means- just better.

I missed her more than I could ever explain to anyone, yet, I was so thankful there were so many people thinking of her and our family. Knowing she was and is so loved on her birthday, even after all this time, made my heart heal a little, I think.

I want to thank every single person who got in contact with me somehow yesterday. Your love and support means the world to us, and I believe it is what helped us through yesterday with a little less pain than I expected.

Our lives will never be the same, and I wouldn’t ever want them to be. If they were, I wouldn’t know my sweet girl’s face. I wouldn’t have ever known her hair color, or how her lips looked just like her brothers. I wouldn’t trade her for the world.

I am her Mother; she chose me to be that for her. It’s all that I can do to love her like she deserves, and honor her memory like she deserves.

I love you my sweet girl. Happy First Birthday.

I will hold space in my heart for you until I can hold you in my arms again.

 

 

 

 

realization.

Posted by

1

I took Landon with me today to pick up the last 5 sleepers I needed to buy to have equal amounts of boy and girl sleepers. I told him I wanted him to help me pick them out, so he got right down to business. He has such a huge heart, and wanted to buy everything of course, but he also did something I was so unprepared for.

He picked up a sleeper that came with a bib and said “Mommy, this one is so cute, AND it comes with a bib so it’s perfect for a baby!”…

I felt like someone punched me in the gut.

“IT COMES WITH A BIB”.  

Realistically, I know why I’m buying these sleepers, I know that the children who wear them will not be alive, they won’t need a bib, but I think hearing those words from Landon’s sweet naive mouth really just hit harder than I ever expected. I am so thankful to be fortunate enough to purchase these sleepers for other families, but oh how I wish things were so so different.

7 days until Christmas.

11 days until Kenley’s first birthday.

My heart cannot handle all of this sadness while trying to be happy for my son to enjoy his Christmas.

Kenley, I miss you. My heart is aching without you here, sweet girl. I hope you know how much I love you, and I hope you see all of the good I’m trying to do in your memory.

December.

Posted by

4

Well, it’s here- December. I have been waiting all year for this month. Maybe waiting is a bad way to describe it, more so it’s been looming heavily over my head. As each month passed by and Kenley should have been another month older, I knew it was getting closer.

And here it is. In full force.

And I’m terrified.

We went Tuesday night to get our tree. We were going to go to the place that we use every year, but Landon doesn’t get off the bus until 4 and we found out (the hard way) that they close at 5. Half way there, I thought “damn, it’s getting really dark, I should see when they close” (why this didn’t cross my mind the entire day before we left is beyond me…). So we googled quickly and found there was another tree farm near us. We headed that way, and ended up loving the place. Their trees were pre-cut, but whatever. Maybe it’s a good thing that we didn’t get to go to the old place; maybe it was life’s way of cutting me a fucking break or something, who knows.

Anyway, the tree is super nice. I’m really happy with it, and at $52 vs the $80 tree from last year, I’m a happy camper. When we got home, I knew it was going to be super hard to put it up and decorate. We usually turn on christmas music and have a good time. Shane turned on the music and the lump in my throat came. He asked if I was ok, or if I needed to turn it off, but Landon was enjoying it so I said no, that I was ok. Seeing Landon put up the ornaments really really helped me; he was so excited that it kind of kept me happy. Then it came time to hang Kenley’s ornaments. This was pretty awful, I won’t lie. I cried and felt like I could have just crumbled into a million pieces on the floor. I ugly cried to which Landon told me I looked like I was laughing, which actually made me laugh. Thank god for Landon. He just speaks his 5 year old mind, and makes things all better.

We hung her ornaments, and just enjoyed each other. After we were done, Landon was SO tired. Rudolph was on at 8, and Landon crawled up on the couch with us to watch it. Poor dude, he was struggling to keep his eyes open but we finished it and then he went to bed.

We’ve been decorating a little each day since Tuesday. Today Shane and I spent the day at an antique mall shopping. Oh, you didn’t know that we are secretly 80 years old? Surprise.

We found a bunch of really cool old christmas things, and plan to decorate the front porch with them. Shane wants to make a big letter K to wrap in lights and include on the porch (actually this all started with his letter K idea to be honest…) so I’m excited to see what happens. I don’t want to talk about how much we spent at the antique mall today…I feel ashamed. Just kidding- one of my best days this year by far. We left the antique mall and went to dinner. I was craving a steak so bad, so we hit up outback and it was DELISH. I love spending the day with Shane. He is my best friend, and I am so thankful for him. I swear I could just sit with him all day doing nothing and be happy.

Tonight we pulled the trigger and bought Landon a 4 wheeler for Christmas! I’m so excited! It should be here in like 5 days, but were having it shipped to my mother in laws. I grew up riding them, so I’m excited for him to have one.

My dad is coming to visit this weekend, so hopefully Landon and him will get some good play time in. I know that he misses his grandpa a lot.

I’ve been getting a lot of emails with Kenely’s name in them, and I just want to say thank you to everyone who has sent them to me! I love getting them, and I can’t wait to work on the collage. I also have gotten ALMOST all the rest of the items for my care bags finally! I can’t wait to start working on them. I really really need to work on them. It helps to keep my mind occupied.

Well, December, I guess there is no turing back now…

 

tomorrow.

Posted by

4

Tomorrow you should be 11 months old.

You could be walking, and jabbering. I can’t even think about what you would look like because it breaks my heart into a million pieces.

I can’t believe it’s been so long. I can’t believe I haven’t held your sweet body in such a long time. It makes me so sad. I miss you every second of every day.

Today was rough. I think the anticipation of these milestones is what gets me. Obviously the day is bad, too, but the lead up is worse.

I pulled the trigger on two piece of decor for baby A’s nursery today. After I bought the first one, I felt like I was hit by a bus. I pressed “purchase” and I literally didn’t move off the couch for 3 hours afterward. Grief, it’s a really fucked up thing.

I was happy to finally buy something, and then immediately sad and guilty for doing so. I know that those feelings are normal, but damn.

So in the spirit of making myself feel better, and maybe more excited (IDK?) here is what I bought today for her nursery. Ugh. My heart.

safavieh-lilac-shag-outdoor-area-rug-sg151-7272ptru1-23919455dt

I love our mail man.

Posted by

2

Since Kenley died, I have gotten packages in the mail literally every week it seems- some times I get a few at a time. Our mail man has never once said anything about it, he just delivers the mail to us with a smile on his face.

Last week when all of my books came, I walked out to meet him when I saw him pull up the driveway. He said (with a smile on his face) “I’ve been fighting those damn things all day! They’ve been moving all around back there!”, I laughed and almost told him why I ordered 20 books, but decided not to. Today, my candles came. I saw him pull up the drive way, so I walked out to greet him and get the box; it was heavy again so I expected something to be said jokingly. He just sort of looked at me, and I looked at him. I knew he was sort of looking for me to say something (you know how you can just tell someone wants to know what the hell is going on?).

I looked at him and it just flooded out of me. I said, “Thank you for always delivering these packages with a smile on your face! I appreciate it! Our daughter was stillborn at 38 weeks last December and that’s why we are constantly getting packages, so thank you!”…

He looked at me, and said “Oh my god, I am so sorry. I am so so sorry”.

He handed me the box of candles, the rest of my mail, and gave me a smile. Off he went. I don’t know. I just felt like it was the right time to tell him? I’m not sure if the fact that he delivered me a shit ton of stuff last year while I was uber pregnant, and he’s never seen a baby at our house was bothering me and I felt like I needed to tell him, or what…Maybe it’s the fact that I’m showing…again…with no baby here for him to see when I was obviously pregnant all of last year. I don’t know. Whatever the reason, I told him today and I hope that I didn’t freak him the hell out.

On that note, like I said, my candles came! I am constantly in awe of people who still do nice things for other people. The company that sent me these candles is a small locally owned company from the PNW. It’s called Aggies on main, and they sell soy candles. I reached out to them by recommendation of another loss mom (Hi Sarah!). The company immediately replied that they would love to work with me. I wasn’t sure what was going to happen but ultimately they donated 20 candles to my project. Amazing…just amazing.

Lisa is the woman who I was working with, and she is just one of the most caring people I’ve come to know on this journey. I am so thankful that she chose to help me. The impact her candles will have on a future mother who loses her children will be immeasurable. She wrote me a wonderful note in the card she sent. It brought me to tears.



I also pulled the trigger today on the other items I wanted in the bags.

-Journals +Pens: I did nothing but cry during my stay at the hospital, and I wish I was able to have done something else. I mean, I didn’t even get to really spend time with Kenley. She was with us, and I did spend time with her, but I wish I would have been a little more clear minded and taken more photos, and held her every second I possibly could. Maybe these journals will help someone to clear their mind so that they can hold their baby longer.

journals

-Chapstick: Ugh. My lips were so chapped in the hospital they felt like they were going to fall of my face or bleed. Im thankful to have been given some chapstick by my mom, but I’m sure some people won’t be prepared for the need.

chapstick

-Memories too few: This book is literally like 10 pages, and it’s an easy read. Like I’ve said before, we were given a book and it was just too long, and too “standard”. I feel like when I read this book, that I could have written it myself. Maybe that’s why I like it more than pretty much any other one I’ve read to date. Amazon only had 1 in stock (wtf?) so I ordered it, so they will have to stock more! I hope they stock them soon.

book

I ordered bags to put them all in as well. I’m going to have about 30 extra brown bags, but maybe that will be inspiration to keep filling them…

 

pizza and pneumonia.

Posted by

1

Thanksgiving was yesterday and I’m pretty happy it is over. I won’t lie, it wasn’t as bad as I imagined it to be only because we have pneumonia and spent the day here, on the couch, eating pizza and watching tv.

I literally don’t think I could have spent the entire day at Shane’s grandmas with his entire family. I know, undoubtedly, one of them would have said something wrong to hurt us. Not on purpose, of course, but some people just don’t know what to say so they spew platitudes and well wishes. While the well wishes are great, I just don’t want to hear them. I honestly know that people would have been all “omg squee aren’t you thankful for your baby you’re carrying now!?” Um. Yes. OF COURSE. But, that does not bring back the daughter who I lost, or take away the pain and guilt of her death.

Landon went with my Mother in Law over to the family’s get together, and we just spent the day with each other coughing our lungs out. All in all, we are feeling a little bit better, if I’m being honest. I think our coughing is subsiding and Shane hasn’t had a fever in about two days. This is great because he kept waking up shivering in the middle of the night and I know he wasn’t getting any sleep trying to keep track of his medication times and what not.

He went back to work today for the first time in a week, so I hope that he isn’t too exhausted when he gets home (even though I know he will be).

So we’re in the thick of it now- the Holiday Season. I’m feeling very indifferent toward it all. On one hand I want to have the normal Christmas that we usually do especially for Landon, and because it’s my favorite holiday. I love decorating, listening to music, shopping and spending way too much money on stuff that no one needs, and being with my family…except this year, one member of MY family is gone. She got to experience my joy of Christmas inside my womb last year, and I know she loved the music. She knew how much I loved the holiday, and I know that she knew how much she was loved.

And then, 4 days after the best Christmas of my life, I had the worst day of my life.

I’m sure you can see why I’m feeling torn on how to feel about the holiday.

I’ve been trying to toss around what I want to do about a stocking for Kenley. I really wanted one for the longest time, and now that it’s here, I’m not so sure. I don’t know if I can stand to see an empty stocking, every year, with her name on it. Empty. Nothing. All the other stockings will have things in them, and her’s will be empty because she has no use for anything. She is not here; she will never be here.

I’m not sure what I’ll end up doing. I have an ornament for her, but nothing feels right. I’m sure others can relate to the “nothing feels right” thing. I don’t know if I would feel differently about the Christmas season if Kenley had died in like March or something. I don’t know. I think the fact that she was alive during the holiday, and died so shortly after just tears me apart. It just crushes me.

I guess maybe it’s (christmas) just hard because it’s always going to be 4 days before another anniversary of her death? I don’t know. I know that some day down the road I might see it differently, but not this year and probably not the foreseeable future.

I think for this Holiday season to mean something to me, I need to accomplish a few things.

First, I need to get these care package bags together, along with the hats that I crocheted (and my sweet friend Caroline’s that she sent me to donate too!), and I need to tell the Hospital to hang Kenley’s photos…I don’t know why that is so hard to me. I just think that it means we need to go up and see them. We bought them. We spent the time deciding what we wanted to have engraved in them…I need to see them I think.

Second, I need to donate some gifts to a needy family or something. I know that you can get those names off of trees at churches or the salvation army, but I want to know that whatever it is we choose to donate, is being used. I would donate to toys for tots but I don’t know… I want something more personal. If anyone has any ideas, let me know. I would love to sponsor a family’s Christmas who just couldn’t afford it.

Third, I need to make a plan for her birthday. I don’t know what feels right. Nothing feels right, again, but I want to celebrate her. I know that she knows how much we love her, how could she not? But, I want to do something for our family to remember her too. I know there isn’t a day that goes by that they don’t think of her, either, but I want us all to do something together. I’m leaning toward balloon release, and cupcakes. It’s just going to fucking suck so much to be celebrating a girl who will never actually get a birthday, or to take a breath of air outside of her mother. To be remembering a sweet, beautiful child who I could not save. To be remembering her…instead of watching her shove cake in her face.

Sometimes it’s just too much.

grief

First Birthday Request.

Posted by

4

 

Kenley’s first birthday -December 29th- is just a few weeks away. I can’t believe I should have a child in my arms who would be possibly walking, jabbering, or causing chaos in our lives every day. I can’t believe that she isn’t here. It breaks my heart every day that I wake up and I’m alive, and she is not.

For Kenley’s first birthday, I’m asking for help from anyone who reads this, follows me on IG, or knows me any other way.

I’m asking you to write my daughters name. Write her name, anyway you would like to, and send me a picture. I want to take all of the photos that we receive and make a collage to put in my bedroom so I can make a wall dedicated to her. 

I’ve had a few people send me photos already, and I love them! Be as creative as you want, I welcome the diversity of the photos! If you send them, please include who you are and how you know us. I’m assuming I will know most people, but I guess you never know.

If you want to participate in this, I have set up a specific e-mail account for photos to be sent to, you can DM it to me on IG, or you can text them to me if you know my number- I’m fine with whatever.

My goal is to have all of the photos by the middle of December so I can have her collage done by her first birthday party.

Here is the e-mail address for photos:

KenleyPhotos@Gmail.com

I look forward to all the pictures! I can’t wait to see how this turns out for our sweet girl! Thank you in advance for helping with this project, and for loving our Kenley so fiercely throughout this past year. Let me know if you have any questions about this, and I will gladly answer! ❤

photo prompt.

Posted by

1

As many of you know, I am doing the capture your grief challenge on my IG. Each day’s prompt gives you an outlet to speak about the real emotions related to losing your child. Today’s prompt was Beautiful Mysteries.

Um. Ouch. Mega mega ouch.

This prompt urged you to speak about the mysteries of your child. I chose to speak of where I would see Kenley now. What would she be? Who would she be? I found todays prompt extremely hard. I have a rough time with envisioning my dead baby as a real baby. I don’t know if it’s strictly because I don’t want to think about it because I know it can never happen. I don’t know if I don’t want to hurt my heart like that? When I opened my heart for this challenge today, I just found myself crying while writing it. I chose to use a photo of Kenley’s hair for todays photo. Her beautiful, auburn, strawberry hair makes my heart melt; it was the most beautiful color. The lock of hair we have from her is dark brown, though. I don’t remember it looking that way in real life, and I HATE that. I hate that I can’t clearly recall what her hair looked like. Sure, photos help, but she’s my daughter…why does my brain block it out?

Grief brain?

Is it my heart and soul protecting itself?

I’m not sure what it is, but I am sure one one thing…I would give anything to be able to see her one more time.