loss

Rainbow after loss.

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I was googling just now to see if there were signs to place on your hospital door after you have your rainbow baby; I’m looking for a sign that says all the things that I don’t want to repeat 10+ times to each different person who enters my room on my care team.

While googling I came across an article titled “Heartbreaking ‘rainbow baby’ photo captures joy after loss”, so I clicked it because well…it sounds like it would be something I wanted to look at.

Long story short, a second time mom got pregnant and immediately started telling her family, lost the baby at 5 weeks and ended up pregnant again a month later that produced her rainbow. The article goes on to talk about how “tragic” her early miscarriage was, and how “devastated” they were. Yes, while I have had 2 early miscarriages and know that they are HORRIBLE and so sad, and you lose everything you thought you were going to have…the late term loss of my daughter, one week before she should have been born (and THREE WHOLE  GESTATIONAL WEEKS LATER THAN HER BROTHER WAS BORN AND SURVIVED) was leaps and bounds more difficult than the early losses. I don’t mean to sound like I’m playing the pain olympics here…but yikes.

The words that the writer used in this article pissed me off SO bad. Like…to the point I went looking for an e-mail address to write this person and be like “um…your article is ridiculous”. The way the article is titled, I expected to read a story of a mother losing a child late term, or after birth, and then see a photo of her holding her rainbow after birth or something…nope.

The article is full of those “cute” naked baby pics with rainbow headbands…

Da. Fuq.

Hey, People Magazine, if you’re reading this (LOL), this article was the worst. THE WORST.

 

Anyway. I haven’t come across any signs, but I did find out that there are apparently signs that are placed on the doors at hospitals after you lose a child to alert all staff to not say something stupid to you. The nurses at the hospital after we had Kenley were amazing. Some of the cried with us, some of them were the only people ever to dress Kenley. I’ve never spoken to them since. I don’t know that I would be able to complete a sentence honestly. Shane and I decided that we want to have a lunch catered to the staff on a day that all of them are there. That’s my next plan of action to discuss with my hospital contact.

I’m pretty nervous the closer we get to the actual day that Alden is scheduled to arrive. I think about how Kenley had a date she was supposed to arrive. I’m trying to separate the two of them, but I don’t know how you’re supposed to do something so intense? How am I supposed to look at this pregnancy different than Kenley’s? Logically I know they are two different children/pregnancies, and that rationally there is no reason Alden should die as well, but it’s like…you can’t help but think that way?

I was given two bottles of soap to use before the surgery; one the night before, and one the morning before. I have to be at the Hospital at 5:30 am and that is intimidating to me. I know that I will be super anxious, and probably not sleep at all the night before, maybe I’ll pull an all nighter, who knows.

The anxiety and anticipation is really really high tonight. I’m assuming it’s only going to increase, but I’m ok with that. I’m ready to bring this girl home, but first… lets get through the next 67 days with my sanity.

the first year without you.

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It finally came…Kenley’s first birthday.

The days that followed Halloween were brutal. It was like the Holidays were taunting me. I knew where we were at each moment in time last year (How far I was at Thanksgiving/how many days until she was born etc etc…) and so going through each day up until her birthday was really rough. When we went to get our Christmas tree this year, the place we normally go closed before we could get there (Landon started Kindergarten so we didn’t have enough time to get there after he got off school). We had to go to a new place; It was nice, but far less exciting than our normal place.

It felt good to do something different than we had the year before, though– the year when Kenley was safely tucked inside of me, growing and thriving like she should have been. When we put up the tree, I was overcome with intense grief. I cried, and I cried hard. No, let me rephrase that, I sobbed. That deep sob, you know? The one that you have no real idea where it comes from except you know deep down that it comes from a place of pain that no human being should ever have to feel.

Having to put an ornament on my tree in memory of my daughter, instead of having her there to clumsily hang hers (read: tear down the lights/tree/decor) was extremely hard. I was transported back to the Hospital when they told me she wasn’t alive anymore. I felt THAT level of sadness. It wasn’t just that she wasn’t here anymore, it was also the fact that she would NEVER be here. Maybe a realization occurred? I’m not sure.

She will never be able to hang an ornament, instead, for the rest of my life, I will be hanging her memorial ornaments. Do I buy a new one each year? Do I only hang the one that I bought specifically for her? How does a mother handle Christmas decorations when one of her children is no longer with her? There isn’t a guide for how to handle these types of things.

I avoided Christmas music VERY well this year; I think I listened to it maybe 2 times? I’m pretty happy about that, to be honest. I started listening to Christmas music the day after Halloween in 2015 and soon found out that Kenley loved it. She would dance around while it played. Avoidance was my only coping mechanism re: xmas music this year.

Every Christmas Eve, we go to Shane’s family’s get together. We went last year, and I was about to burst- 38 weeks exactly. It was SUCH a great day. I remember people giving us gifts for Kenley, telling me they were so excited for her to get here, asking how I was feeling/how things were going/next doctors appt/squeeing that her C-section date was literally a week away.  A week. Like…ouch. It still stings so deep when I think of that. It stings extra bad when I remember that I asked to have a c-section at 38 weeks 1 day- the day after Christmas- and my doctors told me no. It stings really badly when I remember that the day after Christmas last year I called my obgyn and told them I was having contractions that were able to be timed pretty close together, but the OB thought I “sounded ok”, and advised me that she didn’t think I needed to be seen, but if it made me feel better that I could go.

What kind of bullshit doctor says that? “You sound ok”. Oh good, I’m glad you can register what is happening inside my uterus by the tone of my voice. And for someone to pretty much patronize me by saying “if it makes you feel better, you can go in”, is just something that I will never EVER be able to live down. I hope that this Doctor feels extreme regret for not telling me to go to L&D that night, because who knows what could have been done…

Anyway, this year I didn’t want to go to the annual Christmas Eve get together…but I went for my Landon. I know he needed things to feel as normal as possible. When we got there, I lost it. People hugged us, and I just couldn’t handle it. It was like everything from last year just washed over me. All in all it ended up being a decent night, and I am thankful we went. Landon had an incredible time, and that is what really counts.

Christmas morning wasn’t too bad for me either. I’m not sure why…Maybe it’s because Landon’s joy just overshadowed my sorrow. Seeing him smile is the greatest gift to me, and hearing how excited he was about all of the gifts that Santa got him really really made me genuinely happy. And also, maybe I was actively blocking my feelings out; not thinking that I should have two children on Christmas morning. I should have a little girl crawling all over and being amazing. I’m pretty sure it was 50/50 (ok …70/30).

As the days ticked down to her birthday, I could feel my anxiety ramping up. The plan was to have immediate family over, have lunch, a cake, and a balloon release. I had been talking with Shane for a few weeks about what he wanted to do to “celebrate” (side note- I hate this term. I hate it so much. I’m not celebrating her birthday, for fucks sake, she’s not here. I’m mourning her, and all the things I lost when she died) her day. He’s pretty easy going so he ultimately said “whatever you wanna do”, which I sometimes hate. So, the day before he admits to me that he was surprised I wanted to have people over, and thought it would be nice to just have him, myself and Landon together on the day.

Ugh.

I told him that he needs to tell me these things when I’m asking him for a few weeks at a time. It was too late to cancel everything, and we ended up going forward with my plans. At the end of the night when everyone left, he hugged me tight, told me he was so happy we went through with it and that he had a really nice day. I’m so thankful that I can trust my gut sometimes, and strong arm him into things that I know are ultimately better for us.

We had a christmas gift exchange with my Dad and Sister before everyone showed up at 2 for the “party”. I wasn’t sure that I wanted to do this, as it felt like it was taking away from her, but ultimately I’m glad we did. Then, around 2, Shane’s family showed up. We all just kind of hung out for a little bit, then had lunch. We ate, and decided that we would do the balloon release. Everyone wrote or drew on their balloons (only popped 2!) and then we made our way outside. It was extremely windy, but so clear. Landon counted to 3, and we all let them go. It felt good to watch them float away. I kept my message short and simple. She knows how much I love her, so my balloon was just a small reminder of that.



After, we came inside, and had cake and ice cream. My sister brought a flower arrangement that is so beautiful and reminds me of Kenley in so many ways. My mom bought her a gift which I love. It’s a stuffed fox with a tutu on it, and I plan to keep it in her memory box. A wonderful friend sent over birthday balloons.


After all the commotion was done, we just hung out and talked for a bit. Slowly people started to leave one by one.

All throughout the day I was getting texts from people all over letting me know that she was on their minds, and that she was missed. I woke up to a specific Instagram tag from a woman who lost her son last year about a week or two before we lost Kenley. I don’t know what specifically about her words struck a chord with me, but it sort of set my tone for the day. I think it was what I was meant to see on the morning of her first birthday.


The love and support from everyone really made the day better- not easier by any means- just better.

I missed her more than I could ever explain to anyone, yet, I was so thankful there were so many people thinking of her and our family. Knowing she was and is so loved on her birthday, even after all this time, made my heart heal a little, I think.

I want to thank every single person who got in contact with me somehow yesterday. Your love and support means the world to us, and I believe it is what helped us through yesterday with a little less pain than I expected.

Our lives will never be the same, and I wouldn’t ever want them to be. If they were, I wouldn’t know my sweet girl’s face. I wouldn’t have ever known her hair color, or how her lips looked just like her brothers. I wouldn’t trade her for the world.

I am her Mother; she chose me to be that for her. It’s all that I can do to love her like she deserves, and honor her memory like she deserves.

I love you my sweet girl. Happy First Birthday.

I will hold space in my heart for you until I can hold you in my arms again.

 

 

 

 

realization.

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I took Landon with me today to pick up the last 5 sleepers I needed to buy to have equal amounts of boy and girl sleepers. I told him I wanted him to help me pick them out, so he got right down to business. He has such a huge heart, and wanted to buy everything of course, but he also did something I was so unprepared for.

He picked up a sleeper that came with a bib and said “Mommy, this one is so cute, AND it comes with a bib so it’s perfect for a baby!”…

I felt like someone punched me in the gut.

“IT COMES WITH A BIB”.  

Realistically, I know why I’m buying these sleepers, I know that the children who wear them will not be alive, they won’t need a bib, but I think hearing those words from Landon’s sweet naive mouth really just hit harder than I ever expected. I am so thankful to be fortunate enough to purchase these sleepers for other families, but oh how I wish things were so so different.

7 days until Christmas.

11 days until Kenley’s first birthday.

My heart cannot handle all of this sadness while trying to be happy for my son to enjoy his Christmas.

Kenley, I miss you. My heart is aching without you here, sweet girl. I hope you know how much I love you, and I hope you see all of the good I’m trying to do in your memory.

some days. 

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* first off, TW because there is a bump photo at the end of this post…* 

I know that all loss mom’s can relate to having one good day followed by a really bad couple of days. At least that’s what it seemed to be like in my early days. I would have a really good day where I could think of Kenley, smile, and keep my eyes dry. Those days are coming more frequently (although I cry most every day, sometimes more than others, and sometimes I go a few days without crying- it’s kind of a crap shoot really…).  It seems as if I’m having more “meh” days this month which, to be honest, I fully expected. The build up of this holiday, and then her birthday sometimes feels like it’s going to crush me. 

I’ve been feeling really tired lately. The kind of tired where you just never feel rested. I’m sure it has something to do with getting over pneumonia, but it just feels like more than that; it feels like my soul is tired. I would be lying if I said that this is the first time I’ve felt this kind of tiredness- It’s not. And, I fully expect it to not be the last time either. I have been in bed at 8 pm for the past three nights, and tonight I’m in bed again ( crawled in around 8:04…) and Shane is snoring beside me. He’s allowed to be tired; he gets up at 4am, works all day, and comes home to me- the grieving wife. 

The wife who is so tired that she hits snooze on her alarm twice and has to rush to get her son out the door to school. The wife who went back to sleep until 11 am and BARELY found the strength to roll herself out of bed, only to plant herself on the couch until her husband got home at 2pm. The wife who crys randomly. The wife who just sucks all the happiness out of everything (or so it feels) because she is constantly carrying the heaviest of burdens-  The burden of letting her daughter die. 

I don’t know why I’m so tired, but it feels like depression. I’m sure this month is to blame, actually I’m almost 100% positive it is. I’m trying to be excited for Christmas, but every day that Landon and I take a link off our countdown chain, I kinda wanna die. 

20 days till Christmas

24 days until what should be Kenley’s first birthday on earth, but instead it’s the anniversary of the day I had to say goodbye to my perfect child. 

We got our first Christmas card today ( as per usual it was from my Aunt Kathi- every year!) and Landon was so happy that he kept the envelope in his room. 

Yep, the envelope- not the card. 

I am not sending cards this year. Last year, I wrote out cards and as I was writing Kenley’s name in them, I just felt like “You shouldn’t do that. You’re going to jinx it…” and well…we all know what happened. 

So, no cards this year. 

I don’t think we’re doing gifts for anyone but Landon, either. For one, it makes me fucking sick to think about wrapping anything, about sitting on the floor with Shane and being in the exact same situation as last year…pregnant, with our daughter, expecting a good outcome. 

And second, getting anyone to give us ideas is like pulling teeth so, whatever. 

I have a fetal echocardiogram on December 13th, so I’m glad we will have another ultrasound of her before the Holiday but it doesn’t bring me comfort. I also have a growth ultrasound on December 22nd, so again, happy but zero comfort. 

This Christmas I will be 26 weeks pregnant with my second daughter. 

How I wish things were so much different. I wish I had Kenley, and was also pregnant. I wish she could have lived. 

I bought all three of my children stockings. They are hanging in between Mine and Shane’s on the TV stand where we always hang them…

3 stockings= 1 child 

I’m not good at math but that just seems so fucking wrong. 


Also, surprise. We’re naming this little girl Alden, after her big sister. 

And last but not least, here is my first official bump photo. I’ve been very hesitant to post one, mostly because it still bothers me to see myself pregnant to an extent (also I know how much these photos hurt other loss mommas…)  But, in the spirit of loving this child just as much as I love Landon and Kenley…. here is 22+4


Hope you like my bitmoji, I look super pissed in this pic so I opted for a smiling fake me instead. 

almost finished. 

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The care packages are coming together finally! My stickers came today, along with a “you are not alone” card. The sentiments on this card were written by a fellow loss Momma. She lost her beautiful daughter, Rain, but was able to bring Rains twin brother Brahm home. I carry a special place in my heart for Rain, and her momma. I’m so thankful she allowed me to use her words. I added my blog and Instagram because I want to be accessible to ANYONE who needs to find someone after their loss.

I put together my first one this afternoon and it felt SO GOOD. I don’t know what it is about these care packages but I want to make a million and give them out to everyone.



  • Puffs soft pack tissues
  • Memories too few book
  • A journal and pen
  • You are the mother of all mothers
  • A candle
  • A bottle of lotion
  • Chapstick
  • A packet of forget me not seeds

I’m really happy with everything. I keep wondering if there is more I should add, or if this is enough. I’m always second guessing myself.

December.

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Well, it’s here- December. I have been waiting all year for this month. Maybe waiting is a bad way to describe it, more so it’s been looming heavily over my head. As each month passed by and Kenley should have been another month older, I knew it was getting closer.

And here it is. In full force.

And I’m terrified.

We went Tuesday night to get our tree. We were going to go to the place that we use every year, but Landon doesn’t get off the bus until 4 and we found out (the hard way) that they close at 5. Half way there, I thought “damn, it’s getting really dark, I should see when they close” (why this didn’t cross my mind the entire day before we left is beyond me…). So we googled quickly and found there was another tree farm near us. We headed that way, and ended up loving the place. Their trees were pre-cut, but whatever. Maybe it’s a good thing that we didn’t get to go to the old place; maybe it was life’s way of cutting me a fucking break or something, who knows.

Anyway, the tree is super nice. I’m really happy with it, and at $52 vs the $80 tree from last year, I’m a happy camper. When we got home, I knew it was going to be super hard to put it up and decorate. We usually turn on christmas music and have a good time. Shane turned on the music and the lump in my throat came. He asked if I was ok, or if I needed to turn it off, but Landon was enjoying it so I said no, that I was ok. Seeing Landon put up the ornaments really really helped me; he was so excited that it kind of kept me happy. Then it came time to hang Kenley’s ornaments. This was pretty awful, I won’t lie. I cried and felt like I could have just crumbled into a million pieces on the floor. I ugly cried to which Landon told me I looked like I was laughing, which actually made me laugh. Thank god for Landon. He just speaks his 5 year old mind, and makes things all better.

We hung her ornaments, and just enjoyed each other. After we were done, Landon was SO tired. Rudolph was on at 8, and Landon crawled up on the couch with us to watch it. Poor dude, he was struggling to keep his eyes open but we finished it and then he went to bed.

We’ve been decorating a little each day since Tuesday. Today Shane and I spent the day at an antique mall shopping. Oh, you didn’t know that we are secretly 80 years old? Surprise.

We found a bunch of really cool old christmas things, and plan to decorate the front porch with them. Shane wants to make a big letter K to wrap in lights and include on the porch (actually this all started with his letter K idea to be honest…) so I’m excited to see what happens. I don’t want to talk about how much we spent at the antique mall today…I feel ashamed. Just kidding- one of my best days this year by far. We left the antique mall and went to dinner. I was craving a steak so bad, so we hit up outback and it was DELISH. I love spending the day with Shane. He is my best friend, and I am so thankful for him. I swear I could just sit with him all day doing nothing and be happy.

Tonight we pulled the trigger and bought Landon a 4 wheeler for Christmas! I’m so excited! It should be here in like 5 days, but were having it shipped to my mother in laws. I grew up riding them, so I’m excited for him to have one.

My dad is coming to visit this weekend, so hopefully Landon and him will get some good play time in. I know that he misses his grandpa a lot.

I’ve been getting a lot of emails with Kenely’s name in them, and I just want to say thank you to everyone who has sent them to me! I love getting them, and I can’t wait to work on the collage. I also have gotten ALMOST all the rest of the items for my care bags finally! I can’t wait to start working on them. I really really need to work on them. It helps to keep my mind occupied.

Well, December, I guess there is no turing back now…

 

First Birthday Request.

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Kenley’s first birthday -December 29th- is just a few weeks away. I can’t believe I should have a child in my arms who would be possibly walking, jabbering, or causing chaos in our lives every day. I can’t believe that she isn’t here. It breaks my heart every day that I wake up and I’m alive, and she is not.

For Kenley’s first birthday, I’m asking for help from anyone who reads this, follows me on IG, or knows me any other way.

I’m asking you to write my daughters name. Write her name, anyway you would like to, and send me a picture. I want to take all of the photos that we receive and make a collage to put in my bedroom so I can make a wall dedicated to her. 

I’ve had a few people send me photos already, and I love them! Be as creative as you want, I welcome the diversity of the photos! If you send them, please include who you are and how you know us. I’m assuming I will know most people, but I guess you never know.

If you want to participate in this, I have set up a specific e-mail account for photos to be sent to, you can DM it to me on IG, or you can text them to me if you know my number- I’m fine with whatever.

My goal is to have all of the photos by the middle of December so I can have her collage done by her first birthday party.

Here is the e-mail address for photos:

KenleyPhotos@Gmail.com

I look forward to all the pictures! I can’t wait to see how this turns out for our sweet girl! Thank you in advance for helping with this project, and for loving our Kenley so fiercely throughout this past year. Let me know if you have any questions about this, and I will gladly answer! ❤

Protein S Deficiency OR How my body is still trying to ruin things…

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On Thursday, I had my anatomy scan with Dr.F, and all looked well. She was able to better explain to us the cause of Kenley’s death. It was officially decided that she died from blood clots in her umbilical cord. We sort of knew this, but as I’ve said before, when we were first told about the cause of her death we were VERY fresh in our grief. I was better able to understand it now, at almost 11 months out.

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need help!

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I’m going to put this out there, and maybe someone will stumble across it and have advice.

I’m planning on making (at minimum currently) 20 care packages of the hospital where we had Kenley. I am planning to include a bunch of things, but the one thing I’m struggling with is a candle. I would like to include a glass votive candle, or something bigger (depending on price) with a healing quote, or something about the candle being a memorial candle etc. I cannot find any that I like on the internet anywhere. I’m thinking of aromatherapy type scents. Nothing too over powering, and definitely nothing that would smell like anything child related.

Sooooo….I’m wondering if anyone makes candles, or knows of someone who makes them? Heck, or just someone who would like to be part of the donation and is willing to learn to make them? I would love to have something made by another loss mother, or someone who has been affected by the loss of a child in some way shape or form. Like I stated, I would be looking for 20 currently. If I cannot find a candle maker, I will probably buy them from somewhere, but would be interested in someone who could make a graphic sticker for the front of the candles, also.

Please let me know if you have any ideas, or know anyone who could help!

The goal is to have the 20 care packages done by Kenley’s first birthday…December 29th.

I’m open to suggestions as well for ideas to include with the care packages. What did you need after you lost your child? What did someone give you that really stuck with you? Is there something you didn’t think about needing but ended up REALLY needing?

• I needed tissues. The hospital tissues sucked ASS and my nose was bloody and raw from crying into them. My step-dad purchased a really nice box of soft tissues for us, and brought them the second day in the hospital. This is where the idea came from to buy puffs soft pack tissues (I bought about 40 full size packs) and I will be donating them to the maternity ward for baby loss mommas only.

• I needed chapstick. I didn’t bring any in my bag, when usually I do. I plan to include a nice chapstick in the carepack as many moms don’t plan to have this awful thing happen to them, and chapstick is the last thing on their mind…until their lips are so dry from constant crying and face wiping.

• I’m adding in a personal bottle of aromatherapy hand lotion. I know that the hospital gives you these things, but having a good quality lotion might make you feel more relaxed? I know that sounds like a joke, and honestly even saying it sounds awful because nothing can make you feel more relaxed after you just find out your baby died.

• I’m planning to include this book that I was given at the funeral home. It’s a very light read, and that is what I needed in the days after Kenley- not the gigantic book that I was given. This is such a good small book to start with.

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I’m also planning to include this book which has been the greatest book I have read since Kenley died. It is written by a loss mother, as well, and it just tells you what you need to hear. The version I will be donating will have Kenley’s name in the back on the memorial page.

51fqiwcvqjl-_sy497_bo1204203200_

• A pack of forget me not seeds that are specifically packaged in memory of a lost loved one.

I had also tossed around the idea of including a molding kit for hand prints. I didn’t get any hand prints from Kenley and I would have loved to have them. These are things that you just don’t think of during the absolute worst moments of your life.

I had also thought of including some sort of lara bar, or something like that, but when I thought about it, it made me want to puke a little. I remember them wheeling in this huge cart of coffee, tea, drinks and snacks after she died. It sat in front of my bed about 10 feet away from me, staring at me the entire time we were there. The nurses would come in and ask if we needed our coffee refreshed and all I could think was “my daughter just died”.

Eating was not the best memory from the hospital.

Anyway, those are my ideas. I know there are a lot of you reading who have lost your children too, so please don’t keep quiet. I’m looking for input on ANYTHING you can offer me.

 

ten.

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My Sweet Kenley,

Today you should be 10 months old. You should be here, wearing an adorable Halloween costume. I should have been carrying you in my arms when we went trick or treating Thursday. I’m so sorry you didn’t get to celebrate with us; I’m so sorry you will never be able to celebrate with us. I dressed up as a Fox this year. I needed you with me; I couldn’t do it without you. I couldn’t go walking around, seeing all kinds of babies dressed up as cute little lady bugs, or skunks without you there with me.

As the holidays get closer, my heart aches harder for you. I know that last year on the day after Halloween I turned on Christmas music. I listened to Christmas music every day. You loved it, and would dance around. I’m not sure if I will be able to listen to it anymore. I don’t want to be sad when I think about sharing the holiday season with you safely inside of me. I want to be happy, and excited to have spent any time with you at all.

But my heart hurts. 

And I’m tired…so tired.

Every single fiber of my soul misses you.

I wish so badly that I could have saved you, baby girl. I wish you were here. I know that I say it over and over, but there is no other way to express it.

I would give anything to have you in our lives, for you to be here with me, to watch you grow and walk and coo and drool. I would give my life for these moments with you, my love.

Mommy misses you sweet girl. I miss you more than there are stars in the sky.

I love you.

Forever and Always-

Mommy