seriously?

It’s Tuesday. Kenley died on a Tuesday. She was born @ 10:32 pm on a Tuesday. I hate them. I’ve said Tuesdays are my least favorite, yet most favorite days. I love spending time with Shane and Landon on these days, but they just suck. It’s like a constant reminder of our one missing piece. But, I guess that’s going to be my life from now on, so I better get used to it.

Today we went to Hobby Lobby…

I already hate Hobby Lobby, but Landon wanted to go. When we walked in, we were treated by FALL DECOR. What the hell. It kind of hit me in the face like a brick wall? I mean I know that it’s July, and that August is right around the corner or whatever, but woah. I gathered myself and continued to walk with Landon toward the “toy” aisle, but there it was…

Christmas Decor. 

Nope. Not ready to see that shit just yet. I realized how incredibly hard seeing anything Christmas related is going to be for me. I don’t think I will be ok this holiday season.

This is a warning for all of my family/friends- I seriously cannot control how I feel about these things, so don’t expect too much from me this Holiday season.

Kenley was alive for Christmas last year. She got a stocking full of binkies, and a rattle. She  was the talk of the get togethers. She was given many other gifts, too- Baby bath, wash cloths, bows…It’s going to be so hard to lead up to the Holidays, listening to the music she loved to listen to and danced around in my belly to. It’s going to be a lot harder than I think I realize right now.

We did a card exchange on the TCF boards last xmas and all the cards wished us well, and said how excited they were for us and Kenley. Fucking life. I just want to punch life in the dick.

How cruel. I just cannot get past that. How fucking cruel. I know no one decided to have her die on the day that she did, or whatever but god damn it. So close to Christmas? It’s going to be so hard for the rest of our lives.

Shane and I will always view Christmas with a “death lens”.

Even if I go on to get pregnant here in a few weeks, I just worry about things. I worry how I’m going to feel being pregnant, again, at christmas. With a new baby. Because mine died.

Fuck.

Fuck you, Hobby Lobby.

 

mollybear.

I was given a weighted teddy bear from a dear friend from high school. This bear weighed three pounds. In an effort to have a bear that weighed the same as Molly, I bought a shell and a package of rice. In the middle of the produce isle, I carefully weighed rice, fluff and the shell. I am sure people thought I was crazy, but I did not care. I went home and with my children and husband, we created the very first Molly Bear. For the first time in weeks, I was able to sleep holding her. It was then that I knew I had to find a way to help other angel families.

This is a snippet from the creator of the Molly Bears. Molly Bears are weighted teddy bears that are made to be the exact weight of the child you lost. They run strictly on donations, and each bear is $20. The wait list is pretty lengthy, and only opens the 30th of each month. I cannot decide if I would like one or not. 

On one hand I long to feel the weight of Kenley in my arms again; it’s something I think about on the daily. But, on the other hand I’m so scared of feeling that again. I know a bear will not take the place of my daughter, but will it help me? Will it allow me time to hold it, and enjoy what I will never be able to do again? 

Do you have a Molly Bear? If you’re just some random lurker here, and have one or know of someone who does, please share your story with me. Has this bear brought you comfort or does it magnify why you don’t have in your arms? 

•••••••••••••••••••••••
Tonight there are many many fireworks going off around us. I feel like I want to die so empty inside. It’s like every single one I hear is screaming “your daughter is dead!”, “remember that cute outfit you have hanging in her closet?”, “she will never see fireworks with you like you dreamed!”…

For you, my sweet sweet baby girl.

 I miss you every second, of every hour, of every day. 

guilt.

Oh, Guilt, You’re the worst of them all. Not the kind of guilt you feel when you have a “cheat day” on you diet, or the kind you feel when you forget to pay for the paper towels on the bottom rack of your cart on complete accident. I’m talking about the guilt that cuts you like a knife; makes you feel that you let down every. single. person. who knew you were expecting.

I have so much guilt surrounding Kenley’s death. I know that there is nothing that could be done to save her, I know this. I know that I did everything I could to ensure my daughter arrived healthy and happy- yet she didn’t. I often find myself feeling guilty for feeling guilty and sad. It’s so fucked up the way you feel after a loss of this magnitude. You can’t even describe how you truly are feeling, because well, there are no words that make sense.

I feel guilty that I let Shane down. Me, his wife, the mother of his children, couldn’t keep his daughter alive. First off, I have the fertility issues, not him. He is perfect in fertility related aspect. I’m the reason we have to go through all of this struggle to begin with. I lost two of his children. I then went on to get pregnant with his Daughter, his beautiful daughter that he played guitar for, and talked to every single day. The daughter that he gave the most beautiful name to. The daughter that was going to be Daddy’s Girl for sure. And then…that daughter died inside of me. Inside of ME, his wife. The mother of that daughter. It breaks my heart into a million pieces to think about that.

I feel guilty for letting Landon down. I lost his sister. The baby sister whom he so anxiously waited for, and never even got to hold. He promised to take care of her, and help me change her diapers. He helped me wash all of her clothes and fold them. He was so excited for her, But for some reason, I didn’t know she was dying inside of me. How did I miss that? I feel guilty for missing this. I worry that I was too wrapped up in Christmas to recognize any signs from her. I let her down too. I feel guilty for that more than anything else.

I let down Kenley’s grandparents who were so excited for her, her great grandparents, my friends and other family who were so excited for her. I feel incredibly guilty for not knowing she was dead/dying inside of me. I am her mother, and how did that go unnoticed? Was I SO preoccupied with doing the dishes on that Tuesday that I didn’t notice she wasn’t moving properly? I want the chance to go back and look at myself during those last few days. I want to really study her movement and try to figure it out. I want to go to the hospital on that morning, instead of that night. I want to demand that they take her. I want my OBgyn to not say “well if it makes you feel better, you can go to Labor and Delivery”, but instead say “YES. GO IN NOW. THAT IS WHY THERE ARE NURSES THERE. JUST TO BE SAFE. IT’S YOUR BABY’S LIFE. GO GO GO! FUCKING GO NOW!!!”.

I want to go back and have my doctor to give me an NST at my appt 2 days before Christmas. I walked into that appointment thinking I was going to get an NST, and left with a false sense of reassurance. I will never be ok with that. I will never be ok with my doctor telling me that my contractions were probably normal and making me feel like I was overreacting. I should have fucking gone. Don’t get me started on the guilt to come with moving forward with our FET.

I feel so much guilt over her death, and one day I think  I know it’s going to eat me alive.

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expectation vs reality.

I want to start this post off by saying that I am not extremely sad ALL of the time. I know that it may look that way to many of you reading, but it’s not true. This is my blog; my space to write whatever I feel like writing at any given time. Just because I write the shittiest feelings here, or say exactly what is on my mind, it doesn’t mean that I am doom and gloom.

And honestly, if I was all doom and gloom, could you fucking blame me? Didn’t think so.

That being said, I had a rough night last night; Some nights are a lot worse than others. I sometimes can’t find the right words to express how I’m feeling to Shane, which leads me to be grumpy with him, even when it’s not his fault. Sometimes he will ask me what is wrong, and I can’t answer him; it’s the same thing all the time. What is ALWAYS wrong, what will forever BE wrong? That’s what is wrong. I think maybe I just should tell him to assume that if I’m having a bad day, the reason is always the same. This goes for everyone; If I’m moody, or grumpy don’t ask me why- just please assume you know the reason.

Tomorrow we have an appointment at my RE @ 8:15. I will be having an ultrasound, and getting blood work. We will discuss our plans to move forward with the FET (frozen egg transfer) and hopefully get a date! I cannot wait to hear what my RE has to say about our embryos doing so well. Maybe I will bring the it starts with the egg book along in case he wants to see why I took the supplements I did.

I was hoping that maybe we would hear news about the embryos today, but I highly doubt it. The embryologist said we should hear back within a week, so I’m hoping we hear by Friday at least; I would love for Shane to be here with me when they call. I am just ready to see what the cost of this FET will be. I know I need meds, but I really hope that we can keep it under $4k. This process is bleeding us dry it seems. Thanks life, we really really appreciate it.

Today marks 26 weeks since Kenley left us. I have a lot of feelings about it; yet I feel so blank. It’s a fucked up thing, life after loss. I’ve said it before and I will probably be saying it until the day I die. Tomorrow is the 29th; tomorrow will mark 6 months. Half a year? How is that even possible? It has been half a year since I’ve held my daughter– that just doesn’t seem like real life. I guess maybe that’s how everything will feel now?  Maybe everything will just happen in a normal way, but I will feel as if I’m standing still with the world rushing by me? I will never ever understand the reason she was taken from us.

I have begun to realize that this photo is exactly what is going on in my life. I guess the expectation of bringing my living daughter home was just way too much. I guess I’ll just live in this fucked up “reality” instead. I was never given a choice.

expectation-vs-reality

 

 

ptsd.

I’m pretty sure that I have PTSD. I know that’s a serious thing to say, but I know it to be true.

When we were at Meijer today I had to walk past the baby stuff and I felt hot and shaky. The feelings have been here since I lost her, but I think that I’m finally able to notice them and what they are related to. I’m able to see past the grief and recognize other feelings; Anxiety, extreme sadness, fear, guilt, terror all related to the loss of Kenley, and all things surrounding her.

I see diapers and I can immediately picture her closet full of diapers; the dresser set up waiting for a baby that will never come.

I found an article written by Lindsey Henke on Still Standing’s website; here is a snippet from the article in which she discusses her PTSD symptoms (and just for the record, I agree with and feel 100% of these things she discusses…):

A. The person has been exposed to a traumatic event in which both the following are present:

1. The person experienced, witnessed, or was confronted with a pregnancy that ended abruptly, never began, or resulted in the death of their unborn child.

2. The person’s response involved intense fear, helplessness, or horror as they were forced to intensely participate in the birth of their dead child, which also resulted in the demise of their hopes and dreams.

A. The traumatic event is persistently re-experienced in one (or more) of the following ways:

1. Recurrent and intrusive distressing recollections of the delivery or loss of pregnancy and child.

2. Nightmares of the event or associated nightmares such as: of your husband now dying, your dog dying, future babies you do not have dying, and horrific things happening that you did not dream of before the event.

3. Flashbacks to the moment when you heard the words, “No Heartbeat” and “I’m sorry your baby is dead” from doctors and nurses.

4. Intense psychological and physiological distress and reactivity at exposure to triggers from the event and reminders of not having the child you planned for (i.e. exposure to hospitals, living babies, pregnant women, the empty nursery, your own menstrual cycle, and even car seats make your heart race.)

A. Persistent avoidance of stimuli associated with the trauma and emotional numbing including:

1. Efforts to avoid thoughts (of your baby and the way it was supposed to be), feelings (sad, anxious, guilt, grief, anger, confusion, despair, etc.), conversations about the event (“How’s the baby?” is the worst. I try to avoid that one all the time.).

2. Efforts to avoid activities, places, or people that arouse recollections of the trauma (baby showers, your doctor’s clinic, ultrasounds, friend’s newborn babies, pregnant women, thinking about getting pregnant again…I could go on).

3. Feeling detached and estranged from others – Ah, Yeah! Especially from people whose pregnancies result in living children.

4. Sense of a fore shortened future – YES! Thinking – “My child didn’t live, why should my life be all of the sudden guaranteed.”

A. Persistent symptoms of increased arousal (not present before the loss):

1. Difficulty falling or staying asleep – Who sleeps well after knowing the worst can really happen to them and has.

2. Irritability – Having a short fuse because life has played a cruel joke on you.

3. Difficulty focusing – On anything but your own grief.

A. Duration of experience is more than 1 month. – Yup! I have a feeling it will be a lifetime.

B. Causes clinically significant distress or impairment of everyday functioning. – Yes! Your life is never the same, people at work think you should get over it but you can’t focus, your relationship struggles in ways you never thought it would, and even doing a simple task like going to Target is impossible because you cry every time you walk by the baby section.

So so so much that last sentence. Holy hell. I cannot even step foot into a Target. That is where I got pretty much 80% of all Kenley’s things. Her clothes, her diapers, her wipes, her lotions, her socks, her onesies, the outfits I bought just FIVE DAYS before she died.

I can’t.

And honestly? I’m afraid I never will be able to go there again. I’m so scared of this being an ever lasting feeling. I hate feeling this way. I hate missing my daughter so much instead of holding her.

I hate seeing babies who are her age. I feel angry. I feel wronged.

I just feel straight up fucking sad; there is no other way to describe it.

I’m sad without my daughter and I’m afraid (read: almost certain) that feeling will be here forever.

 

sickness.

Sometimes I have to twist Shane’s arm to make him go out and do things with me, but once we go, he has SUCH a good time. Is this all men? Would they all rather just stay at home, and do nothing? I don’t know, maybe it’s just a different personality type, or maybe he legit just would rather be at home. Our house is pretty awesome and low key so I don’t blame him. BUT, I’m here every day, all day…he isn’t.

Yesterday morning I woke up and felt like I wanted to go to the movies. I looked at moviefone, saw that Independence Day: Resurgence was playing early on Thursday night (opening day was Friday). So I asked Shane and Dustin if they wanted to go see it. Shane gave me a “meh” answer, and Dustin said no because he didn’t have time. I, however,  didn’t let up; I wanted to freakin go. I kept bringing it up to Shane and finally I just made plans to take Landon to my mother in laws for a sleep over. I text Dustin one more time and said last chance! and he said he could go now because he got off work early. Yay! So I bought 3 tickets to the Ultrascreen ($48…fml) and we had a date night + Dundy!

Guess what? The movie was frickin amazing! Take that, Shane! He said “it probably won’t be that good because it looks just ‘ok'”. Pffft. What does he know.

We had a really good night out, and a good night together when we got home. We slept in late, and I made french toast for breakfast while he made coffee. We watched CNN this morning while we ate. But then…my Mother in Law called. Landon was running a fever of 100.3 😦

I went to pick him up and he was curled up in the chair under a blanket. Poor little dude. This is so unlike him; he is so full of energy 24/7. He was burning hot, so we came home and laid on the couch for a while. His fever keeps coming back after the Motrin wears off and he is so achey. I hate being sick myself, so it is super hard to watch a 5 year old moan and groan knowing there is literally nothing I can do to make him feel better. I kept him hydrated, and he ended up falling asleep on the bathroom floor with Shane around 4pm. Shane laid him down in his bed, and Landon napped until about 7pm. We woke him up, and brought him into our bedroom (we were decluttering…emotional fucking nightmare for me by the way). 

He wasn’t feeling any better, so we just let him lay around for a little while and watch some more TV. He went to bed at about 9:20 tonight, and I hope that he gets some good rest. I’m sure tonight will be filled with up’s and down’s for all of us. Here’s hoping his fever stays away all night and he can rest well.

Back to the decluttering…

As I’ve said before, when I feel anxious or stressed I tend to slack on stuff that needs done. Well, my bedroom is pretty much a disaster zone because of this. Laundry hasn’t been put away in what feels like 3 weeks; it keeps getting the daily shuffle from floor–> to bed –> out of the basket–> onto the bed –> back into the basket –> back to the floor. I just can’t freaking do it. Little by little it’s getting put away…I promise.

Today though I really felt good about decluttering and organizing the bedroom. Shane and I went in there while Landon napped. Bad Idea. I guess maybe deep down in my  consciousness I knew that the reason I didn’t want to go through everything in my room was because so much of it relates to Kenley. I found my folders from the doctor. I found the folders from the hospital that gave me information on support groups for after she died. I found books from the funeral home. I found cards from everyone telling me how sorry they were that she died. I found my 30th birthday card from Shane that said how excited he was for Kenley to be here; how excited he was for our 3 person family to finally become the 4 person family we dreamed of. I found ultrasound photos. I found the list of names the nurse gave me so I could write thank you cards that never got done.

What do you say in a “thank you” card to a nurse who cared for your dead child?

“Thank you for taking such good care of my child, even though she was dead and nothing mattered anyway.” Because I’m pretty sure that is what would fucking come out on paper. Maybe someday I will be in a place where I feel as if I can write them, but that time is not now. I’ve looked at the boxes of thank you cards I bought, and I want to set them on fire. They make me physically sick. You send thank you cards when you receive a gift…I didn’t fucking get to keep my gift.  

I cleaned up my nightstand, now I need to find a picture frame for Kenley’s 4×6 that I finally printed out. I can’t find a frame that I like enough to house her photo. I don’t even like to look. I hope that one day I’m out shopping and one just speaks to me so I can be done with it. The stress of looking for the perfect frame is seriously stupid. I know it’s just a picture frame, but I guess my irrational brain isn’t understanding that.

Needless to say today can be over at any time.

I’ve noticed lately that when I let myself really think about what happened, I get dizzy. I feel as if I’m going to pass out in a way?  I just feel so emotionally drained these days. I cried myself to sleep a few nights ago. I don’t even know what happened, it just hit me. It’s bad at night, even with medicine and breathing exercises.

These days everything makes me feel like I’m running full speed into a solid brick wall.

 

Yep. Exactly like this. 

day 5.

The Embryologist called me early today – 7:30 am!

He once again explained to me how the embryos are supposed to look on this day:

400px-human_embryo_day_5_label

The part labeled embryoblast is also called the “inner cell mass” which will become the fetus.

ALL SEVEN OF OUR EMBRYOS MADE IT TO BLAST. 

vpll0

I am blown away! I never imagined this to be the case, ever. I have diminished ovarian reserve, this is not supposed to happen. I am just sitting here with my jaw on the floor in disbelief.

The embryologist said that currently, 3 embryos are perfect and ready to be PGS tested. He said 2 additional ones are more than likely going to catch up to the same stage and will be able to be tested, too. I’m not sure what will happen with the other two, so I guess we will see what he says tomorrow morning when he calls us.

snl-excited

I’m stopping my PIO shots, and all my other medications. I will start birth control again, and we will go from there. I am a little confused right now as my IVF nurse just told us we are transferring in AUGUST (uh…no?!?!) because my Dr said July. I have an email in to her, and I hope we get this cleared up because HOLY ANXIETY. The whole point of this is to transfer in July. I had this whole thing planned in my head of how it is supposed to go (a terrible idea, I know…life hasn’t gone according to plan yet so why would it now?) so I just hope that she was reading the wrong date or whatever.

funny-britney-spears-shaving-head-stress_opt

The Embryologist is supposed to call us again pretty early tomorrow morning with the biopsy news! I’m nervous, excited, terrified, guilty, worried, scared…you  name it.

I just want this to work in the best way possible.

Today marks 25 weeks since our sweet girl left our lives. It feels like it’s always the same thing every week; Its Tuesday, I can’t even begin to wrap my head around it all, and then I get sad. I know she wouldn’t want us to be sad, and would be happy for us that we’re getting stronger and moving on. It makes me sad to think about bringing a sibling into Landon’s life who isn’t her…but it also makes me feel a little excited. I know she would want that for Landon.

Life after loss is just a fucking mess.

I miss you, sweet K. I’m so thankful I have you looking out for me. I love you baby girl.

day 3.

This morning the embryologist called at 9:53.

He explained to me that on the third day they like to see the embryos dividing into 7-9 cells, with 8 cells being “perfect”. He said that our embryos have little to no fragmentation which is a very good thing as well.

We have 6 embryos that are in the 7-9 cell range, and we have 1 embryo that is a little behind at 6 cells. The embryologist did tell me that there is a very good chance that 6 cell embryo could catch up though. He even said “I could go check on it after we get off the phone and it could be in the 7-9 cell range”.

Hell yes. I just cannot believe it! 

 

wpid-stages

Here is a chart to show you the stages of Embryo development along with a description of what should be happening.  

I truly credit some of this success to the book “It starts with the egg” by Rebecca Fett. She discusses specific studies that have been done for Diminished Ovarian Reserve women; She then gives you a suggested list of supplements and vitamins to take (all with the approval of your doctor, obviously). I seriously think that all of those have made a huge impact on my embryo quality (also, the fact that we have no Male factor infertility issues what so ever helps a lot).

I started taking the following supplements 4 months before our cycle:

  • 600 mg CoQ10 Ubiquniol
  • 75 mg micronized DHEA
  • Prenatal + DHA
  • 81 mg baby aspirin
  • 400 mcg Folic Acid
  • 500 mg Vitamin C
  • 2000 IU Vitamin D3
  • 3,000 mg Acai berry extract

In the book the author states that DHEA is supposed to do wonders for women with DOR. I spoke with my RE and he had never really read any studies about it, but agreed to let me take it as long as I kept him updated on if I stopped or whatever. I’m pretty sure if this cycle yields ALL good quality embryos, I’m going to buy him the book as a gift 🙂

Now, there is a chance that the eggs all fertilized because we chose to do ICSI instead of regular IVF fertilization.  ICSI is a process where one single good quality sperm is injected into the egg (see below). This is always done for people choosing to do PGS testing (click the link to learn more about PGS testing), and often used when you have Male Factor Infertility as well.

icsi

From here, we wait until they call me on Tuesday morning. The embryologist said he would call me before 9 am, just incase we needed to come in for a transfer later that afternoon.

He told me that he recommends that we push to day 5 even if we decided to do a fresh transfer instead of freezing them and transferring in July. I’m really happy that he seems to think they are all good quality; What a great feeling for us! I guess we will see what happens on Tuesday when he calls. If we are looking at only 1-3 being good quality and growing normally, I think we may look at transferring fresh, but if they look good we are going forward with the day 5+6 biopsies. The PGS testing results should take about a week to get back.

quotes.

I love following other baby loss moms on IG; I know that sounds morbid, but it’s not. I feel comfort from it. I feel that those women truly understand the pain that lives daily in my heart. Everything they post is something that I could have posted myself at any given time. Today, I came across this from one of them. It reminded me of my post from the other day. It hit me hard so I wanted to share it with you.

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“The ones who tried their hardest to hold on, yet could only look on helplessly while they lost the thing they loved the most.”

Yep. 1,000% yes.

I felt helpless. I feel helpless. I will always feel that way.

There was nothing to be done.

We were failed by modern medicine, baby girl. It’s such a damn shame, because we wanted you so much; you were the thing we loved most.

eggs. 


Seven! Not a bad number for my shitty ovaries/DOR. I’ll take it. I’m feeling pretty confident that they will be good quality as I’ve been on all kinds of supplements for upward of 4 months leading up to this.

 

Don’t I just look so awesome in this blue hairnet and hospital gown? 

The anesthesiologist blew the vein in my left arm (thanks) and had to go in my hand. IV’s are the worst part of any procedure in my opinion. You wanna cut my abdomen muscles open to take a child, feel free, but PLEASE GOD get the fucking IV right the first time.

Then, as we were getting in position,  the nurse who has been there since we started seeing Dr.J asked me what my daughters name was. I said “Kenley” and then started crying. She walked closer to me, handed me a tissue and said “I know exactly how you feel. I have been there“. This made me cry harder; I told her I was so sorry she knows this pain.

After she woke me up I think I asked her about it? I vaguely remember bits and pieces of what she said. Her daughters name is Stella. Her cord detached from her placenta. She was stillborn @ 34 weeks. (thank you Shane for the reminders)

She said “we went on to have another baby, and that’s what we are going to do for you“.

I cannot tell you the comfort it brought to me for her to ask about Kenley before the retrieval. I knew that was K’s way of letting me know she was there with me.

So, thank you to the nurse. You may not see it, but you helped me so incredibly much by letting me know my girl was there, and for simply saying her name out loud.

Tomorrow morning we will know how many eggs were mature, and how many fertilized. Here’s hoping everything is A+ quality in there.

My ovaries are sore so I think I’m going to take a nap.

Keep our 7 eggs in your thoughts and send us all the good vibes you can manage.

One last thing. A baby loss momma I met through IG (who lost her Son) sent this to me the other day. I woke up to it and it made my heart skip a beat. Seeing her name and knowing that someone else thought of her and I is what helps heal my heart.

I love you sweet girl.

Thank you for being with me today; I couldn’t have asked for better company.