pregnancy after loss

rough day.

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6

Our Molly Bear came today. I had to call the post office and ask them to hold it there for me so I could pick it up early because Shane had to be at work before our mail usually gets here.

We went to the post office about 9 am and there it sat. A huge white box, just staring back at me; I almost cried just looking at it. When we got home, Shane cut the tape on the box and we opened it. Immediately I cried. When I opened the box, my beautiful Kenley bear was looking back at me. She is perfect. I don’t think I could have made a better bear for us had I done it myself.

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When I held the bear, I cried. I knew that I would probably lose it, and I was right. She was heavy- 7lbs 5oz- but, that’s what Kenley weighed at birth. It just feels weird to feel her weight in my arms again. Shane held her for a little while, and we talked about it. We said how perfect she was over and over. We said that Landon is going to love her, and want to play with her.

Then, Shane asked if I wanted to go in her room.

We took the bear, and we went in.

I haven’t been in her room since…April 29th. It was so hard. I mean, hard in the way that your chest gets tight, and you can’t breathe. You cry the same kind of tears you cried at the hospital when your baby was born silent; when your whole world came crashing down around you within seconds and you didn’t know how you would ever survive.

We sat there for a while, and just talked about her room. About how beautiful it is, about her clothing, and the “why her” conversation happened again. I cried more. Going in was extremely hard, but I feel so calm in her room. We decided to look through her drawers, and closet. We looked at all of her clothing. We looked in her memory box from the hospital. We opened the envelope that has a lock of her hair. Her beautiful dark brown auburn colored hair. She had so much hair, my sweet girl.

Then, I asked Shane to open her diaper bag. This bag hasn’t been opened in nearly 9 months. I haven’t looked in there with a semi-clear mind, so I wanted to look. We pulled everything out, smelled it, looked through her baby book and sorted out what we wanted to keep specifically for Kenley, and what we could reuse for this baby. There were two outfits that Kenley didn’t wear in the hospital so we kept those out, but the rest is in the diaper bag still. image3

Today was a really hard day. I feel like I ran a marathon on the beach in cement boots.

I just really miss my baby girl.

We put her 2 quilts, and 1 crocheted blanket into the hope chest, along with the diaper bag and all the items we kept in there. It’s a step. It’s a huge step. I know that this room is going to be our new little girl’s room, and I need to work through a lot of stuff before I’m comfortable with that. It breaks my heart to think about taking her nursery apart, but it also breaks my heart to think about leaving it the same. It’s just not fair. No mother should ever have to think about these things.

Someday’s I feel absolutely insane. I don’t know how I’m going to make it through the next 25ish weeks.

NT.

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2

Tomorrow we have our NT scan and first official MFM/OB appt. I’m nervous, but not much.

I’m a little scared because I stopped my PIO, and my estrogen, and haven’t been back for a scan since…It freaks me out to think that something could have gone wrong after I stopped those medications. I’m trying to have control over my mind and control over the fear, but well…lets me honest now.

The appointment is at 12:20, then my OB appointment is in the same place just at 1:45. I have my Mother in Law coming to get Landon off the bus if needed.

If all looks well in my scan tomorrow, and we get a good picture of our girl, I’m going to post it here. I wanted to let all of the loss moms know, just incase you were having a bad day, or will be having a bad day tomorrow. I feel as if I owe it to this baby to be excited for her (obviously I am, but it’s complicated…) so I’m going to try and do one thing every few days that makes me a little uncomfortable. Posting her ultrasound photo will be that thing. I posted photos of EVERYTHING when I was pregnant with Kenley, and this baby deserves to be loved just the same.

(I have to repeat this in my head daily. Losing Kenley has greatly altered my emotional state)

I hate this. I hate every second of the way I have to live my life now.

I am trying.

Little Miss, I can’t wait to see you on your ultrasound tomorrow. Please dance up a storm and make it hard for the tech to see you, so we can see you longer (but make sure to let her get all the measurements and pictures she needs!) .

 

 

shipped.

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4

Today has been a rough day. Shane asked me how I was feeling about “little miss”, and it sort of just opened flood gates. We ended up talking about her for a long time. We talked about Kenley, her nursery, the new baby, and a bunch of stuff. I told him I was thinking about going into her room today, but ultimately I decided that I didn’t want to/wasn’t ready. He asked me if I wanted to start putting things into her hope chest, and I just lost it.  Cue all the tears, for the rest of the day.

No, I don’t want to put her stuff in the box. I WANT her to be here so she can use it. I want to never have known this level of pain, and heartache. I want to be naive about pregnancy, and never suffer 2 miscarriages, and a stillbirth. I want to not feel sad/guilty/depressed every second of every day even on my good days.

I know that nothing will ever bring Kenley back, and I know that I am doing a lot better with processing her death but quite frankly it just fucking sucks.

The whole thing sucks. 

I want to be excited for this new baby; we worked our asses off to get her. I am happy and excited to be pregnant, but it is overshadowed. I am trying— I say this so much that I sound like a broken record. I’m having a hard time thinking about this new baby using the swing that was purchased for Kenley. I know that it probably seems like a trivial thing for some people, but those people probably don’t truly understand. The items that we purchased for Kenley were burned into our minds as “her things”.

We dreamed of bringing her home from the hospital, and laying her in the rock n’ play my friend bought for her.

We dreamed of bringing her home and dressing her in one of the adorable outfits we specially bought for her.

We envisioned laying her in her crib, the one that we spent so long researching.

I dreamed of her doing tummy time on her bright yellow chevron rug (that I spent way too much money on- but didn’t care because, anything for her, right?)

I never in a million years expected to not have her here with me. I never thought for one second that I would have a nursery full of brand new items, never to be used by the intended child. But, instead, I have to process my grief and allow a new baby to use these items. I know that sounds weird, even as I type it my rational brain is screaming out–but my loss mom brain…well…that part of my brain gets it. That part of my brain understands the true depths of my pain. That part of my brain will always be fucked up now.

So the way it stands is that one half of my brain is always going to be living in fear or something terrible happening, and a huge chunk of my heart is pretty much broken and dead.

I’ve spent the evening googling “what to do with a nursery after stillbirth”… I bet your evening was better…

As I was sobbing and reading through multiple websites, I received an email.

Our Molly Bear has shipped…with 2 day shipping.

The bear will be here before 38+4…

I know that Kenley was looking out for me, and wanted to make sure the bear got here before the day when she has been gone for longer than she was alive.

I love you baby girl. You give me the strength to wake up everyday. I wish I could be holding you, smelling your sweet baby smell right now.

honor.

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5

Somedays I wake up and I don’t get regular clothes on (I must not tell lies). I smack on the yoga pants, a t-shirt and call it a day. Those days I don’t usually put on my Kenley necklace. Somedays it doesn’t even phase me, but some days it really bugs me. Some days I feel like if I don’t wear that necklace, I am not honoring my girl. It’s like I feel as if I’m “forgetting” her if I don’t wear it. I know that’s stupid, and I know that wearing my necklace here in my house isn’t making me any closer to Kenley. I can’t get any closer to her- I’m her mother. I am the one who loves her more than anything in this world.

Sometimes I feel like, as a loss mom,  I look for ways to honor my daughter that are above and beyond. Like, somehow if I take my love for her above and beyond, she will be able to feel that extra love. I know it’s not true, I know that she knows I love her, and that I would do anything in my power to have her here if it was possible. It’s just another way that losing a child fucks your brain up. It sucks. It’s sad. It hurts. It’s depressing knowing that no matter what I do to honor my girl, it’s just not going to matter when it comes to saving her.

I couldn’t save her.

Maybe honoring her by wearing her necklace, taking care of her tree, making things for other loss moms, makes me feel closer to her. Maybe it makes me feel like I’m caring for her, even though she is not here. I’m not sure what it is exactly. I’m sure I’m not the only one who feels this way.

There are other things that I do now that I need to do every day because I feel like if I stop, it’s one more step away from my girl. Now that we have our hope chest I know that I should take small steps to start putting things in there. I have a shoe box of random things from our bedroom that are related to her, and it’s sitting on my dresser. I think the first step in this whole “hope chest” thing will be putting that shoe box in there.

I don’t know if you’re like me, but when I clean something up I always end up getting sucked into it and looking at it again. Usually tying to clean one thing quickly takes a full day and will get me so off track. I know the second I step into her room and start to unpack that diaper bag, I’m going to fall apart into a million pieces. I haven’t looked at her blanket from the hospital, or the hat. I haven’t re-read her 25% finished baby book that will never be 100% finished. There are so many things that I want to look at, but know that I am not strong enough for yet.

Next Tuesday is 38 weeks. Next Saturday is 38+4, the length of time I carried her. Sunday she will be gone longer than she was alive, and that’s a real gigantic mind fuck.

Maybe next week I will find the strength to go in her room. I don’t know. Maybe not.

Probably not.

dentist.

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23

Today I had a cleaning at the Dentist. I knew that I would have to update my paperwork, and inevitably this means updating medication, and pregnancy information. They only had me fill out 5 update questions, and the last one was “pregnancy- yes or no”? So I checked yes, and handed it back to the front desk lady. She proceeded to read over my 5 questions, and when she hit the bottom one she looked up at me with pure excitement and exclaimed ” OH! CONGRATULATIONS! When are you due?!”.

It took everything (EVERY. THING.) I had inside of me to smile and tell her 4/5/17.

When I got back to the exam room, the hygienist went over my paper work…again…and she did the same thing. “SQUEEE!!! WHEN ARE YOU DUE! CONGRATS!”… Again, I answered and smiled.

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She proceeded to talk to me and asked about my children, which I knew was coming obviously. I answered her, and told her about Kenley. I talked about Kenley like she deserves to be talked about. I spoke of her, and Landon, and the new baby.

My gums were super sore during the cleaning (thanks pregnancy hormones…), but it was finally over. She told me to sit tight and the Dentist would be in to talk to me. Well, during the 5 second wait, a new hygienist (who I hadn’t seen at all) came in and read my chart AGAIN.

I bet you can’t guess what happened. 

Then she starts talking to me about a procedure that will cost like $500-1,000 and isn’t covered by insurance (assuming she was just making convo) and said I should totally have it done. And…that’s when I couldn’t take it anymore.  She had squee’d FAR too much for me. So, I straight up told her ” I would love to have that done, but I just simply cannot afford it. We did IVF this summer and now I’m nearly $23,000 in debt. I just don’t have the money, but thanks for the offer”.

She gasped at the cost (YEP. ME TOO, LADY, EVERY TIME I PAY THE BILL) and told me how sorry she was that Kenley died and we had to do IVF etc etc.

Then it came time to schedule my next cleaning, in 6 months…

Right when this baby will be due. 

I had to tell them I would call them to set it up, and I pretty much ran out of the office holding back tears.

I’m sorry hygienist lady, I cannot guarantee that I will be able to “bring that cute baby in for all of you to see!” because I can’t guarantee that she will fucking live.

IT HAPPENS. BABIES DIE.

So please for the love of god, just stop talking to me about it, and let me leave your office with my new toothbrush and sample toothpaste. PLEASE.

 

socks.

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2

Landon spent this weekend with my family up north. He had such a great time, and went to a see wooden ships, to a few festivals and played with his cousins and my moms neighbors.

He was exhausted, needless to say.

When I got him back home and settled in, I started unpacking his bags. My mom text me and asked if I saw the gift that he got for the baby. I hadn’t found it yet so I went looking through the other bags for it. I found the brown bag the gift was in, and asked Landon what was inside. “A gift for my new baby sister! I wanted to get her a shirt too but grandma said we didn’t know what size she would be so we could buy her a shirt when she’s born” (read: grandma spent $12 on a pair of socks, so she definitely wasn’t going to spend another $12 on a shirt the baby would wear for a hot second – completely understandable).

So, I slowly opened the bag not sure what to expect.

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It took every thing I had not to burst into tears. Landon’s staring at me, waiting for me to say something; I said I loved them and his baby sister was so lucky to have him as a big brother. He smiled and went back to playing toys.

I turned to Shane and started crying.

The first thing for the new baby.

The first baby item I’ve really looked at or held since Kenley died.

The tag on the socks says that this brand supports March of Dimes. When Kenley died, the girls on my board donated money to March of Dimes in honor of her. I feel like somehow this was a small sign from my girl. A sign that tells me that she is with us, no matter where we are at, and no matter what we are going through. She was there helping Landon choose these sweet rattle socks for his new sister. She knew it would be hard for me to see them, but she made a way to let me know it was ok.

I miss you, my sweet girl. I wish I could have seen your sweet feet in cute rattle socks. I am forever missing you.

 

 

unreal.

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5

This whole year has felt unreal; I feel like I am just going through the motions of life in a fog. I know a lot of that is grief and I’m sure someday it will feel different, but for now it still feels this way. Around the 6 month mark I started to feel like the fog was lifting, but now at 8 months out, it feels as if it’s starting to get foggy again.

My brain is pretty much mush anymore, I can’t remember anything, and I know that I’m blocking a lot of stuff out. At the end of each day I feel as if I’ve just finished running a mental marathon. I can’t wait until the moment I get to go to sleep for the night because it’s the only time I feel at peace. It feels like a lot of people’s lives have gone back to their “before”, and that’s ok- I don’t expect people to dwell on my sadness. There are people who randomly let me know that they are thinking of Kenley. They will send us something, text me, email me, or just make a gesture in honor of our family.

Those people are amazing.

I do feel, however, that there are people in my life who think I should be better. Maybe they think that I have too many “bad” days. Maybe they think that I have a grim view of certain things still. But, to those people I ask “Can you really blame me?”…

A friend (you know who you are! xo) who lost her beautiful daughter, but can’t really talk about it openly, sent me this last night. I woke up to use the rest room in the middle of the night and I saw it in my email. I smiled, peed and went back to bed. This morning I was able to read it. It is written to a non-bereaved parent in general, but I think that it can apply to family members, or friends who have no children, also. It pretty much applies to everyone. Please take the time to read it. It is the truth of my life now.

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Dear Non-bereaved Parent,

I know you care for me and am so glad you’re reading this. I know that you can’t fully comprehend, nor would you want to, what it means to be a bereaved parent. Honestly, I’m still finding out for myself. To live without my child is not something I ever wanted to learn and yet it’s what I have to.

I see that you want me to feel better. Let me assure you, you’re doing the best you can to soothe my pain, yet it is here and will be here… until it lessens. It won’t ever go away completely and this is ok. Can you be ok about it with me?

I hope you will have the courage to remember my child with me until we part. Please remember this: You may speak her name, you may remember her birthday or anniversary with me, whether that is by sending me a text message, card or flowers – it doesn’t matter, it’s the thought that counts.

Please do not fear my tears or my sadness, it means that I’m thinking of her or missing her. It’s not that I am permanently broken or sick, just broken-hearted and grieving. Please have the courage to sit with me and my pain, without needing to fix it.

At times I might say ‘I need some time to myself’ but more often, I do appreciate you being here, even without any words, keeping me company or doing something with me. Other times I might need distraction and I might even laugh and experience some joy and then feel guilty again and cry in the next moment. It’s ok, this is life and death: complex and paradoxical and not always to be understood.

You probably feel that I have changed. You might even hope and wait for me to return to the ‘old me’ again. I’m sorry but that won’t happen. I’m forever changed. Losing a child is like losing a limb. Even though the scars of the amputation will heal, it’s a permanent change and as much as it sucks, it is what is. I have to get used to it. Will you bear the chance to get to know me as your ‘new normal friend’?

I’ve chosen you as my friend because you have a big compassionate heart, yet I know it’s (almost) impossible to understand the unimaginable. Don’t say things like: “Wouldn’t it be time to move on?” or “At least you have…” I know you might say those kind of things in an attempt to support me. I know you’re well-meaning yet I’ve become sensitive and certain sentences are like shards of glass on an already wounded heart. Even if you don’t understand, would you allow your heart to reach out and trust the sensitivity of my broken heart? (For examples on what to say instead, click here.)

I might not be up to celebrating pregnancy news, I might even feel jealous of those lucky mothers who are joyously carrying their children. It’s not that I’m mean, it’s because my heart longs for my child and seeing those mothers with their children is a reminder of what I don’t have.

With time and healing, I will be sad less often or cry less often as at the beginning. This does not mean I’m ‘over it’. My child lives on in my heart and I will never get over the fact that I’m never to hold her hand in life. Please do not confuse my healing with ‘been there, done that’. My child might have gone with the wind, yet I’m still searching the world for signs of its fleeting presence.

Thank you for being here for me and with me.

Thank you for being my friend and having remained my friend through this.

Thank you for creating a new friendship with my ‘new normal’ self even though we wanted everything to remain as it was…

Thank you for remembering my child and therefore honoring me as her mother.

Every day that I wake up, I am sad. I know I have so much to be thankful for, and trust me, I am VERY thankful. I’m thankful for Landon, because I don’t know if I would have been able to pull through this without having to care for him. I’m thankful for Shane because he  is my rock, and even though he is incredibly sad as well, he keeps a strong face for me. He is the only one who feels my grief 24/7, and also deals with his own, too. I’m thankful for this new baby girl growing inside of my body. I’m so thankful that we were able to even afford IVF with no insurance coverage. I’m thankful for my doctor who is amazing, and always lets me be neurotic, ask a zillion questions, and roots for us.

I’m thankful to be alive, but that doesn’t mean that somedays I wouldn’t rather not be if it meant I could see Kenley for even 5 seconds again. And I don’t think there are many people in the world who really understand that statement.

I’m trying. Every single day. I wake up, I repeat the cycle of the day, except it’s not how it used to be. I’m a broken Mom, and Wife now. I’m a broken Daughter, Sister, and Friend. My heart is broken, and it effects every part of my life.

And it always will.

 

MFM.

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5

Today we had our dating ultrasound at the MFM office. I was so anxious, and nervous; I puked for the first time this morning, so I was going into the appointment with high hopes. When we arrived at the office, I was immediately impressed by how new it all looked. We walked in and the building was AMAZING. It was just finished in June of this year, and the whole decoration theme is that of Ohio State. Everything was just so clean and sparkly which somehow made me feel more confident in the Doctors. So lame, I know, but it’s true!

When we went back, we were put into an ultrasound room that was HUGE with a giant monitor. Once we started the scan, the tech (who was like, 23 years old MAX) was so sweet to us, and showed us everything. She told us exactly what we were looking at, and showed us the little flicker on the screen that was our girl’s heart beating away- 176 BPM. She looks like a gummy bear, and had arms and legs (although they are super tiny). The tech held the probe in one position long enough for us to see our girl dancing around. I pretty much lost it immediately. I was crying for most of the scan. It was so wonderful to see another baby with a heartbeat inside of me, growing like she should – but at the same time, it was so sad. We were given some great pictures, and told to wait for the Doctor to come in to discuss with us.

We waited for a long time, but it was totally worth it.

The Doctor came in, and I immediately fell in love with him. He answered all of our questions, and spent some serious time with us. He pulled records from Landon’s delivery and went over them with us. He informed us of all the tests he wanted to run, and that he would allow us to come back in 2 weeks for another scan. We have that scan set for 9/8. The new patient appointment is set for 9/22, at which I will meet with one of the Doctors to discuss our plan of action. At this appointment we will also have our NT scan (Nuchal Translucency Screening) as I will be 12 weeks. They also set us up for our 18 week detailed anatomy scan on 11/3. This made me extremely happy to hear- DETAILED. If you recall in one of my previous posts I discussed how our anatomy scan with Kenley was 9 minutes. I truly hope that I am at my anatomy scan with the MFM for an hour. I don’t care how long I have to be there, please just make sure my baby is ok.

Then, on 12/13 I will go in for a Fetal Echocardiogram. Can I tell you how fucking happy I am to be given all this monitoring? I mean… I’m just beyond thrilled. I know that my baby will be given THE BEST care that I can provide for her. It does hurt my heart to know that Kenley could have been given this care, and she wasn’t. That was pretty hard to deal with today, I won’t lie. I know that I did everything for Kenley that I could, but it just cuts like a knife to know that there was someone out there who could have been able to save her, maybe. I don’t know. It’s just sad.

So, bottom line is we LOVE the MFM team at Ohio State. I am throughly looking forward to going through a pregnancy with them. I know that they will take my concerns seriously, and do everything they can to bring this baby into the world screaming.

On another note, A GIANT THANK YOU to everyone who donated to the Molly Bear fundraiser. We exceeded our goal, and I have officially placed my order for my Kenley Bear!!! The bear should ship out to us within 4 weeks! This makes my heart so happy. They asked for a few specific design requests for the bear, so Shane and I thought about that for a while today. We decided to go with foxes (obviously) and her nursery colors- Coral, Yellow, and Teal. No matter what the Kenley Bear looks like, I will be so thankful for her. I’m so excited. I’m also pretty sure that when it comes I will cry pretty hard.

All in all…today was a pretty good day.

 

 

pictures.

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15

Lately, I’ve been wanting to see more/new photos of Kenley. The problem? I can’t see any new photos of my sweet girl because I’ve seen them all. All the photos that will ever exist of my beautiful daughter have been seen by my eyes.

It’s just one more thing that breaks my heart into a million pieces on the daily.

 I’ve never been able to fully write out Kenley’s story and our struggle to get her. I finally found strength to write it tonight. I wrote it here, under the “Kenleys story” tab. I’m sure there is so much missing, but the bottom line is she was wanted and she will never be here. She is so loved. 

cheese.

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5

This morning I walked into Landon’s room to wake him up for school (this never happens, he is always up before everyone else), and he was curled up in the middle of his bed looking so tiny. I stood there and my heart just exploded with love for him, and sadness for Kenley. I cannot help feeling love/grief at the same time these days. I miss my girl, and my love for her is so deep that I feel it in every fiber of my soul. My love for Landon is just the same as my love for Kenley, except I get to hold him when I’m sad. I get to physically love Landon.

He sometimes looks at me, then down at my “K” necklace. He has asked me why I don’t have an “L” for him. I answered him one time with something similar to what I just wrote. “I get to love on you like “this” (I hugged and kissed him a bunch which made him laugh), and I don’t get to love on Kenley like that. So, I wear a necklace for her. I can look down at this necklace and think of her during the day”. He seemed to like that answer pretty well.

Yesterday, he looked at me and told me that I was going to have to wear a different necklace now that I’m going to have another baby. I reminded him that this necklace is for his sister who isn’t here (who will never be here…but that seems too much for a 5 year old to handle…) and that the new baby will be here in our house when she is born. He understood, and went on playing with his toys. He misses nothing, that boy. He is so smart, and deep. I’m so proud of him, and how he can be open with me about things. I hope that never changes.

Today while Shane and I were home alone, I found a shoebox and put all of my pregnancy tests from this baby inside. I also put in paperwork from our genetic testing, random RE paper work, and the picture from the embryologist the day of my transfer. I know this baby deserves it’s own “space” in my heart, but I’m struggling to find that space still. I feel like my heart is a fucking glacier and I’m over here trying to chisel a spot out for this child with a toothpick. I’m trying, little one, I swear it.

When I made lunch today, the cheese package said “best by Jan 11 2017″…What? How is that even possible; How is it the middle of August already? I feel that the first 7 months of this year were a blur; like I went to sleep on 12.29.15, and I’m just now fumbling my way out of the bed in the darkness. Things are familiar to me, and I can feel my way through life, but it’s still so dark. It will be fall soon. It will be Thanksgiving…and then it will be Christmas. A holiday that will now forever carry a dark shadow over top. Fucking Christmas. Fucking life. Why? Like, why did this happen? Why did this have to happen to my family? And so close to Christmas. I was pregnant with Kenley when we spent an hour and a half walking through the acres of christmas trees looking for the right one. I was pregnant when we put it up and decorated it with Landon; he was more excited this past year than ever before. I will forever have these things burned into my mind.

I will see myself on the Christmas morning family video, carrying my sweet living girl. safely inside of me. Crying because my husband gave me a gift card to chatbooks so I could document all of my Instagram photos from Kenley’s pregnancy in “photo album” books. I thought it was such a sweet gift, such a thoughtful gift from my Husband who was excited for his daughter to be here. The message included with the gift card said “I can’t wait until Kenley is here, it will be so soon!”…

I don’t know how this sadness will lessen in time. I just don’t think it’s a possibility.

I miss you, sweet girl. I wish I could have watched you grow up into the amazing person I know you would have been. I wish I could have been your best friend for life. 

I miss you. I miss you. I miss you.